My dads journey is over

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: My dads journey is over

Postby BeansMama » Thu Jan 19, 2017 3:52 pm

I am very sorry for your loss, my condolences to your family. Keeping all of you in my prayers.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: My dads journey is over

Postby Lee » Sun Jan 22, 2017 3:44 pm

Somehow I missed this. Please accept my condolences on the passing of your dad. He fought a brave battle.

All the best to you and your family,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: My dads journey is over

Postby Ajane » Sun Jan 22, 2017 7:48 pm

Dear CD, So sorry for your loss. My deepest condolences to you and your family. Jane
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

Coloncancerqueen
Posts: 25
Joined: Tue Aug 23, 2016 12:37 pm

Re: My dads journey is over

Postby Coloncancerqueen » Sun Jan 22, 2017 7:58 pm

So sorry for your loss. Your dad sounds like a fighter.
Dx 5-15
Right hemicolectomy 5-15
11 rounds of fol fox finished 11-15
6-16 elevated CEA 7.7
7-16 more elevation in CEA 13.1
Summer of 2016 2 ct scans, pet scan, MRI, ultrasound
8-12-16 Second opinion sought
8-16 biopsy revealed mets to ovary
9-16 both ovaries removed
10-16 CEA 2.6 clean scan NED
11-16 CEA 1.1, 1-16 CEA 1.5

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: My dads journey is over

Postby TXLiz » Sun Jan 22, 2017 9:31 pm

I am so sorry to hear your dad has passed. My sincere condolences. May your family find peace and healing with time.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Danieljt
Posts: 309
Joined: Sun Aug 10, 2014 10:32 pm

Re: My dads journey is over

Postby Danieljt » Sun Jan 22, 2017 9:44 pm

CD I'm so sorry for your loss. You should feel at peace knowing you did all you could for him. Hugs
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.

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SEWHAPPY
Posts: 86
Joined: Tue Nov 15, 2016 4:25 pm

Re: My dads journey is over

Postby SEWHAPPY » Mon Jan 23, 2017 11:07 am

May God grant you peace and healing. May your memories linger on the happy and joyful times, as you honored your father with the support he deserved. Bless you. Laurie
Female age 51.
CC diagnosed 10/13/16 at first colonoscopy.
Lap colon resection 11/21/16, removed ovary & fallopian tube.
T4N0M0, stage IIC.
Lynch negative.
Power port installed 12/19/16.
12 rounds FOLFOX done 6/16/17.

jortego128
Posts: 288
Joined: Sat Aug 15, 2015 7:47 am

Re: My dads journey is over

Postby jortego128 » Mon Jan 23, 2017 4:33 pm

Im so very sorry about your Dad's passing. My deepest condolences to you and your family....
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

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Cowgirl918
Posts: 326
Joined: Sun Jan 17, 2016 12:55 am
Location: Indiana

Re: My dads journey is over

Postby Cowgirl918 » Tue Jan 24, 2017 8:30 pm

I just read this and I am so sorry. I lost my Father to this disease. You and your family are in my prayers. You helped your Dad fight the "good fight".
I wish you healing and peace.
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery

canadiandaughter
Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: My dads journey is over

Postby canadiandaughter » Tue Jan 31, 2017 8:18 pm

I just wanted to thank everyone for their condolences and kind words. It is nice to have this family to turn to in our time of need, even though our common bond sucks!!!!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: My dads journey is over

Postby Steph20021 » Wed Feb 01, 2017 11:20 pm

Wishing you peace and comfort. Your dad was lucky to have you.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

Pebblesgrgrma
Posts: 21
Joined: Fri Nov 25, 2016 3:58 pm

Re: My dads journey is over

Postby Pebblesgrgrma » Thu Feb 02, 2017 11:46 pm

I am so sorry to read this post. My prayers for your peace and comfort.
My dads journey ended the same day, Jan 8, 2017.

capeggy
Posts: 15
Joined: Tue Aug 11, 2009 10:20 am

Re: My dads journey is over

Postby capeggy » Tue Nov 28, 2017 10:45 pm

Hurts my heart for all, we fight so hard. Lost (3) friends in the last 5/6 years and me?? Still here!! :arrow: :arrow: :roll:
dx stage 4 colorectal 5-31-09
6 weeks chemo - 6 weeks radiation
Surgery 9-21-09


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