Maia wrote:I have not an advice, but want to wish your husband the best. I.V. hydratation is something so helpful, immediately helpful! It's a bout of fresh energy.
I.V nutrition is other level, indeed, but even that can be reversible if a treatment starts to work --I have a friend with peri mets from other cancer; he was almost 3 months on parenteral nutrition (because tumour obstructing the small bowel; not even colostomy was possible) and now he's responding to treatment and back to eating per mouth --and gaining some weight back. : )
(BTW, I saw in other post that you said to DK37 you were looking forward to see his curated list of trials --he posted it and also you can access on my signature line)
Sending my best to your husband and you.
Brikee wrote: I'm wondering if they might have us keep track of how much fluid he might release when going to the bathroom. Question, what is pitting edema?
Maia wrote:I have not an advice, but want to wish your husband the best. I.V. hydratation is something so helpful, immediately helpful! It's a bout of fresh energy.
I.V nutrition is other level, indeed, but even that can be reversible if a treatment starts to work --I have a friend with peri mets from other cancer; he was almost 3 months on parenteral nutrition (because tumour obstructing the small bowel; not even colostomy was possible) and now he's responding to treatment and back to eating per mouth --and gaining some weight back. : )
(BTW, I saw in other post that you said to DK37 you were looking forward to see his curated list of trials --he posted it and also you can access on my signature line)
Sending my best to your husband and you.
ronnieciao wrote:maia- that's good news about your friend. my mother had a disastrous peritoneal situation at diagnosis, with copious ascites etc. chemo killed it completely off - they couldnt even see anything when they removed her primary via laparo, and they did look. while they were in there, they gave her an omentectomy, and the path came back negative. her abdomen has been back to " normal" for over 2 years now. she still has disease in many other places though of course. but her peritoneum has remain clean since. we can only hope it stays that way.
just sharing this to show that overcoming peritoneal disease it sometime possible. even without hipec...or ar least control it.
Brikee wrote:My husband seemed very sad to hear it was being done via port because he said it is very painful. We requested through IV if possible but they said it isn't possible at home, it can only be done via port. That's where we are at so far.
jhocno197 wrote:Brikee wrote:My husband seemed very sad to hear it was being done via port because he said it is very painful. We requested through IV if possible but they said it isn't possible at home, it can only be done via port. That's where we are at so far.
Has he tried the numbing cream on the skin over the port?
Brikee wrote:
Haven't tried that. What's the numbing cream called? Is there a special way to do it? Thanks for sharing.
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