H is for Hawk

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: H is for Hawk

Postby Maia » Fri Dec 16, 2016 8:28 am

I'm so deeply sorry to hear this. H is for Hawk always would come to the forum, despite getting not good news, to generous share what he was encountering in this path to fight BRAF mutated CRC. He also was generous sharing his knowledge on other colon cancer forums.
So sorry for your loss. May Barry's memory be a blessing for all his loved ones.

MDK
Posts: 46
Joined: Sun Nov 29, 2015 1:43 pm

Re: H is for Hawk

Postby MDK » Fri Dec 16, 2016 8:44 am

So very sorry,

Marianne
Diagnosed 11/9/2015
Stage III Rectal Cancer
Began Chemoradiation 01/04/2016
Completed Chemoradiation 2/17/16
Local Excision
Developed Rectovaginal Fistula
06/24/16 APR / Flap Repair Fistula
Permanent Colostomy
09/20/2016 Liver Mets, possible Lung Mets
9/16 - 11/17 Xeloda and Avastin to progression
12/17 - 01/18 Folfox 6 sessions liver tumor shrank considerably - severe allergic reaction
01/18 - 04/18 Xeloda and Avastin - Progression
06/18 Avastin and Irinotecan

Philippians 4:6-7

BUD2016
Posts: 60
Joined: Sat Sep 10, 2016 3:25 pm

Re: H is for Hawk

Postby BUD2016 » Fri Dec 16, 2016 10:44 am

I am very sorry. I have read many of the posts and appreciated input and insights. Condolences to family and friends
09/2016: Mom dx/rectal cancer
10/2016: Open surgery. T3N0/Grade 2
11/2016: PET/CT scan shows 5 liver mets in both lobes
11/2016: FOLFOX + Avastin started on her 71st birthday
KRAS gen 2 G13D mutant, BRAF Negative, MSS
03/2017: Oxi stopped after 9th tx, 5FU cntd. CT scans w/ contrast every 2 months - small shrinkage/stable
05/2017: PET/CT progression, started FOLFIRI + AVASTIN
07/2017: MRIs/CT stable
09/2017: MRIs/CT - min progression
09/2017: FOLFIRI + CYRAMZA
11/2017: left us

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: H is for Hawk

Postby DarknessEmbraced » Fri Dec 16, 2016 12:06 pm

My deepest condolences for your loss.*hugs* I'm so sorry. :(
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

dudette
Posts: 106
Joined: Sat Oct 17, 2015 10:04 am

Re: H is for Hawk

Postby dudette » Fri Dec 16, 2016 12:09 pm

Even though I didn't know H is for Hawk personally, I cried when I read this news. I always admired his strong spirit. My heart goes out to you Red1972.

H is for Hope.
Temi
Dx 03/2015 @ age 41 - CC stage IV - pT3 N2b (14/29) cM1 (hep) L1 V1 Pn1 R1
Wild K-RAS, N-RAS, BRAF / MSS
unresectable mets liver 60% + lungs
Surgery
04/15 - sigmoid resect.
07/16 - hysterectomy (ovaries)
Chemo
05-06/15 - 4 x Folfirinox
12/15 - 02/16 4 x Xeliri + Avastin
03-05/16 9 x Xeloda
09-12/16 Folfiri + Cetuximab
01/2017 - metronomic chemo + methadone
July 20, 2107 - Temi has passed away.

bitchslapped
Posts: 1534
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: H is for Hawk

Postby bitchslapped » Fri Dec 16, 2016 1:32 pm

Thanks for posting your loss of Hawk to the forum. Wishing you, family & friends, peace & healing through the holidays especially...and beyond.

My sincere sympathy,
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: H is for Hawk

Postby lpas » Fri Dec 16, 2016 2:03 pm

dudette wrote:Even though I didn't know H is for Hawk personally, I cried when I read this news. I always admired his strong spirit. My heart goes out to you Red1972.

H is for Hope.


Yes.

I couldn't say this any better so I'm not going to try. We'll miss you, Hawk. Rest in peace.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

AussieAssCancer
Posts: 258
Joined: Sat May 21, 2016 10:16 am

Re: H is for Hawk

Postby AussieAssCancer » Fri Dec 16, 2016 8:20 pm

So sorry to hear! I'm sick of this shitty disease!
Dx Oct '15 w/ Stage 3c RC/ CEA 8
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: H is for Hawk

Postby Badass » Fri Dec 16, 2016 10:09 pm

Thank you for letting us know.
So sorry for your loss.
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

KElizabeth
Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: H is for Hawk

Postby KElizabeth » Sat Dec 17, 2016 6:29 am

I send my condolences to you and his family. He was a great help to me and I always appreciatedo his good advice.
You're in my prayers.
~Elizabeth
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

jortego128
Posts: 288
Joined: Sat Aug 15, 2015 7:47 am

Re: H is for Hawk

Postby jortego128 » Sat Dec 17, 2016 9:18 am

Im so sorry. He was an extremely intelligent and well spoken man, and he tried every possible avenue to beat this terrible disease. May he be at peace in heaven. :(
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

Red1972
Posts: 4
Joined: Tue Sep 13, 2016 1:20 am

Re: H is for Hawk

Postby Red1972 » Sat Dec 17, 2016 10:19 am

jortego128 wrote:Im so sorry. He was an extremely intelligent and well spoken man, and he tried every possible avenue to beat this terrible disease. May he be at peace in heaven. :(


Thank you, to know that someone like him really loved me, and to know that he's in heaven is what keeps me going.

Heidi

JDMNYC
Posts: 133
Joined: Wed Apr 15, 2015 5:12 pm
Location: Morris County, New Jersey

Re: H is for Hawk

Postby JDMNYC » Sat Dec 17, 2016 9:45 pm

I'm more sorry to hear this than I can say.

When my lung mets were found in September, Barry was enormously helpful to me - frequently messaging me with information, suggestions, and ideas. We were meant to meet for coffee at MSK one of these days, but our schedules hadn't yet overlapped. He was a kind, thoughtful, intelligent correspondent, generous with his time and knowledge.

I will keep him, you, and his family in my prayers. May he rest in peace.

Jim
- Dx Stage IIIc rectal cancer: January 2015 (CEA 20)
- Chemo (Folfox): January - April 2015
- Chemo-Radiation (Xeloda): May - June 2015
- Surgery (LAR/temporary ileostomy): September 2015; 4/20 lymph nodes – no adjuvant chemo
- Reversal: December 2015
- Stage IV: August 2016 - Lung Mets
- Chemo (Xeloda) Started October 2016.
- CEA down; lung mets shrinking.

"There are more things in heaven and earth, Horatio, Than are dreamt of in your philosophy."

Red1972
Posts: 4
Joined: Tue Sep 13, 2016 1:20 am

Re: H is for Hawk

Postby Red1972 » Sun Dec 18, 2016 11:11 am

JDMNYC wrote:I'm more sorry to hear this than I can say.

When my lung mets were found in September, Barry was enormously helpful to me - frequently messaging me with information, suggestions, and ideas. We were meant to meet for coffee at MSK one of these days, but our schedules hadn't yet overlapped. He was a kind, thoughtful, intelligent correspondent, generous with his time and knowledge.

I will keep him, you, and his family in my prayers. May he rest in peace.

Jim


He helped a lot of people, and didn't even realize it. I was reading some of his posts last night, so this is why I feel comfortable mentioning this, since he already did. July of 2012 he was diagnosed with Non Hodgkin Lymphoma. I had always heard phrasse "my heart hit the floor", I knew this was just metaphor. But, when I found out, it literally did.
He visited both MSK, and MD Anderson. He took their recommendations, and had his oncologists here implement them. Because of his quick remission, the local hospital changed their protocol on how to treat aggressive NHL.
Because his NHL was so agreesive, he did relapse twice. He had an autologous stem cell transplant in January of 2014, at MSK. recovered quickly from it, and has been Lymphoma free ever since. However, in August of 2014, his 6 month PET scan revealed something on his colon. The sad part is what cured him of NHL, also caused a secondary cancer. To make matters worse, a BRAF mutation.
At first his first his palliative care worked, but caused acne to break out over his entire body. After visiting a dermatologist at MSK, the prescription he received cleared up most of it. He told his local oncologist about it, again hospital changed their protocol on treating side effects for the treatment.
Barry never bragged about what he did for others, but I am more that proud to do so.

Heidi

Tim UK
Posts: 76
Joined: Fri Jun 12, 2015 1:05 am

Re: H is for Hawk

Postby Tim UK » Sun Dec 18, 2016 6:29 pm

Dear Heidi,

I'm so sorry and I send you my most sincere condolences. Barry was an enormous help and guide to me. We were both on the BRAF inhibition triplet therapy. We exchanged frequent personal messages on our experiences. His research into management of skin toxicity, alternative trials and back-up plans was invaluable to me. I admired his unusual and articulate grasp of the science behind our shared treatment, and was grateful for his candour and the generosity with which he would reach out with updates and ideas.

I had recently said to my wife that I was anxious about the fact he hadn't posted recently. It was with great sadness that I told her just now of the reason why. He was a good man, and I'm very sorry for your loss.

Tim
https://youtu.be/qoQbY4A5RNA
05/15 L hemi-colectomy
05/15 Dx st 3 T4N2M0 @43
kids: now 13, 10
BRAFm mucinous - KRASw
06/15 liver mets
06/15 CEA 9, CA19-9 400+
06/15 - 09/15 6 x FOLFOXIRI+Avastin
09/15 markers 4/50
10/15 drain-site met
11/15 CRS+HIPEC
1-8/16 BRAF triplet (dabrafenib, panitumumab, trametinib)
CEA;CA19-9: range 16;650 to 1;36 back to 4;135
8/16 progression
10/16-6/18 : NCT02650713
7/18-9/18 : anti-GITR; ERK inhib
10/18-4/19: folfoxiri+avastin
7/19-9/19 enco+cetux+Bini
10-19 starting regonivo


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