Nice surprise! No more chemo!

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Nice surprise! No more chemo!

Postby HopeForJesse » Thu Dec 29, 2016 7:43 pm

Just a quick update to share some hope.
Good 6 month post op scans and unexpectedly told no more chemo - neither systemic nor FUDR via HAI pump. What a wonderful Christmas surprise. Dr Kemeny was running late and the later she was the more anxious we got. Thankfully she finally waived from the hallway in true Dr K fashion and said good scans- you are finished. When Sandy came in next and asked if the doctor had seen us we didn't even know how to reply as we were so stunned . read the signature below and know there is always Hope! best wishes to all for 2017! :D
Last edited by HopeForJesse on Thu Dec 29, 2016 7:58 pm, edited 1 time in total.
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!
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WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Nice surprise! No more chemo!

Postby WriterGirl1969 » Thu Dec 29, 2016 7:55 pm

That's WONDERFUL!!! I'm so happy for you!
Thank you for sharing this burst of hope. :)

Hugs and Prayers,
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”
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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Nice surprise! No more chemo!

Postby Maia » Thu Dec 29, 2016 7:59 pm

Hoooooraaaaaay!!! :D
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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Nice surprise! No more chemo!

Postby BeansMama » Thu Dec 29, 2016 8:59 pm

Congratulations!!!! That is amazing!!!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016
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mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: Nice surprise! No more chemo!

Postby mariane » Thu Dec 29, 2016 10:04 pm

Mary,

Such fantastic news!

I know all too well how difficult is waiting for Dr K.

I am so happy for you both! Very happy and healthy New Year once again!!! :):)
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!
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jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Nice surprise! No more chemo!

Postby jhocno197 » Thu Dec 29, 2016 10:42 pm

YAY!!!!!!! :)
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
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fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:
Contact fumaros

Re: Nice surprise! No more chemo!

Postby fumaros » Fri Dec 30, 2016 1:09 am

that's great news, and just in time for the new year. Here's to a chemo free future.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED
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ramg_sg
Posts: 35
Joined: Tue Oct 04, 2016 1:28 am

Re: Nice surprise! No more chemo!

Postby ramg_sg » Fri Dec 30, 2016 3:16 am

Best wishes for a long NED years.. Happy 2017 onwards !!
Age 53[2016]
07/13 Tumor discovery
08/13 CC surgery, 9/12 Lymph nodes, Temp Ileostomy T3 N2b S3C KRAS+
08/13 to 01/14 - FOLFOX+Bev & Zometa, 5FU 24x7 CEA normal
02/14 RT
04/14 Ileostomy reversal
05/14 to 06/15 - 5FU 24x7
06/15 Fix Hernia Ileostomy site
06/15 to 02/16 - 5FU 24x7
02/16 PET tumor size increase - FOLFOX+Bev
05/16 RT
07/16 PET - spots in lungs, surgery option drop
Microsatellite stable
09/16 PET - FOLFOX not shrinking tumors
09/16 FOLFIRI+Bev - 3 cycles
11/16 FOLFIRI+Zaltrap - 3 cycles
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tarheelmom
Posts: 168
Joined: Mon Mar 07, 2016 5:55 pm

Re: Nice surprise! No more chemo!

Postby tarheelmom » Fri Dec 30, 2016 8:58 am

Great news!
52 y at dx, mom to 4
DX: RC on 2/22/2016
Stage I, T2N0M0, 0/32 LN
23 mm x 7 mm moderately differentiated invasive adenocarcinoma
3 cm from anal verge
4/12/16: ULAR, TME, & temp ileostomy
6/14/16: ileo reversal
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dudette
Posts: 106
Joined: Sat Oct 17, 2015 10:04 am

Re: Nice surprise! No more chemo!

Postby dudette » Fri Dec 30, 2016 9:39 am

Whohoo! High five to you. Congratulations.
Temi
Dx 03/2015 @ age 41 - CC stage IV - pT3 N2b (14/29) cM1 (hep) L1 V1 Pn1 R1
Wild K-RAS, N-RAS, BRAF / MSS
unresectable mets liver 60% + lungs
Surgery
04/15 - sigmoid resect.
07/16 - hysterectomy (ovaries)
Chemo
05-06/15 - 4 x Folfirinox
12/15 - 02/16 4 x Xeliri + Avastin
03-05/16 9 x Xeloda
09-12/16 Folfiri + Cetuximab
01/2017 - metronomic chemo + methadone
July 20, 2107 - Temi has passed away.
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Kathy
Posts: 114
Joined: Sat Mar 14, 2009 8:28 pm
Location: New Jersey

Re: Nice surprise! No more chemo!

Postby Kathy » Fri Dec 30, 2016 10:15 am

Congratulations! Only Dr. K's patients can understand her look and how they can make us laugh! She is so unique. It takes a while to understand how to read her but I won't want any other Doctor as the "General" of my care. She also has been a great support in my husband's battle with pancreatic cancer. She steered us to the doctor's she felt were best and knowing her, he Is keeping an eye on things.

You are in the best hands. God bless you and Dr. K and her wonderful staff. Continued good progress in your journey in 2017.

Kathy
Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008
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Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Nice surprise! No more chemo!

Postby Pita » Fri Dec 30, 2016 1:29 pm

Fantastic! So happy for you, hope it lasts forever.
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin #10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin
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Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: Nice surprise! No more chemo!

Postby Ajane » Fri Dec 30, 2016 4:00 pm

Fantastic news! Hope you remain forever NED!
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Nice surprise! No more chemo!

Postby DarknessEmbraced » Fri Dec 30, 2016 5:23 pm

That's wonderful news! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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