The HEROIC Registry is the first of it's kind patient-centric genetic database that will enable patients to take an active role in furthering research into this CDC Tier 1 public health initiative genetic mutation. The HEROIC Registry allows patients to contribute medical information and their experiences living with Lynch Syndrome and its associated cancers to help researchers develop new treatments, understand the various Lynch genetic mutations, write medical papers and conduct further studies and clinical trials. Your data can shape the types of research studies to be conducted that are most beneficial to you – the patient.
For more info, go to: http://aliveandkickn.org/heroic-registry-0
The Colon Club