3 year cancerversary

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cmrl
Posts: 174
Joined: Mon Apr 21, 2014 8:39 pm

Re: 3 year cancerversary

Postby cmrl » Fri Dec 02, 2016 6:55 am

Congratulations on reaching the 3 year milestone. Sounds like you are moving on with your life, and I know that was something you couldn't even imagine a couple of years ago.
Good to know the health care there is good....I know a few people who are ready to leave the USA.
Resection of splenic flexure 7/24/13
T3N2BM0, Stage 3c,12/29 nodes
Folfox x12 9/13-3/14
CT scan 4/14, enlarged spleen, otherwise clear
CT 4/15, spleen WNL.
6/17 3 cm benign polyp at ileocecal valve, awaiting removal

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horizon
Posts: 1670
Joined: Tue Apr 12, 2011 10:10 pm

Re: 3 year cancerversary

Postby horizon » Tue Dec 06, 2016 1:07 am

Congrats on your milestone and thanks for the mesh tip. I've wondered if one of those would be in my future eventually.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?

testing765
Posts: 324
Joined: Tue Aug 19, 2014 9:41 am

Re: 3 year cancerversary

Postby testing765 » Tue Dec 06, 2016 6:02 am

Hello NZJay. I am wishing you the best of luck on your upcoming scan.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

BUD2016
Posts: 60
Joined: Sat Sep 10, 2016 3:25 pm

Re: 3 year cancerversary

Postby BUD2016 » Tue Dec 06, 2016 2:30 pm

Thank you very much for posting this update! It is really really helpful for us who are new on this journey to be inspired by others! Congratulations! I wish you happy many years of happiness!!!
09/2016: Mom dx/rectal cancer
10/2016: Open surgery. T3N0/Grade 2
11/2016: PET/CT scan shows 5 liver mets in both lobes
11/2016: FOLFOX + Avastin started on her 71st birthday
KRAS gen 2 G13D mutant, BRAF Negative, MSS
03/2017: Oxi stopped after 9th tx, 5FU cntd. CT scans w/ contrast every 2 months - small shrinkage/stable
05/2017: PET/CT progression, started FOLFIRI + AVASTIN
07/2017: MRIs/CT stable
09/2017: MRIs/CT - min progression
09/2017: FOLFIRI + CYRAMZA
11/2017: left us

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Marylandmaniac
Posts: 234
Joined: Wed Jun 29, 2016 6:22 pm

Re: 3 year cancerversary

Postby Marylandmaniac » Tue Dec 06, 2016 6:23 pm

NZJay wrote:Just realised the 3 year anniversary of my surgery for Stage 3 t4b n1 transverse colon cancer was on the 25th of November.

I have my 3 year scan coming in January, and I'm a couple of weeks overdue for my cea test.

Current state of affairs:

-Work is going well; I've been promoted twice since finishing chemo.

-Relationships are still a nightmare. I was diagnosed with PTSD and the manifestations of this (anxiety, inability to process stresses, emotional distance, mood swings, self destructive behaviour) make it difficult to get far beyond a few months of dating before I scare people off.

-Family life is good; particularly with my daughter, who I am now a solo father to.

-Physical health is good aside from ongoing hernia mesh pains. I strongly recommend to anyone to do your research before agreeing to having abdominal mesh inserted. I am constantly having to balance and adjust my exercise regime and even daily activities to manage chronic pains. I've made great progress but I fear eventually I'll lobbying to have it removed.

-Mental health aside from the PTSD is good. I'm confident of a good result from my January CT, which should be my final one! Watch this space.

I rarely post but read this site nearly every day. My heart is with all of you brave and kind people, and I wish for the absolute best for all of you.

Jay


Hi Jay. So glad to see that most things are going well in your life and that you are doing well. It gives me such hope to see people celebrating being NED. I have my surgery next week and I am nervous but also glad to get this done. I really want to get to the point where I can say I am NED.
I hope you are seeing someone to help you deal with the PTSD. You are so young and handsome and you obviously love dogs (which in my mind already tells me you are a good guy :) ). I am sure when you get a handle on those issues you will find love. Wishing the very best for you!
DX 6/29/16 7 cm tumor, 10 cm fr av
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: 3 year cancerversary

Postby mariane » Tue Dec 06, 2016 11:31 pm

Congrats on NED!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!


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