CEA need to call

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Coloncancerqueen
Posts: 25
Joined: Tue Aug 23, 2016 12:37 pm

CEA need to call

Postby Coloncancerqueen » Thu Feb 09, 2017 10:22 pm

I am so scared of another recurrence. I am only 4 months out since I had my ovaries removed and my next check in Mayo won't be until April. My last check in January (5 weeks ago) was good. My scan results were good and my CEA was 1.1. My local oncologist said he would do a six week check on the CEA if I wanted to help with the worry. Here I am, scared to make that call.

My mom is scheduled for the whipple surgery for pancreatic cancer on March 6. I am trying to be strong for her like she was for me. I think what I am mostly worried about is that if my CEA is elevated, how will I be as strong as I can be for her?

There is no reason to think anything is going on again but then I felt good this summer when my CEA elevated and it took 10 weeks to find.

One of my co-workers found me crying at the bubbler today at work. I know I need to call and set up the blood test test. Just so scared....
Dx 5-15
Right hemicolectomy 5-15
11 rounds of fol fox finished 11-15
6-16 elevated CEA 7.7
7-16 more elevation in CEA 13.1
Summer of 2016 2 ct scans, pet scan, MRI, ultrasound
8-12-16 Second opinion sought
8-16 biopsy revealed mets to ovary
9-16 both ovaries removed
10-16 CEA 2.6 clean scan NED
11-16 CEA 1.1, 1-16 CEA 1.5

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: CEA need to call

Postby Lee » Thu Feb 09, 2017 11:16 pm

Ok FIRST breath, breath in, breath out, repeat!

We ALL experience what you are going through at this moment. To be honest, it is probably one of the SCARIEST TIMES on this journey. We are taking life and death here folks :twisted: ! It ain't the common cold. Living life one scan to the next is hard and SCARY at times. Sometimes we need a little help. If it is too much, Ask your Onc for help, anti depressants have helped MANY people here. You might want to think about it for the next 1-2 years. Like I say, it has helped many people on this forum.

All the best with your up comming scans. thinking of you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

KElizabeth
Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: CEA need to call

Postby KElizabeth » Fri Feb 10, 2017 12:57 am

Yes. What Lee said.
If you are panicking you can't take care of yourself fully. I get anxiety all the time just thinking about where that creepy cancer could go, so I'm the poster girl Xanax. You might need something for anxiety just to get you through the first few months.

I wish you luck for your tests. Let us know how it goes.
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

User avatar
SEWHAPPY
Posts: 86
Joined: Tue Nov 15, 2016 4:25 pm

Re: CEA need to call

Postby SEWHAPPY » Fri Feb 10, 2017 9:42 am

I find that my anti-depressant just makes it easier to cope. You don't have to be afraid of asking for that help - treatment puts our bodies so out of whack. Hugs, prayers and courage for both you and your mother. Hang in there! Laurie
Female age 51.
CC diagnosed 10/13/16 at first colonoscopy.
Lap colon resection 11/21/16, removed ovary & fallopian tube.
T4N0M0, stage IIC.
Lynch negative.
Power port installed 12/19/16.
12 rounds FOLFOX done 6/16/17.

Coloncancerqueen
Posts: 25
Joined: Tue Aug 23, 2016 12:37 pm

Re: CEA need to call

Postby Coloncancerqueen » Sun Feb 26, 2017 9:34 pm

Thank you for your support and suggestions. I did try the anti depressant, Zoloft back in September. I'm not sure if it was too strong of a dose but it made me sick like I was hung over and it also made me weepy. I decided to go off and have just tried to deal with the anxiety through exercise and keeping busy. Some days are just tougher than others.

I did have my CEA last Tuesday and it's good. It's 1.5. Now I can rest a bit easier and get my mom through her surgery and recovery. Next scan and CEA will be in Mayo in April or May.
Dx 5-15
Right hemicolectomy 5-15
11 rounds of fol fox finished 11-15
6-16 elevated CEA 7.7
7-16 more elevation in CEA 13.1
Summer of 2016 2 ct scans, pet scan, MRI, ultrasound
8-12-16 Second opinion sought
8-16 biopsy revealed mets to ovary
9-16 both ovaries removed
10-16 CEA 2.6 clean scan NED
11-16 CEA 1.1, 1-16 CEA 1.5

User avatar
SEWHAPPY
Posts: 86
Joined: Tue Nov 15, 2016 4:25 pm

Re: CEA need to call

Postby SEWHAPPY » Mon Feb 27, 2017 12:31 am

Good news! Remember, if things get overwhelming there is a whole arsenal of anti-depressants that work in different ways. Sometimes it takes a few tries to get the right mix. Prayers for your Mom's surgery!
Female age 51.
CC diagnosed 10/13/16 at first colonoscopy.
Lap colon resection 11/21/16, removed ovary & fallopian tube.
T4N0M0, stage IIC.
Lynch negative.
Power port installed 12/19/16.
12 rounds FOLFOX done 6/16/17.


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