Nearing the end

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Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Nearing the end

Postby Pita » Sat Jan 28, 2017 4:19 pm

So sorry... Many hugs and prayers to your Mom, you and your family. oxo
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Nearing the end

Postby DarknessEmbraced » Sat Jan 28, 2017 6:09 pm

I'm so sorry!*hugs* May you enjoy spending time with your Mom. Peace and love to you both!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Pebblesgrgrma
Posts: 21
Joined: Fri Nov 25, 2016 3:58 pm

Re: Nearing the end

Postby Pebblesgrgrma » Sat Jan 28, 2017 7:03 pm

About a month ago I had to tell my dad the same thing in the doctor office. He was very hard of hearing and having a difficult time following what the doc was telling him. When everyone left the room he asked me what that was all about. I told him the cancer was going to take his life soon. If they did any treatments he would get sicker and probably die quicker. He looked at me and said " then what the hell are we doing here, my hemorrhoids are killing me". We left the office and he passed away 10 days later on Jan8.
I know there can be barriers of all kinds to the doctors giving "the news". They dont have crystal balls I was told so many times. Maybe some just don't want to know. But having to do what you and I did was necessary and probably better coming from us. I can't say I had the best time of my life with dad his last couple of weeks, but it was the most intense and spiritual experience of a lifetime. I would not trade the pain I suffered for anything. I wish dad had not been in so much pain, but he refused almost all pain meds at the end. He said if he didn't mind the pain , the meds dont matter. But that was his motto most of his life " mind over matter"
Sorry I got off track and on me and mine. But I can so freshly feel your pain. If I had pushed the doctors, if they had caught it sooner. I had been with my dad almost on a daily basis for 23 years since my mom died from ALS,,, why didn't I see something, I was with him at all doc appts.
Hind sight is 20/20, the sad thing in this situation, I don't see anything I could have done differently.
DAD COULD HAVE HAD A COLONOSCOPY and that might have changed things.
But all in all, it is what it is. Stay as close to your mom as you can so she won't be scared. My dad was scared and wanted me and his sister with him at all times. ( now we have both seen our doctors this week and are being treated for "healthcare pneumonia ")
I hurt for you and will keep you in my thoughts and prayers. Stay strong for your mom but please take care of yourself.
Linda
I probably should change pebbles but wont, When I started reading this group I had just found out I was going to be a great grandma, Hoping for a red hair little girl. Now we know my granddaughter is having a BOY ! I guess life goes on.
God Bless

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WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Nearing the end

Postby WriterGirl1969 » Sat Jan 28, 2017 7:09 pm

Natalie, my heart goes out to you both. It's never easy to hear that kind of news, for either of you, but how wonderful that you are there for your Mom. As the Mom in my situation, I know that just knowing my child was going to be okay and was there for me would be so comforting.

May God grant you both the peace that passes all understanding, and may He lay his healing hands on your mother and wrap her in his arms. May whatever happens now be in His hands, and may you both find love and compassion on every turn. Remember that when we are not strong enough, He is.

God bless your family, and you will continue to be in my heart and prayers.
Hugs,
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Nearing the end

Postby CRguy » Sat Jan 28, 2017 9:31 pm

Tnguyen wrote:No matter what, Im going to try my best and make my mom as happy as I can and spend time together as a family.
If we could receive some more prayers...in hope of extending my mom life a little more, It would mean the world. Thank you to everyone on this forum for all of the support you have given me. Keep fighting and never EVER give up!

I know whereof you speak my friend
I know where you are going
I have been there, twice ... and
I will be HERE to support you.

YOU can only be who you are
do what you can do
and just BE THERE for Mom

Our buddy here BrownBagger once said to me, offline in a discussion about being in the process of losing a parent :
" We try to prepare for ... what we are NEVER prepared for. "

Another friend offline asked :
" How do we go on knowing we are losing loved ones and cannot help them ? "

My answer :
Sometimes you just DO what you need to DO
It hurts
you don't know HOW to do it
SO....... you just do it

don't know if that helps
I hope it does
we are here
you are here and we will all be here together to get through the things
" we are NEVER prepared for "

Love Peace and prayers
In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

JJ2212
Posts: 268
Joined: Mon Oct 14, 2013 3:54 pm
Location: Montréal, QC

Re: Nearing the end

Postby JJ2212 » Sat Jan 28, 2017 9:41 pm

I'm so sorry Natalie. You've been such a dedicated caregiver to your mom. I hope you continue to share beautiful moments with her.

Janie
Rectal cancer dx 04/13 @ 42, MSS, KRAS positive
T3N2M1 (1 lung met)
5 weeks xeloda+radiation finished 07/13
APR 9/13 (permanent colostomy), 27/31 nodes positive :-(
12 rounds of FOLFOX 04/14
Lung met growth 11/14
26 cycles Regorafenib (Stivarga) from 11/15 to 01/17
New lung met and chest/neck lymph nodes 01/17
1 cycle Folfiri

BIG ROB 69
Posts: 63
Joined: Sun Aug 28, 2016 2:00 am
Location: Long Island, NY

Re: Nearing the end

Postby BIG ROB 69 » Tue Jan 31, 2017 7:01 pm

You can always go back to school, but the time with your mom is now. I will pray for both of you.
3/18/2015 DX CC Stage3/4 49YO MALE IN NEW YORK
Inoperable...hepatic artery
11/15 oper to rem block...colon bypass
4/16 oper to remove scar tissue
5/16 Lynch pos.
10/16 Two bile tubes installed to relieve jaundice
So far I have done the three main chemo drug rounds and on 12/19/16 start Keytruda.
No chemo after 8/3/16 CEA: 10/14/16-409 12/19/16- 887 Mostly my CEA was in the 140-180 range.
CEA: 1/9/17-415 1/30/17-156.2 2/20/17-120.8 3/13/17-98 4/21/17-83.6 5/12/17-64.7 6/1/17-32.1
7/25/17-32.6

canadiandaughter
Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: Nearing the end

Postby canadiandaughter » Tue Jan 31, 2017 8:29 pm

I am so sorry that things have gotten to this point for your mom and yourself. CRGuy has given you very good words! Nothing can prepare you for what is coming next. I honestly thought that I was prepared. I can tell you that you will find the strength that you need to be there and do your best for you mom, but be prepared to fall to pieces after but you do get through it, you have no choice. I am not a strong person but I found strength from somewhere! Spend whatever time you can with your mom, as said already, school can wait. This is precious time!! Talk about your memories. I know my dad always smiled when we talked about things from his past, good and bad!! These memories will help you down the road! I am sending you lots of hugs and strength!! Take care of yourself as well!!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

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Cowgirl918
Posts: 326
Joined: Sun Jan 17, 2016 12:55 am
Location: Indiana

Re: Nearing the end

Postby Cowgirl918 » Wed Feb 01, 2017 9:38 pm

You and your Mother are in my prayers. I am so sorry and saddened that her journey has brought you to this place. I was your age when I helped my Father transition to the "other side". I will ask God to give you strength. You are giving her a great gift with your presence. Blessings be with you dear child.
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Nearing the end

Postby BeansMama » Wed Feb 01, 2017 11:35 pm

I am so sorry, I admire the strength you have shown through this battle and your dedication to your mother.

I agree with the others, speak with your school administrators, they should have policies for situations such as this that will allow you to spend more time with your mother without penalties.

I am keeping your entire family in my prayers as you navigate this difficult time.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016


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