Maelleous wrote:Thanks Beans.
I have done a bunch of research on statistics for surgery with chemo and without and I am surprised that the odds of reoccurrence/survival isn't as huge of a difference as I would have expected so that eased my mind a little bit. Yes I would still rather do it and have the peace of mind I did everything possible. I'm scheduling a second opinion with Moffett to see what they say. The oncologist at Cleaveland Clinic told me there were no immonotherapies for NED patients... def need a second opinion.
Maelleous wrote:I would be happy to hear the names Ipas. The cardiologists don't want me on any supplements until after I get my ICD. I was able to get in early (yesterday) to the EP doctor. Apparently once you have Sudden Cardiac Death (I was technically dead for almost 10 minutes I have learned) that your risk, even if caused by chemo, is much higher than a normal person. They are going to install an external defibulator. It goes underneath the skin but does not have wires into the heart so a much safer option and less invasive. I have that scheduled for Feb 28th. I should be able to explore cancer treatment options again after that is done. They pushed it out that far because I still have voice issues from the inhibation tube during the arrest.
I'm meeting with Moffitt tomorrow for a 2nd opinion on options. They want me to meet with a radiologist there, but from what I have learned if you have a j-pouch, it can cause more problems than it is worth.
How soon after surgery did you all get new scans to see if it has shown up anywhere? I think I am getting close to 6 months since my last CT scan.
Thank you for sharing Wandalein. Did he do anything special, diet, supplements, etc? I've been doing my best to eat extremely healthy but also trying to put back on weight which has been difficult.
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