So hard to leave, yet so hard to stay

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Nik Colon

So hard to leave, yet so hard to stay

Postby Nik Colon » Sun Jan 01, 2017 2:56 am

I am stuck wanting to stay and go. So, I will leave you with this for now.

Have you any idea to look upon your face in the mirror and not recognise it? The demons that lurk within, but those around cannot see? The candle that only flickers at times in darkness so black it blinds you? A flash of light so bright, only to be snuffed out? The flame slowly fading into forever night?

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Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: So hard to leave, yet so hard to stay

Postby Maggie Nell » Sun Jan 01, 2017 4:04 am

Right now you have the opportunity.
Look for the essence of mind ~~~ this is meaningful.
When you look at mind, there's nothing to be seen.
In this very not seeing, you see the definitive meaning.

This old lady has no instructions more profound that this to give you.



Feeding Your Demons:Ancient Wisdom for Resolving Inner Conflict
by Tsultrim Allione


From the spirit of loving kindness; break the fucking mirror....
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: So hard to leave, yet so hard to stay

Postby BeansMama » Sun Jan 01, 2017 4:40 am

Nik,

I see you are struggling. Personally I don't want to see you go. You have helped me in more ways than I can count. You were one of the first to welcome me when I joined the board.

If you feel you need to just take a break. Lurk for a time until you feel ready to start posting again. There is PM when you need someone to talk to. Don't close off a valuable support system.

I will always keep you in my prayers.
Beans.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: So hard to leave, yet so hard to stay

Postby teri3 » Sun Jan 01, 2017 10:12 am

Nik you've been one of the few constants on here. But I understand the spirit gets weary. Take a pause and come back to us, you've been a big help to me and countless others.
HUGS<
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

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mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: So hard to leave, yet so hard to stay

Postby mypinkheaven » Sun Jan 01, 2017 1:07 pm

Nik Colon wrote:Have you any idea to look upon your face in the mirror and not recognise it?


Yes, I've had that experience when I was terribly depressed - depersonalization. I worked through it, but it was hard. When I found out I had lung mets last June, I didn't want to go into another deep depression - I saw a psychiatrist and upped my meds. I took ativan for the overwhelming anxiety. Now I'm on chemo and, while I'm not happy-go-lucky, I feel like I'm doing all that I can and my mood is much better.

Talk to your psychiatrist or therapist. Talk to your oncologist. I really think you'll feel better once you have a plan in place.

Sally
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: So hard to leave, yet so hard to stay

Postby Pita » Sun Jan 01, 2017 5:44 pm

Nik,

Can honestly say that I very seldom look in a mirror, I don't like what I see and feel and prefer to remember me inside and out as I was. Haven't been around here much, too depressed also but the fog is lifting slowly. Was feeling very selfish, didn't want to help anyone when I couldn't even help myself. Sigh... Getting better now and of course I can't ignore you. Think you were the first person that I messaged and talked with, you along with some others have always been my knights in shining armor (knightress?) filled with hope and sharing.

You Nik, help fill my soul up with life and hope, I so wish I could do the same for you. Understand if you need to bow out but please don't leave us forever, I and many others would be in so much pain not knowing how things are going for you and offer our prayers and hugs to you.

Best wishes, hugs, prayers and NED Nik... oxo Love you...
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: So hard to leave, yet so hard to stay

Postby TXLiz » Tue Jan 03, 2017 12:18 pm

I am like you Pita. I try to not look in the mirror anymore. I hate my sad eyes and tired face. I look like an old tired lady. I look like a witch that lost her broom.

I know, there's the strong cancer fighters out kicking cancer's ass, blogging, juicing, celebrating each day, and then there's me: trying to eat and stay hydrated and looking at the cemetery less than a mile from my home, wondering when I'll be in it.

Hang in there Nik.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

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ANDRETEXAS
Posts: 662
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: So hard to leave, yet so hard to stay

Postby ANDRETEXAS » Wed Jan 04, 2017 12:04 am

You're the author of your life
So if you feel you can't cope
Don't put a full stop on it
Battle through it and hope

You could just give up
But instead choose to fight
Battle in the darkness
Until you see light

Don't leave a short story
With words of your pain
But a story of strength
And the things you can gain

Just take the first step
Be strong in each hour
Carry on your story
And be proud of your power


----------Ashley Pullan
2/10/14 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT

3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT

3/23/16 - clean CT

2/22/17- clean CT

3/21/18 - clean CT
4/1 - clean colonoscopy

3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !

4/13/23 - clean colonoscopy

ONE DAY AT A TIME !

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: So hard to leave, yet so hard to stay

Postby Ajane » Wed Jan 04, 2017 11:04 am

Please stay, Nik.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9


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