Good news for once!!!

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Good news for once!!!

Postby BeansMama » Thu Feb 09, 2017 10:26 pm

Lee wrote:
BeansMama wrote:Thank you Lee! I am hoping this keeps working and we continue to see it drop. I wish I didn't have to wait so darn long for the scan to confirm. Ugh 6 weeks!! I'm hoping my onc changes his mind and decides he wants it sooner.


Remember, we have plans for a get together in about 2 yrs. Your state or mine, yet to be determined. I too hope this current plan knocks those nasty cells into the next universe. And that the word NED is in your signature line.

ALWAYS the best,

Lee


Yes we do so I better get busy kicking some CRC butt! I am hoping this gets me to surgery so I can add NED to my signature line. I am looking forward to that day!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Good news for once!!!

Postby Lee » Thu Feb 09, 2017 10:59 pm

BeansMama wrote:. . . I am looking forward to that day!


ME TOO!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Soccermom2boys
Posts: 222
Joined: Tue Nov 10, 2015 10:29 pm

Re: Good news for once!!!

Postby Soccermom2boys » Thu Feb 09, 2017 11:32 pm

Aww Beans--you are our own version of the little engine that could! Can't say enough how happy I was to see and read your post about your good news on immunotherapy, how wonderful! You sure as hell are doing your darndest to chug up that hill to get to the other side of the mountain, aka NEDville! Just keep telling yourself when the going gets tough: "I think I can, I think I can, I think I can..." Thanks for sharing the happy news, looking forward to more positive updates on your way down to NEDville!
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: Good news for once!!!

Postby Ajane » Fri Feb 10, 2017 1:18 am

Thrilled for your great news!
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Good news for once!!!

Postby BeansMama » Fri Feb 10, 2017 5:26 pm

Soccermom2boys wrote:Aww Beans--you are our own version of the little engine that could! Can't say enough how happy I was to see and read your post about your good news on immunotherapy, how wonderful! You sure as hell are doing your darndest to chug up that hill to get to the other side of the mountain, aka NEDville! Just keep telling yourself when the going gets tough: "I think I can, I think I can, I think I can..." Thanks for sharing the happy news, looking forward to more positive updates on your way down to NEDville!


Thanks soccermom! I never thought about it in that way but I suppose you are right. It is a good visualization for me too. I just might start using it. That tumor is getting smaller and smaller the farther up the hill I get.

Keeping you in my prayers.
Beans.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Good news for once!!!

Postby BeansMama » Fri Feb 10, 2017 5:26 pm

Ajane wrote:Thrilled for your great news!


Thank you!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

MDK
Posts: 46
Joined: Sun Nov 29, 2015 1:43 pm

Re: Good news for once!!!

Postby MDK » Fri Feb 10, 2017 5:31 pm

Congratulations honey!!! This is wonderful news for you, for all of us.

You keep those gloves on - so many times on my bad days I think of you and that wonderful spirit of yours!!!!

Marianne
Diagnosed 11/9/2015
Stage III Rectal Cancer
Began Chemoradiation 01/04/2016
Completed Chemoradiation 2/17/16
Local Excision
Developed Rectovaginal Fistula
06/24/16 APR / Flap Repair Fistula
Permanent Colostomy
09/20/2016 Liver Mets, possible Lung Mets
9/16 - 11/17 Xeloda and Avastin to progression
12/17 - 01/18 Folfox 6 sessions liver tumor shrank considerably - severe allergic reaction
01/18 - 04/18 Xeloda and Avastin - Progression
06/18 Avastin and Irinotecan

Philippians 4:6-7

tarheelmom
Posts: 168
Joined: Mon Mar 07, 2016 5:55 pm

Re: Good news for once!!!

Postby tarheelmom » Fri Feb 10, 2017 5:36 pm

Great news!
52 y at dx, mom to 4
DX: RC on 2/22/2016
Stage I, T2N0M0, 0/32 LN
23 mm x 7 mm moderately differentiated invasive adenocarcinoma
3 cm from anal verge
4/12/16: ULAR, TME, & temp ileostomy
6/14/16: ileo reversal

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Good news for once!!!

Postby BeansMama » Fri Feb 10, 2017 5:40 pm

MDK wrote:Congratulations honey!!! This is wonderful news for you, for all of us.

You keep those gloves on - so many times on my bad days I think of you and that wonderful spirit of yours!!!!

Marianne


Thank you! I'm definitely keeping the gloves on. Not going to stop until I run out of options.

Keeping you in my prayers, sending extra strength your way.
Beans.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Good news for once!!!

Postby BeansMama » Fri Feb 10, 2017 5:41 pm

tarheelmom wrote:Great news!


Thank you!!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

jortego128
Posts: 288
Joined: Sat Aug 15, 2015 7:47 am

Re: Good news for once!!!

Postby jortego128 » Fri Feb 10, 2017 9:57 pm

Awesome news!! I remember suggesting you try PD(L)-1 immunotherapy instead of chemo months ago-- so glad you did and its working for you. I hope and will pray that it will continue to work and shrink those mets to open up even more treatment options!!
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Good news for once!!!

Postby Pita » Fri Feb 10, 2017 10:31 pm

WOW this is such exciting news, can't begin to tell you how thrilled I am for you. Pray it keeps working!!!
You're such a warrior and a shining star for all of us. oxo
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Good news for once!!!

Postby teachpdx » Fri Feb 10, 2017 10:56 pm

Congratulations! That's such wonderful news!
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

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Marylandmaniac
Posts: 234
Joined: Wed Jun 29, 2016 6:22 pm

Re: Good news for once!!!

Postby Marylandmaniac » Sat Feb 11, 2017 7:46 pm

Hi Beansmama,

I have not been on here much over the past 2 weeks. I was so excited to read your news! That is a HUGE drop in you CEA! I am also glad to hear that the immunetherapy hasn't been hard on you. I hope and pray that this is the right path for you to be rid of these intruders. :)
DX 6/29/16 7 cm tumor, 10 cm fr av
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX

Need2talk
Posts: 32
Joined: Sun Oct 02, 2016 7:24 pm
Facebook Username: Janicejones

Re: Good news for once!!!

Postby Need2talk » Sat Feb 11, 2017 9:04 pm

Yay!!! You are always in my thoughts. I am so so happy to hear this news!!!


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