Some good news

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teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Some good news

Postby teri3 » Tue Jan 10, 2017 4:10 pm

Got my scans results today after 11 rounds of Folfiri+avistin, the met in my left lung did not show up at all and the right one is cavitated and slightly smaller. My oncologist is considering the right one inactive. He has me scheduled for a scan early April then meet with him April 12 to go over results. I asked for a referral for a consult with a thoracic surgeon and a interventional radiologistat OSU because I want the right met GONE!! My oncologist tried to talk me out of it but agreed to send a referral. Has anyone else experienced an oncologist who is reluctant to do anything other than chemo?
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Some good news

Postby juliej » Tue Jan 10, 2017 5:22 pm

As many people here have noted, oncologists are into chemo, surgeons are into cutting, and radiologists are into nuking. It's their field of expertise so they feel more comfortable discussing/pushing their area.

However, I completely agree with you about pushing for surgery or RFA on the met on your right lung. The only way to know it's really gone is to cut it out or fry it. If it's in a good location, you might be a candidate for VATS, which is a simpler lung surgery with a shorter recovery time. RFA is also a possibility with little to no recovery time. Don't let your oncologist dissuade you. Ultimately, it's your life on the life and this is your decision!

My local oncologist told me I would never be a candidate for surgery and would be on chemo for life. We fought over it and I got a second opinion from another cancer center. A few surgeries later and I was cancer free. Go with your gut instincts on this. Find a board-certified thoracic surgeon or an interventional radiologist who will work with you.

Congratulations on your great response to chemo! That's wonderful news! :D
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Some good news

Postby BeansMama » Tue Jan 10, 2017 6:53 pm

Congratulations on the results of the chemo!

Good for you for pushing for the other opinions. I wish you continued luck that they can help get rid of that met!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Some good news

Postby jhocno197 » Tue Jan 10, 2017 7:01 pm

Glad you got good news!!
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Some good news

Postby Maia » Tue Jan 10, 2017 8:03 pm

Great news and yes, keep pushing! If you are NED, then your onc can help you to maintain that NED (tell him you're not firing him ; )

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Some good news

Postby DarknessEmbraced » Tue Jan 10, 2017 9:42 pm

Wonderful news! Congratulations! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

behconsult
Posts: 249
Joined: Fri Jul 04, 2014 4:53 pm

Re: Some good news

Postby behconsult » Wed Jan 11, 2017 8:02 pm

Where do you go? My onc at OSU James has discouraged me from seeing a radiologist. I am not into unilateral treatment plans myself and may switch. There is an upcoming webinar on types of colon cancer radiological options from the colon cancer site,
Stage 4 Age 56 BrafV660E 5/14
spot on perit/ Right side tumor
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to four spots- Collapsed lung/chest tube 2x
Possible local recurrence in a spot or two on PET. Stable CT

JDMNYC
Posts: 133
Joined: Wed Apr 15, 2015 5:12 pm
Location: Morris County, New Jersey

Re: Some good news

Postby JDMNYC » Wed Jan 11, 2017 8:12 pm

juliej wrote: My local oncologist told me I would never be a candidate for surgery and would be on chemo for life. We fought over it and I got a second opinion from another cancer center. A few surgeries later and I was cancer free. Go with your gut instincts on this. Find a board-certified thoracic surgeon or an interventional radiologist who will work with you.


I do love that story :)
- Dx Stage IIIc rectal cancer: January 2015 (CEA 20)
- Chemo (Folfox): January - April 2015
- Chemo-Radiation (Xeloda): May - June 2015
- Surgery (LAR/temporary ileostomy): September 2015; 4/20 lymph nodes – no adjuvant chemo
- Reversal: December 2015
- Stage IV: August 2016 - Lung Mets
- Chemo (Xeloda) Started October 2016.
- CEA down; lung mets shrinking.

"There are more things in heaven and earth, Horatio, Than are dreamt of in your philosophy."

KElizabeth
Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: Some good news

Postby KElizabeth » Thu Jan 12, 2017 12:02 am

My oncologist also said it would take a miracle for me to find some one to treat my disease surgicaly. Luckily I have found a Radiologist who wants to freeze the crap out of my liver mets and it's out patient. The cool thing about Cryo and RFA is that they can be administered several times if mets come back and they won't make other treatments unavailable to you in the future. My Radiologist says he thinks the Cryo could stimulate the immune system too, making treatment more effective. I can't wait to find out!
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Some good news

Postby teri3 » Thu Jan 12, 2017 11:51 am

behconsult wrote:Where do you go? My onc at OSU James has discouraged me from seeing a radiologist. I am not into unilateral treatment plans myself and may switch. There is an upcoming webinar on types of colon cancer radiological options from the colon cancer site,


Right now I go to Kettering Hospital Cancer center but I asked for references to the James. I'm wanting VATS and I know people at the James who suggested Robert Merrit, so I asked my onc to get me a reference to him and a reference to an interventional radiologist.
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Some good news

Postby teri3 » Thu Jan 12, 2017 11:58 am

KElizabeth wrote:My oncologist also said it would take a miracle for me to find some one to treat my disease surgicaly. Luckily I have found a Radiologist who wants to freeze the crap out of my liver mets and it's out patient. The cool thing about Cryo and RFA is that they can be administered several times if mets come back and they won't make other treatments unavailable to you in the future. My Radiologist says he thinks the Cryo could stimulate the immune system too, making treatment more effective. I can't wait to find out!


Keep us informed :) Right now I think I'll go with VATS if recommended by surgeon, I had a pulmoologist tell me that the met was in a good area for VATS.

Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

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mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: Some good news

Postby mypinkheaven » Thu Jan 12, 2017 12:15 pm

Robert Merritt sounds like a very good choice. 8)
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

behconsult
Posts: 249
Joined: Fri Jul 04, 2014 4:53 pm

Re: Some good news

Postby behconsult » Thu Jan 12, 2017 12:59 pm

Good luck with your meeting. I met him for a consult. He said mine was inoperable, however if it got to one lung he would remove one side of it. No thanks.

My onc stated they wanted to save SBRT for when complications occur-translation-when chemo stops working. I am pro elimininating my lung mets to reduce tumor burden and will push for radiologist consult or switch oncs. My xeloda and avastin have reduced both mets and the third turned out to be benign.
Stage 4 Age 56 BrafV660E 5/14
spot on perit/ Right side tumor
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to four spots- Collapsed lung/chest tube 2x
Possible local recurrence in a spot or two on PET. Stable CT

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SEWHAPPY
Posts: 86
Joined: Tue Nov 15, 2016 4:25 pm

Re: Some good news

Postby SEWHAPPY » Thu Jan 12, 2017 5:51 pm

Great news on the tumor response! Good luck finding the right team to go after them. Hugs and prayers - Laurie
Female age 51.
CC diagnosed 10/13/16 at first colonoscopy.
Lap colon resection 11/21/16, removed ovary & fallopian tube.
T4N0M0, stage IIC.
Lynch negative.
Power port installed 12/19/16.
12 rounds FOLFOX done 6/16/17.

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Some good news

Postby Pita » Sat Jan 14, 2017 11:21 pm

So happy to hear that Teri. I send you prayers and hugs for all you'll be facing to remove the other met... oxo
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin


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