3 days post reversal

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Youngjen81
Posts: 47
Joined: Thu Feb 25, 2016 9:46 am

3 days post reversal

Postby Youngjen81 » Mon Jan 30, 2017 11:14 pm

Had my ileostomy take down Friday. Today is Monday and I have not passed any gas. I have had a few episodes of 10/10 pain directly under my ribs, but most of my pain has been controlled with narcotics. Abdomen is distended and firm.
Last night I had a fever 101.6, Tylenol brought it down. This morning my surgeon ordered an xray, it shows gas outside the intestine under the liver, a section of dialated small intestine and some gas in the large intestine (which is good news).
Anyhow, if the fever comes back he's going to open me back up and re suture. In the mean time, small sips of clear beverages only.
I've read countless stories on here but have not found much on reversal complications. Have any of you heard of this happening?
Diagnosed at 35 after 8 years of symptoms
T3n1m0, clinical diagnosis, suspicious spot on iliac crest and left lower lung, unchanged
28 radiation, with Xeloda 3000 mg
LAR with temp ileostomy 6-21-16, pCR!
Ileus and blockage, 12 day hospital stay
Port placement 7-26-16
Fofox begins 8-2-16
Mom to 4 boys(2, 10, 11, 22) they are my world!
Mother diagnosed 5/2016
Clinical stage t3n2m0, cysts on liver and kidneys
Last day of chemoradiation 7-28-16, can't wait! It's hard seeing my Mom in pain

Maelleous
Posts: 125
Joined: Tue Nov 01, 2016 8:13 am
Location: FL

Re: 3 days post reversal

Postby Maelleous » Wed Feb 01, 2017 10:28 am

I've been reading about reversals (hopefully doing mine in a few months) and unfortunately it does seem to have a lot of issues, esp for the first few weeks immediately after. I have been reading stories on the Inspire webiste about people with ostomies, they have a ton of posts on that very subject. https://www.inspire.com/groups/ostomy/?ref=as&asat=495777643
M 35 yr
DX Rectal Cancer, 10/16 (symptoms Feb 2016)
Dx stage 2 - Surgery Oct 25 201 Loop ileo w/ j-pouch
Close margins within 1mm
9/38 lymph nodes involved on path / Stg IIIc,pT4, pN2 B, p.M0. MSS, K‐ras, NRAS, no mutation
Started Folfox - 3rd Treament, Dec 30th 2016 Cardiac Arrest - Lucky to be part of the 6% to survive!
S-ICD installed / Port Removed
Vaccine Clinical trial at UPMC - last shot June 2017
Reversal 8/1/17 - Praying this is it!
Still NED

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Green Tea
Posts: 240
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: 3 days post reversal

Postby Green Tea » Wed Feb 01, 2017 1:54 pm

I have a question; Was your surgery simply for reversal, or did it also involve repair of a parastomal hernia?

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Youngjen81
Posts: 47
Joined: Thu Feb 25, 2016 9:46 am

Re: 3 days post reversal

Postby Youngjen81 » Wed Feb 01, 2017 2:31 pm

Green Tea wrote:I have a question; Was your surgery simply for reversal, or did it also involve repair of a parastomal hernia?


Reversal and port removal
Diagnosed at 35 after 8 years of symptoms
T3n1m0, clinical diagnosis, suspicious spot on iliac crest and left lower lung, unchanged
28 radiation, with Xeloda 3000 mg
LAR with temp ileostomy 6-21-16, pCR!
Ileus and blockage, 12 day hospital stay
Port placement 7-26-16
Fofox begins 8-2-16
Mom to 4 boys(2, 10, 11, 22) they are my world!
Mother diagnosed 5/2016
Clinical stage t3n2m0, cysts on liver and kidneys
Last day of chemoradiation 7-28-16, can't wait! It's hard seeing my Mom in pain

Nelbel
Posts: 37
Joined: Thu Nov 17, 2016 11:02 pm

Re: 3 days post reversal

Postby Nelbel » Thu Feb 02, 2017 10:47 am

I'm sorry you are having complications. I didn't have any with my reversal so I can't be of much help. Just hope that your fever didn't come back and you are now on your way with normal recovery from the reversal.
DX Dec 2015 at age 41
Stage 3 RC
Radiation and xeloda
May 2016 LAR and temp ileo
8 rounds chemo
Nov 2016 ileo reversed!

User avatar
Youngjen81
Posts: 47
Joined: Thu Feb 25, 2016 9:46 am

Re: 3 days post reversal

Postby Youngjen81 » Fri Feb 03, 2017 3:25 pm

I'm home. Never found out what caused the fever but most importantly I'm healing now. 7 days at the hospital after my reversal due to a gut that's slow to wake up.
The last 3 nights I've been up over 20 times going to the toilet. BM's are watery. Just glad to home and healing.
Diagnosed at 35 after 8 years of symptoms
T3n1m0, clinical diagnosis, suspicious spot on iliac crest and left lower lung, unchanged
28 radiation, with Xeloda 3000 mg
LAR with temp ileostomy 6-21-16, pCR!
Ileus and blockage, 12 day hospital stay
Port placement 7-26-16
Fofox begins 8-2-16
Mom to 4 boys(2, 10, 11, 22) they are my world!
Mother diagnosed 5/2016
Clinical stage t3n2m0, cysts on liver and kidneys
Last day of chemoradiation 7-28-16, can't wait! It's hard seeing my Mom in pain

User avatar
Youngjen81
Posts: 47
Joined: Thu Feb 25, 2016 9:46 am

Re: 3 days post reversal

Postby Youngjen81 » Fri Feb 03, 2017 3:49 pm

I'm home. Never found out what caused the fever but most importantly I'm healing now. 7 days at the hospital after my reversal due to a gut that's slow to wake up.
The last 3 nights I've been up over 20 times going to the toilet. BM's are watery. Just glad to home and healing.
Diagnosed at 35 after 8 years of symptoms
T3n1m0, clinical diagnosis, suspicious spot on iliac crest and left lower lung, unchanged
28 radiation, with Xeloda 3000 mg
LAR with temp ileostomy 6-21-16, pCR!
Ileus and blockage, 12 day hospital stay
Port placement 7-26-16
Fofox begins 8-2-16
Mom to 4 boys(2, 10, 11, 22) they are my world!
Mother diagnosed 5/2016
Clinical stage t3n2m0, cysts on liver and kidneys
Last day of chemoradiation 7-28-16, can't wait! It's hard seeing my Mom in pain

Lee
Posts: 6166
Joined: Sun Apr 16, 2006 4:09 pm

Re: 3 days post reversal

Postby Lee » Sat Feb 04, 2017 2:19 pm

Youngjen81 wrote:. . . Never found out what caused the fever . . .


I was a few days out from my surgery to remove my tumor when I too developed a some what high fever. I believe they took an x-ray of me and found nothing wrong. I remember the nurse telling me they had to take the fever seriously, butt they suspected my fever was a direct result of my bowels waking up. Sure enough, a few hours later, fever is gone and they could hear gas in my bowels. 24 hrs later, I was passing gas into my bag.

Glad you are home,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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chrisca
Posts: 242
Joined: Wed Dec 07, 2011 10:35 pm
Location: Portland, Oregon

Re: 3 days post reversal

Postby chrisca » Sat Feb 04, 2017 5:23 pm

My experience was that the anastomosis was blocked by having solid food at about 3 days. I had abdominal distension as a result, and looked pregnant (no exaggeration.) It took two weeks to resolve. If you've not had solid food, you could have leaking at the anastomosis that's letting gas into the abdomen. But if the doctors are watching, you'll be taken care of. If the anastomosis heals, the leakage will stop. That's what the doc is likely hoping for right now. In my case the sutures were tight and there was no leakage. Instead, the bowel itself swelled up causing the distension. If you trust your surgeon and the anastomosis needs to be redone, go ahead with it. If you don't trust the surgeon, get someone else with as much experience as possible to do the work.
Male, false negative colonoscopy age 48
DX: 12/2010 rectal cancer age 51
Stage T3N0M0 2 cm from anal verge
neoadjuvant rad/chemo Xeloda
Rectal resection (open surgery) straight anastomosis
Xeloda round 2
ileostomy reversal 11/2011
Successful adhesion X-lap 8/2013
Ongoing LAR syndrome but NED 10 years


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