8 YEARS NED!

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: 8 YEARS NED!

Postby HopeForJesse » Thu Dec 29, 2016 7:35 pm

Woohoo! :D :D :D
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

mariane
Posts: 687
Joined: Sun Sep 13, 2015 6:16 pm

Re: 8 YEARS NED!

Postby mariane » Thu Dec 29, 2016 10:09 pm

Congrats!!!!
mom of now 12 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

DarknessEmbraced
Posts: 3579
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 8 YEARS NED!

Postby DarknessEmbraced » Fri Dec 30, 2016 5:29 pm

Congratulations! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: 8 YEARS NED!

Postby Maia » Sat Dec 31, 2016 6:15 am

Bruce, that is wonderful!! Congrats, enjoy!
Thank you for sharing hope.

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: 8 YEARS NED!

Postby Maia » Sat Dec 31, 2016 6:21 am

duplicated
Last edited by Maia on Tue Jan 03, 2017 7:06 am, edited 1 time in total.

jens22
Posts: 1012
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: 8 YEARS NED!

Postby jens22 » Sun Jan 01, 2017 7:36 pm

Congratulations Buffalo Friend.. Enjoy Life and stay warm
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.

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florencedollar
Posts: 288
Joined: Sun Sep 12, 2010 12:14 pm

Re: 8 YEARS NED!

Postby florencedollar » Mon Jan 02, 2017 6:53 pm

I still read, but havent posted in so long. Just wanted to say congrats!!! Yay!!! It is posts like yours that gave my family hope when we thought a stage4 diagnosis was a death sentance. I see you were stage 3 at diagnosis...still sounds horrible.

That said, my lil sis remains NED after all these years. Onc says she is cured! So hopeful that experiences like ours bring hope to others who are blindsided by this crap, as we were.
Sis to 'lil sis (pict in avatar)
DX'd stage IV CC w/liver mets -age 45- 8/26/2010
Port Folfox started-9/8/2010
Colonic stent-9/30/2010
10/13-Team agrees-postpone chemo after 2 rounds
10/26 colon/liver resection
12/14/2010-Folfiri/Avastin
NED NED NED!!!!!

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Marylandmaniac
Posts: 234
Joined: Wed Jun 29, 2016 6:22 pm

Re: 8 YEARS NED!

Postby Marylandmaniac » Mon Jan 02, 2017 9:03 pm

florencedollar wrote:I still read, but havent posted in so long. Just wanted to say congrats!!! Yay!!! It is posts like yours that gave my family hope when we thought a stage4 diagnosis was a death sentance. I see you were stage 3 at diagnosis...still sounds horrible.

That said, my lil sis remains NED after all these years. Onc says she is cured! So hopeful that experiences like ours bring hope to others who are blindsided by this crap, as we were.


Florencedollar. Thank you for replying to this. I am so happy to hear your sister is cured and NED!!! I hope I can be the same. I had one spot on my liver that was removed with microwave ablation. 6 rounds of chemo then resection. Now getting ready to start 6 more rounds. Reading about people who have beaten this bring me hope and encouragement.
DX 6/29/16 7 cm tumor, 10 cm fr av
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: 8 YEARS NED!

Postby BeansMama » Mon Jan 02, 2017 9:49 pm

Congratulations!!!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

drw
Posts: 51
Joined: Sun Mar 30, 2014 4:43 am

Re: 8 YEARS NED!

Postby drw » Tue Jan 03, 2017 10:55 am

Very happy for you, congratulations :)
4/14 dx rectal cancer at 45 yoa
4/14 transanal excision
6/14 lar - 2 positive lymph nodes stage 3
8/14 started radiation and xeloda
1/15 completed chemo
2/15 Ned :)
3/15 reversal


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