Port Removal

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Fluff Bottom
Posts: 77
Joined: Fri Oct 23, 2015 8:13 am

Port Removal

Postby Fluff Bottom » Tue Nov 22, 2016 3:32 pm

I'm planning on getting my port out next week and was told by the surgeon's office that they can take it out in the office. Is this how most of you had yours removed? They had some trouble putting it in but I know removal should be easier.

Thanks in advance for your input and have a great Thanksgiving!
10/26/15-Colonoscopy-Mass in Sigmoid
adenocarcinoma mucinous type components.
Lynch Neg
Stage IIIb-T3N1c, 3/13 nodes, High Grade-Poorly Diff to Undiff
12/16/15-Port, FOLFOX
12 rounds FOLFOX 5/22/16
5/22/18-Clear CT
9/6/18-CT for possible hernia=mets
9/18/18 PET mets to lungs, liver, peri
10/23/18-rapid growth of mets
BRAF V600, KRAS Wild, MSS
Back on FOLFOX=reaction
FOLFIRI until it failed
Tafinlar/Mekinist=Kidney Failure
Mets to uterus, adrenal gland
Low dose Stivarga/Opdivo. Possible liver toxicity.

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Port Removal

Postby justin case » Tue Nov 22, 2016 6:48 pm

I had mine taken out by the surgeon. He put it in, he should be the one who removes it, as he has your X Rays, Yada, Yada, Yada :roll: I would go by the surgeon in charge, who probably saved your life !
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Fluff Bottom
Posts: 77
Joined: Fri Oct 23, 2015 8:13 am

Re: Port Removal

Postby Fluff Bottom » Tue Nov 22, 2016 8:03 pm

The surgeon who did my colon surgery is different than the general surgeon who installed my port. My question is whether or not you had your port removed in the surgeon's office instead of at the hospital. My installation didn't go smoothly and it kinda scares me to think of having it done somewhere besides the hospital. Thanks!
10/26/15-Colonoscopy-Mass in Sigmoid
adenocarcinoma mucinous type components.
Lynch Neg
Stage IIIb-T3N1c, 3/13 nodes, High Grade-Poorly Diff to Undiff
12/16/15-Port, FOLFOX
12 rounds FOLFOX 5/22/16
5/22/18-Clear CT
9/6/18-CT for possible hernia=mets
9/18/18 PET mets to lungs, liver, peri
10/23/18-rapid growth of mets
BRAF V600, KRAS Wild, MSS
Back on FOLFOX=reaction
FOLFIRI until it failed
Tafinlar/Mekinist=Kidney Failure
Mets to uterus, adrenal gland
Low dose Stivarga/Opdivo. Possible liver toxicity.

User avatar
mmblz
Posts: 58
Joined: Sat Oct 10, 2015 3:03 pm

Re: Port Removal

Postby mmblz » Tue Nov 22, 2016 8:54 pm

I had mine out in I guess what I would call a simple operating room. They had a good amount of supplies of various sorts on hand but it was on the smaller side without a ton of equipment. One surgeon and one person to help. Because I didn't have a ride home, I couldn't have any sort of general anesthetic, so I had only local. Felt like a lot of hard pushing sideways on my skin and muscle tissue. Not the most pleasant sensation but not very painful either. I think I would have been worried if this was all done in a plain office.
40yo married 16 years. 4 kids 12, 10, 7, 5
2015-09-21 colonoscopy finds tumor in sigmoid, partial obstruction
2015-09-22 CT no mets, path G2 adenocarcinoma, CEA 1.2
2015-09-29 lap hemicolectomy at MSKCC
2015-10-06 pT3 N1a M0 stage IIIB
2015-10-22 folfox started - 12 rounds, last 4 no oxaliplatin
2016-10-27 clear CT !
2021-03-25 "cured"

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Port Removal

Postby jhocno197 » Tue Nov 22, 2016 9:11 pm

It would make me nervous to have it done in an office, too.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Port Removal

Postby teri3 » Tue Nov 22, 2016 10:56 pm

I agree I don't know about in the office :? I had mine done in the hospital. It was an easy removal I was fully awake but just encase I feel being in operating room is safer
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

nomoretacos
Posts: 51
Joined: Sun Mar 27, 2016 5:57 pm

Re: Port Removal

Postby nomoretacos » Wed Nov 23, 2016 5:48 am

I had mine removed last week in a small theatre. They gave me some drug that made the roof spin :D I wanted more.

I also got to keep my port :lol:
03/16 Dx Stage IIIC, sigmoid resection surgery,T3 N2b M0, 7/20 nodes, 4 tumor deposits, CEA 3.7, age 31
04-10/16 Folfox with delays and reductions
10/16 Post chemo CT scan shows two non specific spots (one liver, one lung)
11/16 Port removed
12/16 CEA 0.9
09/17 NED
03/18 NED

Fluff Bottom
Posts: 77
Joined: Fri Oct 23, 2015 8:13 am

Re: Port Removal

Postby Fluff Bottom » Wed Nov 23, 2016 8:24 am

Thanks everybody! I thought maybe I was just being silly but I'm going to push to have it somewhere besides the surgeons office!
10/26/15-Colonoscopy-Mass in Sigmoid
adenocarcinoma mucinous type components.
Lynch Neg
Stage IIIb-T3N1c, 3/13 nodes, High Grade-Poorly Diff to Undiff
12/16/15-Port, FOLFOX
12 rounds FOLFOX 5/22/16
5/22/18-Clear CT
9/6/18-CT for possible hernia=mets
9/18/18 PET mets to lungs, liver, peri
10/23/18-rapid growth of mets
BRAF V600, KRAS Wild, MSS
Back on FOLFOX=reaction
FOLFIRI until it failed
Tafinlar/Mekinist=Kidney Failure
Mets to uterus, adrenal gland
Low dose Stivarga/Opdivo. Possible liver toxicity.

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Port Removal

Postby justin case » Sat Nov 26, 2016 2:49 pm

Fluff Bottom wrote:The surgeon who did my colon surgery is different than the general surgeon who installed my port. My question is whether or not you had your port removed in the surgeon's office instead of at the hospital. My installation didn't go smoothly and it kinda scares me to think of having it done somewhere besides the hospital. Thanks!
To be more precise, I went to the hospital. As I was already paying for that visit, my surgeon also removed some cists that may become a problem :roll: :roll: :roll:
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Port Removal

Postby Lee » Sat Nov 26, 2016 5:17 pm

I had my port put in by a general surgeon in a hospital setting. And I was put out for most of it. I had my port removed in a hospital setting by another general surgeon and again I was "suppose" to be put out. Butt we all decided I did not need to go there. Thus I was awake. Depends on the Dr office. My PCP does have a special room where he had done a few out patient type procedures. Butt maybe having a port removed done in a hospital setting may be the best. I remember the surgeon had one heck of a time getting the port out because of so much scar tissue build up. Port was in me for over 2 years.

All the best,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: Port Removal

Postby michelle c » Sun Nov 27, 2016 4:34 am

I had mine put in by my colorectal surgeon under a general anaesthetic in hospital. It was also removed the same way. I had no choice as this is how he does it.
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

User avatar
cecioboe
Posts: 597
Joined: Mon Oct 17, 2011 9:08 pm
Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: Port Removal

Postby cecioboe » Wed Dec 14, 2016 12:46 am

Jim was "deported" at the out patient section in the hospital.
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
NED since 10/22/12
De-ported 6/24/16


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