3 year cancerversary

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3 year cancerversary

Postby NZJay » Tue Nov 29, 2016 5:24 pm

Just realised the 3 year anniversary of my surgery for Stage 3 t4b n1 transverse colon cancer was on the 25th of November.

I have my 3 year scan coming in January, and I'm a couple of weeks overdue for my cea test.

Current state of affairs:

-Work is going well; I've been promoted twice since finishing chemo.

-Relationships are still a nightmare. I was diagnosed with PTSD and the manifestations of this (anxiety, inability to process stresses, emotional distance, mood swings, self destructive behaviour) make it difficult to get far beyond a few months of dating before I scare people off.

-Family life is good; particularly with my daughter, who I am now a solo father to.

-Physical health is good aside from ongoing hernia mesh pains. I strongly recommend to anyone to do your research before agreeing to having abdominal mesh inserted. I am constantly having to balance and adjust my exercise regime and even daily activities to manage chronic pains. I've made great progress but I fear eventually I'll lobbying to have it removed.

-Mental health aside from the PTSD is good. I'm confident of a good result from my January CT, which should be my final one! Watch this space.

I rarely post but read this site nearly every day. My heart is with all of you brave and kind people, and I wish for the absolute best for all of you.

11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

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Location: New Brunswick, Canada

Re: 3 year cancerversary

Postby DarknessEmbraced » Tue Nov 29, 2016 5:27 pm

I hope that you get good results on your January Ct scans!*hugs* Sorry you are dealing with chronic pain!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Re: 3 year cancerversary

Postby CLD » Tue Nov 29, 2016 6:20 pm

Hi NZ Jay. Congrats on your fast approaching 3 yr cancerversary. You have given me alot of inspiration in the almost 2 years Ive been here and Ive been thinking of you a lot as my DH 2 year scan approaches. I hope you have continued good health and that your luck with the ladies improves! Keep us posted as you never know who you inspire!
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019

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Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: 3 year cancerversary

Postby Thetoad » Tue Nov 29, 2016 7:10 pm

Hi fellow kiwi. Good to hear from you again. As mentioned before, we are at a similar place time wise, my surgery was 13 Nov three years ago. I'm told that is a good milestone to reach. I didn't realise you had a mesh hernia repair! So did I, two years ago, but no problems with it. Cancer news is all good - CEA every six months and a good CT scan and colonoscopy during the 3 years. No CT scan scheduled but another colonoscopy in a year. Consultant appts every 9 months so she must be happy with me.
Hope your problems improve as time passes. I think we get quite good care in this country. All the best and hope you are coping with the aftershocks ok! We were very close to going to higher ground in the early hours when there was a tsunami warning, but it was lifted just before we drove off. Keep posting... :)
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.

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Re: 3 year cancerversary

Postby muskokamike » Tue Nov 29, 2016 7:45 pm

Hi Jay

We were both dx around the same time. I have always read your post and happy that you are doing well. I guess in NZ they only scan for three years after surgery. I have been told I will have a minimum of 5 yearly scans. Interesting how NZ and Ontario Canada are different in protocol for monitoring CRC.
53M Dx rc10/31/13
CT scan, BONE scan
MRI/T3N0M0 1 suspicious node
5 wks chemo/rad
LAR open TME 2/26/14
temp ileo
0/24 nodes pCR/pathological
Mop up Folfox (8) Mar/28-Jul/4
Aug/14 clear CT scan
8/27/14 reversal
Feb/15 clear scope
July/15 clear CT scan
Feb/16 clear CT scan
Feb/17 clear CT scan
Feb/18 clear scope
Feb/18 clear CT scan
Sep/19 clear CT scan DISCHARGED!
CEA levels 1.6 dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal

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Location: Syracuse, NY

Re: 3 year cancerversary

Postby fumaros » Tue Nov 29, 2016 8:57 pm

Congratulations, and good luck on the next scan. Is the PTSD cancer related?
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

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Location: Philadelphia

Re: 3 year cancerversary

Postby HopeForJesse » Tue Nov 29, 2016 9:15 pm

Congratulations and prayers for the future.
DH DX 01/16 49 YO inop RC stage IV liver mets
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

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Re: 3 year cancerversary

Postby ANDRETEXAS » Tue Nov 29, 2016 10:33 pm

Hi Jay: You and I got here about the same time. My three-year scan will be late February. I don't post much either as there seems to be so much knowledge on here that my response is usually redundant. :D PM me from time to time and let me know how you're doing.....or I'll PM you...LOL Andre
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
3/23- clean CT
2/22- clean CT
3/21 - clean CT
4/11 - clean colonoscopy
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023


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Joined: Wed Nov 19, 2014 11:11 pm

Re: 3 year cancerversary

Postby lpas » Tue Nov 29, 2016 10:53 pm

Really happy for you, Jay! Big congrats.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

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Re: 3 year cancerversary

Postby CRguy » Tue Nov 29, 2016 11:00 pm

Hey buddy
3 years is a good place to be !
and sounds like most things are evening out for you

We are ALL works in progress so just keep puttin' one foot ahead of the other
and live life !

Cheers and Harmony
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Nik Colon

Re: 3 year cancerversary

Postby Nik Colon » Tue Nov 29, 2016 11:27 pm

Nice to see you again. Hugs and best wishes

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Joined: Sun Mar 08, 2015 3:05 am

Re: 3 year cancerversary

Postby Willow.NZ » Wed Nov 30, 2016 4:48 am

Hi Jay, good to hear your update & cool that you
have another NED milestone ticked off :D
I hope 2017 brings you less pain & maybe even love. But glad to hear thing going well with the most important girl in your life! I find myself still drawn to this place & love reading updates like this.
Dad diagnosed Sept 14 Stage IV. Age 57yrs. Transverse colon - spread to Retroperitoneal, Mesenteric & Supraclavicular lymph nodes. Folfiri commenced Sept 14.
April 15 - Bowel resection
August 15, stable scan
Feb 16 - No signs of cancer on scan...stop chemo & scan in 3 month
Scan April 16, Crazy growth to stomach, lymph nodes & multiple mets to liver. Commencing Folfox.
August: chemo not working. Stopped treatment.
September 3rd 2016 peacefully left this earth.

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Joined: Mon Oct 14, 2013 3:54 pm
Location: Montréal, QC

Re: 3 year cancerversary

Postby JJ2212 » Wed Nov 30, 2016 8:33 am

Congrats Jay. Keep on keeping on :-)
Rectal cancer dx 04/13 @ 42, MSS, KRAS positive
T3N2M1 (1 lung met)
5 weeks xeloda+radiation finished 07/13
APR 9/13 (permanent colostomy), 27/31 nodes positive :-(
12 rounds of FOLFOX 04/14
Lung met growth 11/14
26 cycles Regorafenib (Stivarga) from 11/15 to 01/17
New lung met and chest/neck lymph nodes 01/17
1 cycle Folfiri

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Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: 3 year cancerversary

Postby bitchslapped » Fri Dec 02, 2016 5:06 am

That's really good news NZ! Congratulations on 3yrs out & your promotions! If you're reading, you might as well get on & let us help you w/your love life :lol: :lol: Give us something different to talk about :mrgreen:
Has dialing down some on your weight lifting been less aggravating to the mesh? Or are you one of those go broke or go home kind of guys?

Best Wishes
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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Re: 3 year cancerversary

Postby Maia » Fri Dec 02, 2016 6:07 am

Jay!! So nice to see you. Hope that pain gets better managed, hope you find help with that. I'm positive the troubles with relationships will be easy with time. Family life being good and having a nice relationship with your daughter shows that you're a loving and loved person... I'm positive you'll find the way around for other meaningful bonds of love in your life. Big hug.

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