Postby Maia » Tue Nov 15, 2016 7:40 pm
Dear BeansMama,
my previous post was written in a hurry. I re-read it now and I think I owe you an explanation --it sounds so dry! That's the last thing I wish for you to feel.
I have been reading your posts, since time ago. I feel like I know you from time ago --I only realise now that we never had interacted before. Your courageous search and your kind spirit towards others always make me look for them (your posts), to know how you're doing.
When I say "sorry", I mean exactly that, from the bottom of my heart; I usually don't write too long messages. I so wanted you to have the surgery you wanted now.
Since we never have interacted here, you probably don't know me (I'm not a patient, I have been just a caregiver). Maybe some old timer remember that, in my humble opinion, clinical trials with immunotherapy are not a last option but more the contrary. To that, add that, at the moment, immunotherapy for CRC seems to be more successful for those with mutations/ Lynch syndrome. Plus, I have been reading what a rough time you had/have with chemotherapy. So, with all that together in mind, please know that my question about if you considered an immunotherapy trial was *not* in the line of last ditch but, on the contrary, with the idea that maybe one unique dose of an immunotherapy could get rid of that lesion, or shrink it in a way that it becomes resectable. It was about using immunotherapy to aim at the same objective that chemotherapy is being used for.
(While I was writing this, I saw your reply to me : ) So glad to hear that your doc is looking for that immuno drug out of label! But maybe the new combo with Avastin will do the trick and you won't need that. )
I'm very hopeful you'll be NED --with surgery, or any other mean; you have not only surgeons but the finest doctors for radiofrequency ablation for the liver, at Duke, if it were feasible (if you're treated there). You have so many possibilities ahead, to get NED and maintain that way, you're only one spot from that! Strong thoughts flying your way. : )