Bad MRI results...

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Tue Nov 15, 2016 4:33 pm

macpudd wrote:Hi Beansmama,
So sorry to hear of this setback, you have always struck me as a very positive person from your posts and I am sure that attitude will help you get over this, please God the new treatments will work. Sending you positive vibes from the Emerald Isle.

Regards
Macpudd


Thank you so much
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Tue Nov 15, 2016 4:34 pm

teri3 wrote:I'm sorry about your bad news. I'm praying the avistin gets in there and kicks some ass. You are a warrior, praying for you.
Teri

Thank you so much
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Tue Nov 15, 2016 4:35 pm

mypinkheaven wrote:Damn!! Yes, this is upsetting! But, I have a good feeling that the Avastin will work. Love ya, Sally


Thank you Sally!!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Tue Nov 15, 2016 4:35 pm

Tnguyen wrote:So sorry to hear that beansmama! i really hope your tumor shrink with the new treatment. Folfori didnt work well for my mom either, I think it's not as effective as folfox. Im praying for you!


Thank you so much
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Bad MRI results...

Postby CRguy » Tue Nov 15, 2016 4:57 pm

Heavy SUCKNITUDE on the scan results my friend ... :twisted:

BUTT kicking back into it with a new plan IS good
here's hoping for shrinkage on the new mix

" Don't retreat ... RELOAD ! "

Cheers and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Bad MRI results...

Postby DarknessEmbraced » Tue Nov 15, 2016 5:29 pm

BeansMama,

I'm so sorry to hear that!*hugs* How upsetting. I hope you find chemo that will shrink it so that you can have surgery!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Tue Nov 15, 2016 6:40 pm

CRguy wrote:Heavy SUCKNITUDE on the scan results my friend ... :twisted:

BUTT kicking back into it with a new plan IS good
here's hoping for shrinkage on the new mix

" Don't retreat ... RELOAD ! "

Cheers and Harmony
CRguy


Thanks CR! That is the attitude I am trying to find. I will kick this demons butt!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Tue Nov 15, 2016 6:41 pm

DarknessEmbraced wrote:BeansMama,

I'm so sorry to hear that!*hugs* How upsetting. I hope you find chemo that will shrink it so that you can have surgery!*hugs*


Thank you so much DE!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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Marylandmaniac
Posts: 234
Joined: Wed Jun 29, 2016 6:22 pm

Re: Bad MRI results...

Postby Marylandmaniac » Tue Nov 15, 2016 6:50 pm

Wow I am so sorry to hear this. Hopefully this new cocktail will work or you can try immunotherapy. Have you taken turkey tail mushroom? It is a supplement you can buy from Amazon. There are so many good reviews on it and NIH has done trials with it for breast cancer with good results. I take it every day. I am not sure if it is just chemo or if it is chemo plus my supplements but I have responded very well to chemo. I take 4 to 6 grams a day. NIH has shown up to 10 grams is not toxic. My doctor is okay with me taking it.

I wish I could give you a big hug. Sending a virtual hug to you.
DX 6/29/16 7 cm tumor, 10 cm fr av
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Bad MRI results...

Postby Maia » Tue Nov 15, 2016 7:40 pm

Dear BeansMama,
my previous post was written in a hurry. I re-read it now and I think I owe you an explanation --it sounds so dry! That's the last thing I wish for you to feel.
I have been reading your posts, since time ago. I feel like I know you from time ago --I only realise now that we never had interacted before. Your courageous search and your kind spirit towards others always make me look for them (your posts), to know how you're doing.
When I say "sorry", I mean exactly that, from the bottom of my heart; I usually don't write too long messages. I so wanted you to have the surgery you wanted now.
Since we never have interacted here, you probably don't know me (I'm not a patient, I have been just a caregiver). Maybe some old timer remember that, in my humble opinion, clinical trials with immunotherapy are not a last option but more the contrary. To that, add that, at the moment, immunotherapy for CRC seems to be more successful for those with mutations/ Lynch syndrome. Plus, I have been reading what a rough time you had/have with chemotherapy. So, with all that together in mind, please know that my question about if you considered an immunotherapy trial was *not* in the line of last ditch but, on the contrary, with the idea that maybe one unique dose of an immunotherapy could get rid of that lesion, or shrink it in a way that it becomes resectable. It was about using immunotherapy to aim at the same objective that chemotherapy is being used for.
(While I was writing this, I saw your reply to me : ) So glad to hear that your doc is looking for that immuno drug out of label! But maybe the new combo with Avastin will do the trick and you won't need that. )
I'm very hopeful you'll be NED --with surgery, or any other mean; you have not only surgeons but the finest doctors for radiofrequency ablation for the liver, at Duke, if it were feasible (if you're treated there). You have so many possibilities ahead, to get NED and maintain that way, you're only one spot from that! Strong thoughts flying your way. : )

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Bad MRI results...

Postby Steph20021 » Tue Nov 15, 2016 9:30 pm

Oh crap Beansmama! I know you have been patiently waiting and somhopeful for test surgery. I'm rooting for ya. Hope this cocktail,works and brings shrinkage for you!
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: Bad MRI results...

Postby Ajane » Tue Nov 15, 2016 10:21 pm

Sorry for your bad news, but I'm thinking Avastin will get in there and kick some butt!
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

tarheelmom
Posts: 168
Joined: Mon Mar 07, 2016 5:55 pm

Re: Bad MRI results...

Postby tarheelmom » Tue Nov 15, 2016 11:14 pm

So sorry but lots of prayers that the new plan will work
52 y at dx, mom to 4
DX: RC on 2/22/2016
Stage I, T2N0M0, 0/32 LN
23 mm x 7 mm moderately differentiated invasive adenocarcinoma
3 cm from anal verge
4/12/16: ULAR, TME, & temp ileostomy
6/14/16: ileo reversal

AbbyDoo
Posts: 134
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: Bad MRI results...

Postby AbbyDoo » Wed Nov 16, 2016 2:39 am

Hi BeansMama,
sorry the last cocktail did not work, I hope and pray the new one will.
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Wed Nov 16, 2016 3:38 am

Marylandmaniac wrote:Wow I am so sorry to hear this. Hopefully this new cocktail will work or you can try immunotherapy. Have you taken turkey tail mushroom? It is a supplement you can buy from Amazon. There are so many good reviews on it and NIH has done trials with it for breast cancer with good results. I take it every day. I am not sure if it is just chemo or if it is chemo plus my supplements but I have responded very well to chemo. I take 4 to 6 grams a day. NIH has shown up to 10 grams is not toxic. My doctor is okay with me taking it.

I wish I could give you a big hug. Sending a virtual hug to you.


Thanks for the hug Maryland, I will have to look into the turkey tail and talk to my onc. I currently don't take any supplements for fear of a reaction with my blood thinner. I really should take the time to research what I can take and what I can't. If anything I would think it would help my body rebound from the chemo better.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016


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