Stage 4 hope

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mymom
Posts: 1288
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Stage 4 hope

Postby mymom » Wed Dec 07, 2016 10:57 am

Mom just had her results and she is still clean. 14 months remission. She has had remissions before but this is the longest. Diagnosed at stage 4 May 2011. Happy holidays to all and I think of you all daily.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

BUD2016
Posts: 60
Joined: Sat Sep 10, 2016 3:25 pm

Re: Stage 4 hope

Postby BUD2016 » Wed Dec 07, 2016 11:57 am

Thank you for taking time and posting this wonderful update. It means a lot for our family to receive such news from people who understand and are fighting the same beast. Best wishes, many years of health to your mom and happy Holidays!!!
09/2016: Mom dx/rectal cancer
10/2016: Open surgery. T3N0/Grade 2
11/2016: PET/CT scan shows 5 liver mets in both lobes
11/2016: FOLFOX + Avastin started on her 71st birthday
KRAS gen 2 G13D mutant, BRAF Negative, MSS
03/2017: Oxi stopped after 9th tx, 5FU cntd. CT scans w/ contrast every 2 months - small shrinkage/stable
05/2017: PET/CT progression, started FOLFIRI + AVASTIN
07/2017: MRIs/CT stable
09/2017: MRIs/CT - min progression
09/2017: FOLFIRI + CYRAMZA
11/2017: left us

crazylife
Posts: 255
Joined: Wed Dec 30, 2015 11:29 am

Re: Stage 4 hope

Postby crazylife » Wed Dec 07, 2016 12:18 pm

mymom wrote:Mom just had her results and she is still clean. 14 months remission. She has had remissions before but this is the longest. Diagnosed at stage 4 May 2011. Happy holidays to all and I think of you all daily.



Yeah!!
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

mariane
Posts: 687
Joined: Sun Sep 13, 2015 6:16 pm

Re: Stage 4 hope

Postby mariane » Wed Dec 07, 2016 1:23 pm

Congratulations and merry Christmas!
mom of now 12 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Stage 4 hope

Postby DarknessEmbraced » Wed Dec 07, 2016 4:20 pm

Congratulations and Happy Holidays to you!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Stage 4 hope

Postby juliej » Wed Dec 07, 2016 5:20 pm

I am so happy to hear your mom is doing well! I feel a kinship with her. I was diagnosed Stage IV a little more than a year before her (8/4/2010) and we have the same oncologist. She continues to be an inspiration for many, so thanks for posting her good news! :D

xo,
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

Tnguyen
Posts: 127
Joined: Wed Aug 24, 2016 6:47 pm
Facebook Username: Natalie Nguyen

Re: Stage 4 hope

Postby Tnguyen » Thu Dec 08, 2016 9:44 pm

Thank you for sharing this wonderful news with all of us. My mom is also on this cancer journey stage 4 and its been about 1.5 year. Im also praying and hoping that she can have her miracle and be cancer free soon!
I wish both you and your mom the best of luck and I hope that she will continue to stay cancer free for a very very long time.
Mom Diagnosed with CC stage iv with mets to liver and lung
16 rounds of folfox - failed
folfori- some growth, some shrank
folfori+vectibix- failed after 4 months (scans came back with some growth)
currently- (oct12/16) stivarga (2 pills a day)

Nik Colon

Re: Stage 4 hope

Postby Nik Colon » Thu Dec 08, 2016 9:48 pm

Congrats!

mymom
Posts: 1288
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Stage 4 hope

Postby mymom » Mon Dec 12, 2016 10:03 am

Thank you all for your kind words!!!!
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

jortego128
Posts: 288
Joined: Sat Aug 15, 2015 7:47 am

Re: Stage 4 hope

Postby jortego128 » Mon Dec 12, 2016 4:27 pm

Awesome, Im so happy for y'all!!
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

stu
Posts: 1461
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 hope

Postby stu » Tue Dec 13, 2016 5:32 pm

Enjoy this special time with such good news.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

JDMNYC
Posts: 133
Joined: Wed Apr 15, 2015 5:12 pm
Location: Morris County, New Jersey

Re: Stage 4 hope

Postby JDMNYC » Tue Dec 13, 2016 9:24 pm

mymom wrote:Mom just had her results and she is still clean. 14 months remission. She has had remissions before but this is the longest. Diagnosed at stage 4 May 2011. Happy holidays to all and I think of you all daily.


Thank you very much for taking the time to tell us - fantastic news for you and your mother and enormously encouraging for us. Happy Holidays!
- Dx Stage IIIc rectal cancer: January 2015 (CEA 20)
- Chemo (Folfox): January - April 2015
- Chemo-Radiation (Xeloda): May - June 2015
- Surgery (LAR/temporary ileostomy): September 2015; 4/20 lymph nodes – no adjuvant chemo
- Reversal: December 2015
- Stage IV: August 2016 - Lung Mets
- Chemo (Xeloda) Started October 2016.
- CEA down; lung mets shrinking.

"There are more things in heaven and earth, Horatio, Than are dreamt of in your philosophy."


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