JDMNYC wrote:I'm more sorry to hear this than I can say.
When my lung mets were found in September, Barry was enormously helpful to me - frequently messaging me with information, suggestions, and ideas. We were meant to meet for coffee at MSK one of these days, but our schedules hadn't yet overlapped. He was a kind, thoughtful, intelligent correspondent, generous with his time and knowledge.
I will keep him, you, and his family in my prayers. May he rest in peace.
He helped a lot of people, and didn't even realize it. I was reading some of his posts last night, so this is why I feel comfortable mentioning this, since he already did. July of 2012 he was diagnosed with Non Hodgkin Lymphoma. I had always heard phrasse "my heart hit the floor", I knew this was just metaphor. But, when I found out, it literally did.
He visited both MSK, and MD Anderson. He took their recommendations, and had his oncologists here implement them. Because of his quick remission, the local hospital changed their protocol on how to treat aggressive NHL.
Because his NHL was so agreesive, he did relapse twice. He had an autologous stem cell transplant in January of 2014, at MSK. recovered quickly from it, and has been Lymphoma free ever since. However, in August of 2014, his 6 month PET scan revealed something on his colon. The sad part is what cured him of NHL, also caused a secondary cancer. To make matters worse, a BRAF mutation.
At first his first his palliative care worked, but caused acne to break out over his entire body. After visiting a dermatologist at MSK, the prescription he received cleared up most of it. He told his local oncologist about it, again hospital changed their protocol on treating side effects for the treatment.
Barry never bragged about what he did for others, but I am more that proud to do so.