8 YEARS NED!

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Bruce In Buffalo
Posts: 7
Joined: Tue Dec 13, 2011 1:05 pm

8 YEARS NED!

Postby Bruce In Buffalo » Wed Dec 28, 2016 12:32 pm

Clean CT Scan Today! 8 YEARS CANCER FREE!
Bruce In Buffalo
stage III B Colon & unrelated stage I bladder
Diagnosed & surgically removed 12/08
1 off 17 nodes positive
Fulfox and radiation 2/09 - 8/09
8 Years NED!

NedPlease
Posts: 546
Joined: Fri Mar 23, 2012 3:56 pm

Re: 8 YEARS NED!

Postby NedPlease » Wed Dec 28, 2016 1:37 pm

:D :D :D
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED

Bostonzj
Posts: 38
Joined: Sun Dec 28, 2014 10:38 am
Facebook Username: Lili

Re: 8 YEARS NED!

Postby Bostonzj » Wed Dec 28, 2016 1:40 pm

Awesome! :lol:
female, Dx @ 34 yo,mom to 3 yo daughter
stage 1 colon cancer
surgery on 07/30/2014
CEA <0.5 (after surger), no cea checked pre-op
no chemo needed
pray to god every day!
CT scan :08/2014 clean, 12/2014 clean,11/2015 clean, 11/2016 clean
NED forever!!!!

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: 8 YEARS NED!

Postby Pita » Wed Dec 28, 2016 1:58 pm

Congrats to you!!! Still working on reaching my first NED, you give lots of hope :) TY
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

KElizabeth
Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: 8 YEARS NED!

Postby KElizabeth » Wed Dec 28, 2016 2:00 pm

That's great. Congratulations.
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: 8 YEARS NED!

Postby fumaros » Wed Dec 28, 2016 2:23 pm

Just what i needed to hear. Congratulations
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

mdev
Posts: 25
Joined: Fri Nov 20, 2015 7:19 pm

Re: 8 YEARS NED!

Postby mdev » Wed Dec 28, 2016 2:36 pm

Congratulations- that's amazing. Great way to ring in the New Year!
2015-09-29 DH has sigmoid colon removed, CEA 1.2
2015-10-06 diagnosed pT3 N1a M0 stage IIIb
2015-10-22 8 rounds FOLFOX, 4 rounds 5FU, CEA post chemo 1.5
2016-06-16 CEA=1.9
2016-07-28 CEA=2.1, CT shows NED
2016-09-08 CEA=2.2
2016-10-27 CEA=2.0, CT shows NED
2016-02-02 CEA=1.6
2017-05 CEA=1.5, CT shows NED

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hopeful
Posts: 1372
Joined: Mon Jan 04, 2010 11:43 am

Re: 8 YEARS NED!

Postby hopeful » Wed Dec 28, 2016 5:28 pm

Congratulations! That is good news indeed!

My husband is one year behind you.
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009

Lee
Posts: 6034
Joined: Sun Apr 16, 2006 4:09 pm

Re: 8 YEARS NED!

Postby Lee » Wed Dec 28, 2016 5:46 pm

Congratulations!!

Please be sure to add your success story to this thread Stage III's NED for how long now.

viewtopic.php?f=1&t=10574&hilit=stage+III+for+how+long+now.

It can be a place of inspiration for many people, especially those new to the journey.

Keep up the great work,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Coloncancerqueen
Posts: 25
Joined: Tue Aug 23, 2016 12:37 pm

Re: 8 YEARS NED!

Postby Coloncancerqueen » Wed Dec 28, 2016 8:58 pm

Great news!
Dx 5-15
Right hemicolectomy 5-15
11 rounds of fol fox finished 11-15
6-16 elevated CEA 7.7
7-16 more elevation in CEA 13.1
Summer of 2016 2 ct scans, pet scan, MRI, ultrasound
8-12-16 Second opinion sought
8-16 biopsy revealed mets to ovary
9-16 both ovaries removed
10-16 CEA 2.6 clean scan NED
11-16 CEA 1.1, 1-16 CEA 1.5

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WriterGirl1969
Posts: 513
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: 8 YEARS NED!

Postby WriterGirl1969 » Wed Dec 28, 2016 9:53 pm

AWESOME!!! That's wonderful! Here's to the next 8 years NED. :D :lol: :D :) :D
Buffalo as in NY? If so, we're almost neighbors. I'm in the Syracuse area.
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

DarknessEmbraced
Posts: 3440
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 8 YEARS NED!

Postby DarknessEmbraced » Wed Dec 28, 2016 11:59 pm

That's wonderful! :) Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

cmrl
Posts: 174
Joined: Mon Apr 21, 2014 8:39 pm

Re: 8 YEARS NED!

Postby cmrl » Thu Dec 29, 2016 7:44 am

Congratulations! I'm originally from Buffalo, and I'm almost 3&1/2 years NED. Thank you for posting this. Happy New year.
Resection of splenic flexure 7/24/13
T3N2BM0, Stage 3c,12/29 nodes
Folfox x12 9/13-3/14
CT scan 4/14, enlarged spleen, otherwise clear
CT 4/15, spleen WNL.
6/17 3 cm benign polyp at ileocecal valve, awaiting removal

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Marylandmaniac
Posts: 234
Joined: Wed Jun 29, 2016 6:22 pm

Re: 8 YEARS NED!

Postby Marylandmaniac » Thu Dec 29, 2016 11:07 am

SO happy to read this!! I just had surgery Dec 14th and will have 6 more rounds of FOlfox most likely. Hoping and praying that I can write NED each year as well.
DX 6/29/16 7 cm tumor, 10 cm fr av
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX

mtipte
Posts: 80
Joined: Mon Dec 19, 2016 4:35 pm
Facebook Username: mario tipte
Location: Lima, Peru

Re: 8 YEARS NED!

Postby mtipte » Thu Dec 29, 2016 12:25 pm

It gives hope for my mum. Awesome!
Dear Mum 60 y/o
dx 09/16 RC III CEA 9
Chemo/rad 28 from 10/16 till 12/16
Xeloda
multiple lymph nodes
Adenocarcinoma low grade invasive
Now 2000 mg Xeloda for 2 weeks as maint. before surg.
24/01/17 CEA 4,9
APR surgery permanent colostomy :( 24/03/17
3/26 nodes involved -LVI - clean margins
Staged after surgery: T3N1Mx
Infection due to bladder problems. Slow recovery.
CEA 1.7 :)
Adj. Chemo Xelox 6 rounds 29/04/17
After round 3 CT Scans Clear 15/07

God is faithful. Only Jesus.


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