Colonoscopy after ULAR

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Swirdfish
Posts: 290
Joined: Sun Jun 19, 2016 3:57 am

Colonoscopy after ULAR

Postby Swirdfish » Thu Jan 12, 2017 4:24 am

How long have people waited to get their second colonoscopy. Mine was never completed due to the blockage. I'm about 3 months out from surgery.

Should I be getting one ASAP or wait until chemo has finished and my reversal. I guess it's a lot harder to clean the bowel with a loop ill as they tried before surgery by installed a tube into my ill to flush it. Didn't work.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

User avatar
muskokamike
Posts: 226
Joined: Tue Feb 25, 2014 4:38 pm

Re: Colonoscopy after ULAR

Postby muskokamike » Thu Jan 12, 2017 12:30 pm

Mine was a year after surgery.(Feb 15) It was clear and next one in three years (Feb 18). If they found something it would of been a year. I am good with that schedule.
53M Dx rc10/31/13
WTF!
CT scan, BONE scan
MRI/T3N0M0 1 suspicious node
5 wks chemo/rad
LAR open TME 2/26/14
temp ileo
0/24 nodes pCR/pathological
Mop up Folfox (8) Mar/28-Jul/4
Aug/14 clear CT scan
8/27/14 reversal
Feb/15 clear scope
July/15 clear CT scan
Feb/16 clear CT scan
Feb/17 clear CT scan
Feb/18 clear scope
Feb/18 clear CT scan
Sep/19 clear CT scan DISCHARGED!
CEA levels 1.6 dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal
https://kicknasscancersass.blogspot.com/

Swirdfish
Posts: 290
Joined: Sun Jun 19, 2016 3:57 am

Re: Colonoscopy after ULAR

Postby Swirdfish » Thu Jan 12, 2017 11:56 pm

thanks.

seems you are doing very well about 3 years out.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

Rikimaroo
Posts: 270
Joined: Tue Dec 20, 2016 8:48 pm

Re: Colonoscopy after ULAR

Postby Rikimaroo » Sat Jan 14, 2017 12:53 pm

Swirdfish how is your ileostomy management? When is your plan to do a reversal?
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left seminal vescial/pelvic sidewall - 10/7/2019 resection surgery, perm bag, requested
FolFiri 11/6 - 5 rounds

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Colonoscopy after ULAR

Postby Pita » Sat Jan 14, 2017 8:32 pm

Like you my colonoscopy was never completed because PCP was afraid to go further then the tumor, worried me for awhile but my colorectal surgeon said since I get scanned every 3 months I shouldn't worry. Last appointment in Oct he said 1 year after surgery which will be in July, dx last January. I have an appointment with him the second week of February, so I'm sure we'll go over this again.
Best wishes and pray both our colonoscopies come out clean when we get them... oxo
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

Swirdfish
Posts: 290
Joined: Sun Jun 19, 2016 3:57 am

Re: Colonoscopy after ULAR

Postby Swirdfish » Sat Jan 14, 2017 8:40 pm

Rikimaroo wrote:Swirdfish how is your ileostomy management? When is your plan to do a reversal?


My management of my ileostomy is good. No issues there it is very easy.

Not sure about the reversal, I've got x4 folfox treatments to go so on the second last I will get in contact with my surgeon and arrange a time. I also have to in between them get an X-ray down on the site check for leaks internal.

Is a reversal open surgery? Is it another scar?

Will be the most interesting part of it knowing how Lars will affect me.

My once says I'm doing very well and doesn't want to see me next folfox treatment. One less hospital parking ticket hehe
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

User avatar
WriterGirl1969
Posts: 513
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Colonoscopy after ULAR

Postby WriterGirl1969 » Sun Jan 15, 2017 11:52 am

Hi Swird.
My surgery was March 2016, and I'm scheduled for my first colonoscopy after diagnosis in late Jan / early Feb. This was scheduled 6 months after my 2nd post-surgery follow-up. I believe about a year after is what they mentioned. If this one is clear, I think they said yearly until year 3, then every 3 years after that. CT scan is 6 months post-end-of-chemo, and if clear 1 year out, and then if clear again, maybe longer. Hope this helps! :)
--Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

AbbyDoo
Posts: 134
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: Colonoscopy after ULAR

Postby AbbyDoo » Mon Jan 16, 2017 12:33 am

About a month to six weeks after reversal for colonoscopy.
Yes a new scar. Mine is about four inches. The cut is a couple inches on each stride of stoma.
Keep rocking it your almost done
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t


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