Life

Please feel free to read, share your thoughts, your stories and connect with others!
Post Reply
Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Life

Postby Lee » Tue Dec 27, 2016 10:07 pm

CRguy, I believe you said it VERY well. Thank you.

Nik, you too are never far from my thoughts and prayers. I do understand how the holidays can be hard. I loss a parent at an early age, I am ALWAYS so glad when the holidays are in my rear view mirror. And that was before I got my cancer diagnoses.

Niki, know that you are loved by MANY people on this forum. MANY PEOPLE! You have helped so many people. Just look at you post tally. It's up there BECAUSE of all the PEOPLE you have helped on this forum.

If you want to take a break, take a brake. Believe me we ALL take breaks here and there. Again, we are ALL dealing with cancer, not the common cold. Butt please do come back when you feel you can, BECAUSE at the end of the day, you help so many people. At the end of the day, you do CARE about your fellow man. That is a good trait to have.

In my world, you are the "welcome wagon"' around here. An asset :D

I hope 2017 brings you much better health. (((NIKI)))

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
Top
Nik Colon

Re: Life

Postby Nik Colon » Tue Dec 27, 2016 11:00 pm

Thank you to the many here that understand and forgive my inappropriate and hurtful behavior. That is truly not me. We all break at times, sadly, it may be for something stupid (like I did). Again, I am very sorry. I just need some time to take in all the crap I was recently given. Have my time to be sad, angry, etc. So, that is why I said I need to leave, at least until I can get my head back together.

Love and best wishes to you all. If anyone wants to get in touch with me outside here for now, you can send me an email.

Again, thank you to this forum and all of you, you are my family.
Top
Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Life

Postby Pita » Wed Dec 28, 2016 4:09 am

Pita wrote:
mypinkheaven wrote:
Marejenny wrote: I support Nik.


I'm with Marejenny on this.


Same goes for me... I support Nik!!!
Hugs and prayers to you Warrior Nik. Love you...oxo
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin #10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin
Top
Nik Colon

Re: Life

Postby Nik Colon » Fri Dec 30, 2016 1:45 am

Ty Pita, just quickly checking in, trying not to get too much involved.
Top
User avatar
Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Life

Postby Maggie Nell » Fri Dec 30, 2016 3:59 am

What a porky-pie! You flipped Doctorcarrot the bird in the other thread.... :P
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.
Top
Nik Colon

Re: Life

Postby Nik Colon » Sat Dec 31, 2016 2:23 am

I have the forms to fill out for the trial, but knowing the cost...I'm not sure what to do. Being away from family, the cost, which I would have to take from them which they can't afford. So, time, money, no guarantee, including time without family. If it works, great, if not, it's time and money from those I love. How do I choose.

Staying here, doing chemo, hoping to get to surgery and/or SBRT. But then no extra expense and family time.

How do I choose?
Top
Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Life

Postby Lee » Sat Dec 31, 2016 3:58 pm

Nik Colon wrote:How do I choose?


Maybe getting a few 2nd opinions out there. Not sure where you are being treated, butt 2nd opinions at major cancer treatment center might be a good start. Sloan Kittering in NYC. MD Anderson, Houston.


(((Niki)))

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
Top
WarriorSpouse
Posts: 220
Joined: Tue Aug 16, 2016 9:02 pm

Re: Life

Postby WarriorSpouse » Sun May 07, 2017 7:43 am

Nik,
Just checking in on you to see how things are going with you and your family. I hope things are getting better.
Here are some XXOO from a stranger who is thinking about you this morning:)
Stop by and check in if you can.
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot
Top
Utwo
Posts: 285
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: Life

Postby Utwo » Sun May 07, 2017 10:45 am

I felt bad for Nik when she was virtuously attacked by forum's ladies.

Can't we be nicer to each other?
58 yo male at diagnosis: T1bN0M0, 0/15 nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder, lymph node, pancreas
Top
Thetoad
Posts: 165
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: Life

Postby Thetoad » Tue May 09, 2017 3:09 pm

Utwo wrote:I felt bad for Nik when she was virtuously attacked by forum's ladies.

Can't we be nicer to each other?

Yes. I hope she still reads these posts. I found her very helpful.
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.
Top
Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Life

Postby Lee » Tue May 09, 2017 3:52 pm

I miss her.

(((Nik)))

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
Top
Joannerogers
Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: Life

Postby Joannerogers » Sat May 27, 2017 7:50 pm

Hey Nik,
I take breaks all the time. Always when I would check back in you would be the....thanks.

Come back when you're ready! :D
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
Top
Post Reply

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 75 guests

Powered by phpBB® Forum Software © phpBB Limited