Any news of stanfordmom and sdp

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ziggymonster
Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: Any news of stanfordmom and sdp

Postby ziggymonster » Sat Dec 31, 2016 12:27 am

Thanks all for the good thoughts...I love this board.

Josh..a brief history,dx in 2002,surgery to remove prostate showed cancer in several lymph nodes and seminal vesicles but PSA went to 0 for 18 months.It then started rising...had radiation (which caused a secondary cancer 10 years later...rectal cancer). PSA back to 0 for another 18 months,then hormone therapy for 9 years which pushed PSA back to 0. Then in Jan 2016 PSA started up and I have done chemo....now it is totally out of control...trying to come up with a plan ....got extensive bone mets,needing heavy duty opiates. Along the way 2 clinical trials....just came off one....had to have 2 units blood today....anyway I could write a book on my history. I have been told many times that I am lucky to be alive,for which I am grateful but I have few options left.

Sending good wishes to all.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: Any news of stanfordmom and sdp

Postby lpas » Sat Dec 31, 2016 12:40 am

Has anyone heard from Colleen recently (CM35)? Her signature indicates she was still doing well as recently as March but it looks like she hasn't checked in since last August.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

andy21
Posts: 376
Joined: Tue Jun 26, 2012 4:07 pm
Location: N California

Re: Any news of stanfordmom and sdp

Postby andy21 » Sat Dec 31, 2016 5:35 pm

Great News Sha that your scans were great!
MSKCC is truly God's own hand while treating Cancer patients.

It has the maximum stage IV patients that are living well and even fully cured.
Caregiver: To 67 Yr father
diag. Stage IV, 5/12, liver mets
6 cycles Xelox/Avastin, Start 06/12
Stage 1 of Two Stage Resection Surgery in Dec, 12. 2nd line fails.
T Cell Trial May-Jul, 2013
Becomes a Heavenly Angel in August, 2013

risto
Posts: 54
Joined: Wed Jan 06, 2016 2:28 am
Location: USA

Re: Any news of stanfordmom and sdp

Postby risto » Sat Jan 07, 2017 1:28 am

Sha, it was good to see you Tuesday after almost 6 months. You give us hope!
DW Dx 7/15, 41 yo, st IV, 3+ liver mets: 11.3 cm, 7cm, 3cm. MSS.
KRAS, APC, SMAD4, TP53 mut.
7/15-10/15: FOLFOX+bev. x8
11/15-12/15: SIRT (Y90)
1/16: Toxic Hepatitis, chemo break
4/16: Liver resec. fail
5/16-7/16: FOLFIRI x6
8/16: Liver resec.
8/16-11/16: FOLFIRI x6
2/17: IMRT/Xeloda x25
4/17: LAR
6/17: CT: Progression. Peri, Lung, Liver mets. FOLFIRI x6
9/17: FOLFIRI+Bev x5.
11/17: CT: Stable. 5FU+bev. maintenance x5
1/18-2/18: Surgery for SBO
5/18: ascites, acute liver injury


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