5 year cancerversary TODAY!

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Ehut
Posts: 169
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

5 year cancerversary TODAY!

Postby Ehut » Thu Dec 01, 2016 9:42 am

Hi everyone,

I haven't been posting much lately as I visit the board less and less frequently. Just thought I would share that I am officially a long term stage IV survivor today (12/1/16). I have seen many people join the site and leave us over that period, and hopefully this gives some of you optimism. I realize how extremely fortunate I am to still be here, and to also have NED. It was a difficult road back in late '11 and all of '12, with the full gamut of chemo, radiation, surgery, ileostomy, more chemo, ileo reversal, and recovering from all that. My biggest fear back then was my 18 month old daughter growing up without a father. Fortunately I have stuck around, and in fact, we will be joined by another daughter early next year! Thanks to all who have given advice and support over the years. I found this site extremely useful for finding information for those "rare" questions that only cancer patients can answer.

Dave
Dx 12/11 rectal stage IV w/ 6 mets to liver
4 cycles FOLFOX 12/11 to 2/12
5 days radiation 2/12 (European protocol)
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
Currently NED!

NedPlease
Posts: 522
Joined: Fri Mar 23, 2012 3:56 pm

Re: 5 year cancerversary TODAY!

Postby NedPlease » Thu Dec 01, 2016 10:16 am

The very best of news!! The emotions are undoubtedly overwhelming as you so intensely feel the beauty of life with your precious family.
Wishing you many, many, many more years,
N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 7/17 Clear Scans
Today- NED

karaj
Posts: 45
Joined: Mon Aug 18, 2014 10:17 pm
Location: Boston
Contact:

Re: 5 year cancerversary TODAY!

Postby karaj » Thu Dec 01, 2016 10:41 am

Congratulations! Your good news makes my heart sore with hope. Thank you for sharing - enjoy this great day!
35 y/o female, dx at 32
8/14 dx Stage IIIC, 10/30 lymph nodes
8/14-9/14: sigmoidoscopy, fertility preservation, port-a-cath
9/14 - 3/15: FOLFOX (allergic to oxaliplatin, underwent desensitization)
4/15: NED
1/16: dx Stage IV, recurrence in three lymph nodes behind abdomen
2/16: started FOLFIRI
8/16: NED
8/17: NED, staying off chemo until next recurrence
http://www.karaincancerland.com

LMighty
Posts: 98
Joined: Sun Aug 28, 2016 6:16 am
Location: Hong Kong

Re: 5 year cancerversary TODAY!

Postby LMighty » Thu Dec 01, 2016 10:41 am

Such a great news. Congratulations!
Supporter to my mom (64 yr); KRAS wild type; MSS

2012: DX Stage I, rectal cancer; resection and colostomy
5/16: DX Stage III, mets found; right groin lymph node and soft tissue
5-6/16: Radiation + Xeloda
7/16: DX Stage IV, pleural effusion; cancer cells found in fluid
7-12/16: Xelox + Avastin X 6
1/17: Clean PET scan, NED
2/17: Pleural effusion; recurrence
4/17: Iri + Erb X 3
5/17: Ascites; Chemo failed
6/17: Keytruda X 1
7/17: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib)
9/17: At peace

Deb m
Posts: 354
Joined: Tue Jan 14, 2014 10:08 am

Re: 5 year cancerversary TODAY!

Postby Deb m » Thu Dec 01, 2016 3:13 pm

So happy for you. Congrats on the up coming little one.

teri3
Posts: 346
Joined: Fri Jan 09, 2015 11:03 am

Re: 5 year cancerversary TODAY!

Postby teri3 » Thu Dec 01, 2016 3:20 pm

Woo-hoo! I love these posts best. Everyone loves a good news story and this is one! Congrats!
Hugs
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?

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Marylandmaniac
Posts: 234
Joined: Wed Jun 29, 2016 6:22 pm

Re: 5 year cancerversary TODAY!

Postby Marylandmaniac » Thu Dec 01, 2016 4:56 pm

Thank you for sharing and congrats on the addition to your family!!! I love reading these posts. It really gives so much hope.
DX 6/29/16 7 cm tumor, 10 cm fr av
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX

Buckeye
Posts: 109
Joined: Mon Jan 18, 2016 7:02 pm

Re: 5 year cancerversary TODAY!

Postby Buckeye » Thu Dec 01, 2016 5:58 pm

Congrats!!!! So happy for you, I wish this for everyone on this site! I just finished my one year cancerversary.
Dx 10/20/15 stage 1 T1N0M0 1.3cmx1.1cmx1cm low grade ( well to moderately differentiated) Rectal cancer age 47
Loving Husband and father of two girls age 19 & 15 Sole income provider
CEA <0.5
CT, MRI and PET show no metastatic spread
LAR Laparoscopic TME 11/30/15 with Illo
Pathology clean no lymph node or vascular involvement. Confirmed Stage1
No chemo/rad cancer free now and forever.
Illo reversal 01/26/16

testing765
Posts: 308
Joined: Tue Aug 19, 2014 9:41 am

Re: 5 year cancerversary TODAY!

Postby testing765 » Thu Dec 01, 2016 6:41 pm

I appreciate you sharing your experience and hope.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

Thetoad
Posts: 140
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: 5 year cancerversary TODAY!

Postby Thetoad » Thu Dec 01, 2016 7:15 pm

Good news posts like these are really encouraging! Thanks for sharing and congratulations!
Emergency extended right hemicolectomy November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.
All CEA tests, CT scans and follow up colonoscopy ok.
Now on yearly appts and 6 monthly CEA tests.
Large incisional hernia repaired with mesh Nov. 2014.
Cellulitus bottom of scar.
CEA 1.4 on 28/7/17
Just passed 48 months since surgery! (November 13, 2013.) All good so far.
27/5/17. Gallbladder removed, open surgery.
Pleasing consultation Feb. 2017
CEA 1.7 on 16/11/17

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Nik Colon
Posts: 5210
Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: 5 year cancerversary TODAY!

Postby Nik Colon » Fri Dec 02, 2016 4:25 am

Congrats! That's awesome!
KRAS-mut G12V,MSS
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: 5 year cancerversary TODAY!

Postby Maia » Fri Dec 02, 2016 4:29 am

So happy to see you, and doing well!! Congratulations on your new daughter! :)

plastikos
Posts: 273
Joined: Wed Jan 14, 2015 6:09 am

Re: 5 year cancerversary TODAY!

Postby plastikos » Fri Dec 02, 2016 4:57 am

Amazing story. Congrats! Thanks for sharing.
Diagnosed St. IV Colon CA @ 37, male, Kras wild type, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab 12/2016 -> pseudoprogression (?), biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab
Sept 2017 - SIRT

cmrl
Posts: 169
Joined: Mon Apr 21, 2014 8:39 pm

Re: 5 year cancerversary TODAY!

Postby cmrl » Fri Dec 02, 2016 7:10 am

Congratulations!
Resection of splenic flexure 7/24/13
T3N2BM0, Stage 3c,12/29 nodes
Folfox x12 9/13-3/14
CT scan 4/14, enlarged spleen, otherwise clear
CT 4/15, spleen WNL.
6/17 3 cm benign polyp at ileocecal valve, awaiting removal

tufnellp
Posts: 6
Joined: Tue Sep 09, 2014 6:27 am

Re: 5 year cancerversary TODAY!

Postby tufnellp » Fri Dec 02, 2016 10:56 am

Hi Dave,
Congratulations! I am just checking in here myself after not being so active the past year or so. I'm approaching 3 years with similar experience to you (including planning a new baby). This has really warmed my heart and given me a lift- it's still incredibly nerve wracking every day and I long for that magical 5 year mark.
All the best to you and your family and future-baby!

Simon.


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