Hello everyone,
if you havent seen my update from my last post, I just wanted to say thank you again for all the wonderful prayers and support
Mom is still in the hospital and will be discharged tomorrow.
Even though mom is still doing okay and actually had a few bowel movement these past few days, she is still experiencing abdominal pain that comes and goes. She still weak and has shortness of breath if she walks or do anything for too long.
She is eating, though not alot. She only vommited once, but so far has been able to keep her food down.
The palliative nurse and doctor came in and told mom the harsh reality.
I had to translate it to my mom since we're vietnamese and she doesnt understand english.....but i can tell this time she understood everything.
The doctor said that mom condition is going to get worse and there no treatment available. Her onc has decided that she wont be able to do chemo nor will it be beneficial for her.
They said that even though mom has a partial bowel obstruction right now......soon it will turn into a total obstruction and then that's...it.
They said that she has a week to a month left, and told me to start thinking about hospice.
I'm heartbroken. It broke my heart to have to translate everything back to my mom and tell her about her "death sentence"
mom didnt even need the full translation to understand the situation. She cried....I cried. I tried so hard to hold it in because i knew that if i broke down, that she would too.
Tonight we will have a full family discussion to sort out everything. I wished and i thought I would have a few more months with her...but to know I only have less than a month is disheartening.
Im also in school....so I dont know how to balance all of this. How can I go to school...knowing shes at home like this? If this was the summer or during break..then I can atleast spend as much time as i can with her....but now i have to balance both. If i could, I would stop school at once...but she would never allow that to happen.
I also have a regret....if only i had pushed the doctors to remove the tumor in her colon and maybe...just maybe this wouldn't have happened.
No matter what, Im going to try my best and make my mom as happy as I can and spend time together as a family.
If we could receive some more prayers...in hope of extending my mom life a little more, It would mean the world. Thank you to everyone on this forum for all of the support you have given me. Keep fighting and never EVER give up!
Nearing the end
Nearing the end
Mom Diagnosed with CC stage iv with mets to liver and lung
16 rounds of folfox - failed
folfori- some growth, some shrank
folfori+vectibix- failed after 4 months (scans came back with some growth)
currently- (oct12/16) stivarga (2 pills a day)
16 rounds of folfox - failed
folfori- some growth, some shrank
folfori+vectibix- failed after 4 months (scans came back with some growth)
currently- (oct12/16) stivarga (2 pills a day)
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Steph20021
- Posts: 553
- Joined: Sat Dec 27, 2014 4:58 pm
- Location: Ontario, Canada
Re: Nearing the end
I am so sorry you are going through this. Maybe the school with put your studies on hold? I hope you have lots of happy moments with your mom ahead. Thinking of you both,
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
Re: Nearing the end
So sorry to hear, Natalie. I wish you more time than what it has been stated, to share with your mom. May she, and your family, be free from any suffering, may you enjoy your time feeling love. xoxoxo
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KElizabeth
- Posts: 400
- Joined: Sat Oct 31, 2015 12:41 pm
- Facebook Username: KElizabeth
- Location: Omaha
Re: Nearing the end
Oh Natalie, I am so very sad to hear this. I know personally how hard it is to tell your mom she's dying and I wish you never had to do it. I'm going to keep praying for you and mom.
Do you have the option to do hospice at home?
Do you have the option to do hospice at home?
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current
Re: Nearing the end
I'm so sorry Natalie. How horrible to have to tell your Mom such a thing. I have a daughter your age and this just hurts my heart to think what you are going through. Many prayers.
HUGS
Teri
HUGS
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low
Re: Nearing the end
I am so sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
Re: Nearing the end
I am so sorry. I will pray for you, your mom, and family.
So so sorry.
So so sorry.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear
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tarheelmom
- Posts: 168
- Joined: Mon Mar 07, 2016 5:55 pm
Re: Nearing the end
So sorry. I will keep you, your mom, and your family in my prayers.
52 y at dx, mom to 4
DX: RC on 2/22/2016
Stage I, T2N0M0, 0/32 LN
23 mm x 7 mm moderately differentiated invasive adenocarcinoma
3 cm from anal verge
4/12/16: ULAR, TME, & temp ileostomy
6/14/16: ileo reversal
DX: RC on 2/22/2016
Stage I, T2N0M0, 0/32 LN
23 mm x 7 mm moderately differentiated invasive adenocarcinoma
3 cm from anal verge
4/12/16: ULAR, TME, & temp ileostomy
6/14/16: ileo reversal
Re: Nearing the end
I can't find the words to comfort you, but I will keep you and your Mom in my prayers daily. I am so sorry that you have to go through this. Strength and courage, believe in these empowered by God. I hope you get to spend as much time as possible with her.
62f, Blessed with a wonderful husband and 2 sons
Diagnosed 6/2016, Adenocarcinoma, Colectoral primary, chemo lifer
Stage 4b, liver mass 7.0 x 4.8 cm and additional lesions, multiple lung nodes
CEA 40.9
7/12 began Folfox, Neulasta, Avastan
CT 9/12 tumor shrunk 4.4 by 3.3
CEA 9.6
Continuing Folfox, CT scheduled 12/12.
MSS, neg lynch
Put Oxiliplatin and Neulasta on hold.
CT 12/12 Hepatic dome mass shrinks to 2.9 x 2.5, other lesions shrink, no new.
CEA 3.3
Diagnosed 6/2016, Adenocarcinoma, Colectoral primary, chemo lifer
Stage 4b, liver mass 7.0 x 4.8 cm and additional lesions, multiple lung nodes
CEA 40.9
7/12 began Folfox, Neulasta, Avastan
CT 9/12 tumor shrunk 4.4 by 3.3
CEA 9.6
Continuing Folfox, CT scheduled 12/12.
MSS, neg lynch
Put Oxiliplatin and Neulasta on hold.
CT 12/12 Hepatic dome mass shrinks to 2.9 x 2.5, other lesions shrink, no new.
CEA 3.3
Re: Nearing the end
I am so very sorry. May the time you have with your mom be filled with peace and love.
Daughter to 70-year old father dx 2015-Sept-28: Stage IV adenocarcinoma with signet ring cell features
Sigmoid colon primary with peri mets
MSS; RAS wild-type; mutation in exon 8 of p53
2015-Oct: Began FOLFOX-6 at MDA; CEA was 15.1 at baseline
2016-Feb: CEA 5.7; 10 full rounds of FOLFOX-6 completed
2016-Mar-3: Began FOLFIRI
chemo, chemo, chemo
2017-Jan: Total of 29 cycles of chemo down. Back on FOLFOX again after FOLFIRI fail. CEA now 118.
Sigmoid colon primary with peri mets
MSS; RAS wild-type; mutation in exon 8 of p53
2015-Oct: Began FOLFOX-6 at MDA; CEA was 15.1 at baseline
2016-Feb: CEA 5.7; 10 full rounds of FOLFOX-6 completed
2016-Mar-3: Began FOLFIRI
chemo, chemo, chemo
2017-Jan: Total of 29 cycles of chemo down. Back on FOLFOX again after FOLFIRI fail. CEA now 118.
Re: Nearing the end
Prayers for comfort and peace. I am so very sorry.
I was a student when my father passed away and was allowed to drop classes with no penalties. Ask your school about bereavement policies.
I was a student when my father passed away and was allowed to drop classes with no penalties. Ask your school about bereavement policies.
Female age 51.
CC diagnosed 10/13/16 at first colonoscopy.
Lap colon resection 11/21/16, removed ovary & fallopian tube.
T4N0M0, stage IIC.
Lynch negative.
Power port installed 12/19/16.
12 rounds FOLFOX done 6/16/17.
CC diagnosed 10/13/16 at first colonoscopy.
Lap colon resection 11/21/16, removed ovary & fallopian tube.
T4N0M0, stage IIC.
Lynch negative.
Power port installed 12/19/16.
12 rounds FOLFOX done 6/16/17.
-
Marylandmaniac
- Posts: 234
- Joined: Wed Jun 29, 2016 6:22 pm
Re: Nearing the end
You and your mom have been in my thoughts and prayers and will continue to be. You are a wonderful daughter. Some people can't handle the end and they do everything to avoid reality. You have been with your mom through this all. Peace be with you.
DX 6/29/16 7 cm tumor, 10 cm fr av
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX
Re: Nearing the end
Tnguyen wrote:Hello everyone,
if you havent seen my update from my last post, I just wanted to say thank you again for all the wonderful prayers and support
Mom is still in the hospital and will be discharged tomorrow.
Even though mom is still doing okay and actually had a few bowel movement these past few days, she is still experiencing abdominal pain that comes and goes. She still weak and has shortness of breath if she walks or do anything for too long.
She is eating, though not alot. She only vommited once, but so far has been able to keep her food down.
The palliative nurse and doctor came in and told mom the harsh reality.
I had to translate it to my mom since we're vietnamese and she doesnt understand english.....but i can tell this time she understood everything.
The doctor said that mom condition is going to get worse and there no treatment available. Her onc has decided that she wont be able to do chemo nor will it be beneficial for her.
They said that even though mom has a partial bowel obstruction right now......soon it will turn into a total obstruction and then that's...it.
They said that she has a week to a month left, and told me to start thinking about hospice.
I'm heartbroken. It broke my heart to have to translate everything back to my mom and tell her about her "death sentence"
mom didnt even need the full translation to understand the situation. She cried....I cried. I tried so hard to hold it in because i knew that if i broke down, that she would too.
Tonight we will have a full family discussion to sort out everything. I wished and i thought I would have a few more months with her...but to know I only have less than a month is disheartening.
Im also in school....so I dont know how to balance all of this. How can I go to school...knowing shes at home like this? If this was the summer or during break..then I can atleast spend as much time as i can with her....but now i have to balance both. If i could, I would stop school at once...but she would never allow that to happen.
I also have a regret....if only i had pushed the doctors to remove the tumor in her colon and maybe...just maybe this wouldn't have happened.
No matter what, Im going to try my best and make my mom as happy as I can and spend time together as a family.
If we could receive some more prayers...in hope of extending my mom life a little more, It would mean the world. Thank you to everyone on this forum for all of the support you have given me. Keep fighting and never EVER give up!
Dear, i prayed to the lord to comfort you and your mom with his peace, I also told father Cyril... god bless you
Re: Nearing the end
I can't imagine what you must be going through. I will pray for you and your mom. You have been so strong for your mother. I hope you both find comfort and peace in the days ahead.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED
Re: Nearing the end
Natalie,
I am so sorry to read this. Make memories with your Mom now while it is still possible.
Talk to your school now, explain the situation. Sometimes school will let students make up work later depending on the situation. I truly believe your school will work with you.
I hope and pray your mom has at least a few a good days ahead and as the time get near, that she does not suffer.
(((Natalie & mom)))
Lee
I am so sorry to read this. Make memories with your Mom now while it is still possible.
Talk to your school now, explain the situation. Sometimes school will let students make up work later depending on the situation. I truly believe your school will work with you.
I hope and pray your mom has at least a few a good days ahead and as the time get near, that she does not suffer.
(((Natalie & mom)))
Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
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