Great News, Great News, Bad News

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Kathy
Posts: 114
Joined: Sat Mar 14, 2009 8:28 pm
Location: New Jersey

Great News, Great News, Bad News

Postby Kathy » Wed Nov 16, 2016 5:44 pm

Hi,
Great news! My son's wedding went off without a hitch on October 29th. It was a beautiful day weather-wise. The ceremony was wonderful and we even got pictures on the beach at the Jersey shore where the reception was held. Never in my wildest dreams did I Think I would ever be there!

Great News 2- I celebrated my NED anniversary on Monday 8 years! It would not be possible without the care Of Dr. Nancy Kemeny and her team as well as my husband George. George has not missed one appointment and he travels an average of 75,000 miles a year. He is hell of a caregiver.

Bad News- The day after my son's wedding, George appeared jaundiced. He had not been feeling well but he could not put his finger on it. We went to the doctor on Monday (Halloween) and they did blood work. His liver enzymes were crazy after being totally normal on September 1 at his physical. CT scan on Friday showed a blocked gall bladder duct. A procedure was done on Tuesday to clear the duct and the doctor saw something on his pancreas which he biopsied. On Friday morning we got a phone call from the doctor-Pancreatic Cancer.

Both the gastric doc and our primary said he had to go into NYC. I immediately called Dr. Kemeny's office with the news and game plan. As her patients know, she does not get on the phone often. Within 2 minutes she called me and asked if I made an appointment with the doctor from Sloan recommended by the gastro guy. "If you did, cancel it. He is excellent but you have to go to Dr. Peter Allen. If you cannot get an appointment with him Tuesday, call me back."

We saw Dr. Allen at Sloan yesterday. He was very reassuring. He feels it is an early stage cancer which may or may not need chemo. They are going to do the Whipple surgery either the Monday or Thursday after Thanksgiving. It is a tough procedure but we can handle tough. My husband, nor anyone deserves this but if I can be half as strong as he was for me, it will be good. We have a good support system but still a lot to deal with. His mother had heart valve surgery and is in rehab and going home soon. She is very stubborn and refuses outside help but now she has to. If she doesn't, I can't control a 89 year old without dementia but absolutely no insight. Our family is her only lifeline and she doesn't treat us very well. Our priority is my husband. I know I have to take care of myself eating and drinking properly or I end up in the hospital with a blockage due to a UTI. It happened last when my Mom was in the hospital just before she went into hospice. But I will be strong like my Mom...as she put it, strong like bull.

Thank you to everyone here for support through the years. Please say a few prayers for us as I keep everyone on this board, caregivers and patients alike, in mine.

Hugs to All,

Kathy
Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008

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Marylandmaniac
Posts: 234
Joined: Wed Jun 29, 2016 6:22 pm

Re: Great News, Great News, Bad News

Postby Marylandmaniac » Wed Nov 16, 2016 6:09 pm

Kathy,
Wow, so sorry to hear about your husband George. Sounds like you have some amazing doctors though! I will definitely pray for your family and George. My son's name is George so I won't be forgetting it. :) SO glad to hear you are 8 years NED!!! That is so encouraging.
DX 6/29/16 7 cm tumor, 10 cm fr av
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Great News, Great News, Bad News

Postby Lee » Wed Nov 16, 2016 7:09 pm

Wow is right,

Congratulations on 8 year in NEDville. May you always reside there. So very sorry to hear about your husband. Sounds like he is in good hands. Good luck with his upcoming surgery. Keep us posted.

LLee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Great News, Great News, Bad News

Postby jhocno197 » Wed Nov 16, 2016 9:02 pm

I am sorry.

Praying.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: Great News, Great News, Bad News

Postby stu » Thu Nov 17, 2016 4:30 am

You sound a strong team. Together you can endure this. I am so pleased it was caught at an operable stage.
I will be thinking of you both.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Utwo
Posts: 285
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: Great News, Great News, Bad News

Postby Utwo » Thu Nov 17, 2016 10:36 am

It's a good news, that they were able to notice pancreatic cancer so early.
Your husband has a chance to recover because of this.
Last edited by Utwo on Sat Nov 19, 2016 9:27 pm, edited 1 time in total.
58 yo male at diagnosis: T1bN0M0, 0/15 nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder, lymph node, pancreas

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Great News, Great News, Bad News

Postby DarknessEmbraced » Thu Nov 17, 2016 5:58 pm

I'm sorry to hear about your husband's pancreatic cancer.*hugs* I hope his surgery goes well and the cancer was caught early.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Great News, Great News, Bad News

Postby chrissyrice » Thu Nov 17, 2016 6:46 pm

Kathy,
So happy you are NED for so long and able to be here to give us an update... so hopeful for other on the journey to know that there is HOPE!

Wow, you husband is so lucky to have gotten a great doctor and so quickly get his surgery scheduled.

God Bless Dr. Kemeny for her help!

She is an amazing person and please let us know how your husband is doing.

Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

KElizabeth
Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: Great News, Great News, Bad News

Postby KElizabeth » Thu Nov 17, 2016 6:48 pm

You have my prayers.
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

Yolanda
Posts: 21
Joined: Sun Nov 13, 2016 1:32 pm
Facebook Username: yolanda bernice

Re: Great News, Great News, Bad News

Postby Yolanda » Thu Nov 17, 2016 7:09 pm

So sorry to hear the bad news! There's just too much cancer going around, just too much! I pray your husband will have a brief journey and come out healthy and strong.
-Yolanda
dx colorectal cancer FE2016
emergency colostomy MR2016
Major surgery removing everything from perineum to stoma to remove tumour with. total hysterectomy including ovaries.
Perineal and pelvic floor rebuild with VRAM flap AU2016 (put my stomach where my butt used to be)
IV sub dermal Port installed NO2016
Currently in follow-up FOLFOX.
Colostomy is permanent. I just turned 53, but have an energetic lifestyle.

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: Great News, Great News, Bad News

Postby Ajane » Thu Nov 17, 2016 8:14 pm

You got it! Prayers all around, but especially lifting George up!
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Great News, Great News, Bad News

Postby HopeForJesse » Thu Nov 17, 2016 10:44 pm

Congratulations and extra prayers too. We went to a local annual survivors football game last month where all of the cancer survivors got to walk onto the field pregame wearing color coded scarves to matches their cancer type. I was happy to walk along side a 9'year pancreatic survivor :D
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!


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