Hello from an old timer!

Please feel free to read, share your thoughts, your stories and connect with others!
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Phuong
Posts: 1496
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Hello from an old timer!

Postby Phuong » Fri Dec 23, 2016 6:29 pm

What's up people?!? It's been a while since I've been on. Lots of life being lived. :D Pita mentioned that some were wondering how I was doing and I realized I am long overdue for an update. 2016 has been crazy with potential recurrence to the lung (turned out to be lung thang that went away), actual recurrence to liver (nuked it with SRS again), continued rise in CEAs leading to head to toe scans (including brain scan) - twice, and just 2 days ago a diagnostic laparoscopy for suspected mets to the peritoneum. They got a good look around and saw nothing in the peritoneum or ovaries. So good news, but we still have to figure out what's causing the rise in CEAs since that has been such a solid indicator for me historically. I've got a couple of new scars, but not feeling too bad considering I had a camera digging around my belly. In between I managed to join the Colon Club's board, lobbied on behalf of all of us at Call on Congress, represented the Colon Club at Orange County's GRYIG, and was the keynote speaker at the So Cal Women's Health Conference & Expo in Pasadena. Hopefully I can get video of that to share with you all. Oh, and I was on XM radio on Weird Medicine to promote the Colondar too. They named the episode after us! The first rule of Colon Club!!!
http://www.doctorsteve.com/2016/03/22/202-the-first-rule-of-colon-club/
What an experience this has all been. It all started with the Colon Club. If you are at all interested in any of this, I encourage you to apply for the 2018 edition of On The Rise (formerly the Colondar 2.0). You are all an amazing bunch of warriors and I am so proud to be in battle with you all. Keep kicking ass people!
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

Nik Colon

Re: Hello from an old timer!

Postby Nik Colon » Fri Dec 23, 2016 7:28 pm

Nice to hear from you again! Best wishes

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Hello from an old timer!

Postby Stanfordmom » Fri Dec 23, 2016 7:46 pm

Great to hear from you! Hope the CEA rise is something else other than Cancer.

Thank you for all the advocating you did for us! Wishing you and your family a great Holiday season!

Also best wishes for a wonderful 2017!

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

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CRguy
Posts: 10246
Joined: Sun Feb 10, 2008 6:00 pm

Re: Hello from an old timer!

Postby CRguy » Fri Dec 23, 2016 8:32 pm

Phuong wrote: Keep kicking ass people!

WORD !!! sista' ........
welcome back to this "board" and onto THE BOARD !!!! :mrgreen:
with watcha'll been doin' my friend .....
you will never BE bored :shock:

'K I'll stop now

Love Peace and Harmony
and very Merry Christmas coming your way
CR .... BUTT then you probably knew that :oops:
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lee
Posts: 6166
Joined: Sun Apr 16, 2006 4:09 pm

Re: Hello from an old timer!

Postby Lee » Fri Dec 23, 2016 9:37 pm

Welcome back, don't be a stranger.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

DarknessEmbraced
Posts: 3525
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Hello from an old timer!

Postby DarknessEmbraced » Sat Dec 24, 2016 11:44 am

Thank you for the update. Merry Christmas and Happy Holidays. :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Hello from an old timer!

Postby ams5796 » Sat Dec 24, 2016 1:03 pm

Love keeping up with you whether it's on here or on FB. You always have something interesting going on. You are a bright light for us all.

Happy Holidays to you and your family.


Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

Ron50
Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

Re: Hello from an old timer!

Postby Ron50 » Sat Dec 24, 2016 6:14 pm

Hi Phuong,
Good to see you again , best wishes for Christmas and a happy and healthy new year from another old timer, this is my 19th Christmas since I found out I had cancer. 22nd of January I finish year 19 and start year 20 of survival. Hugs Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

jens22
Posts: 1012
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Hello from an old timer!

Postby jens22 » Mon Dec 26, 2016 12:19 am

It's great to Hear from You....Glad to here you are beating down what ever is thrown at you. Thank you for being on the board and Representing us all.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.


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