Bad MRI results...

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Mon Nov 28, 2016 6:41 am

Lee wrote:
WriterGirl1969 wrote:Just wanted to check in on you, Beans. How's it going? You doing okay? Any changes?
We're thinking about you!!!

Hugs and Prayers,
Tracy


Ditto to what Tracy said. Thinking of you!

(((HUGS)))

Lee


Thanks Lee!

I hope you are doing well. I am hanging in there. Thank you for the hugs, they are always welcome!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Mon Nov 28, 2016 6:43 am

Rob in PA wrote:Thinking of you beans mama. Haven't been on here for a while and just saw. Kick butt!


Thanks Rob! I'm trying but it seems right now that the chemo is winning.

I hope you are doing ok, keeping you in my prayers.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Mon Nov 28, 2016 6:48 am

LPL wrote:Hi BeansMama,
Sending a Lot of warm hugs & positive vibrations to You from France. I've not read here lately, have had an accident (so unable to be the caregiver in our home - in wheelchair now) and I just saw this post/thread.
Have you started the new treatment? If so I hope it is kind to You and terrible to the tumor!!
Kind Regards /LPL
P.S. If I could I would send some of my platelets to you, I have too many...


Oh no LPL! I hope you are ok! I will send extra prayers your way for speedy healing.

I did start the new treatment, it is very hard on me, we need to make some adjustments I think. I just hope it is attacking the tumor like crazy.

I would gladly accept platelets! Mine are very low and keep dropping.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Bad MRI results...

Postby WriterGirl1969 » Tue Nov 29, 2016 12:12 am

BeansMama wrote:I'm hanging in there. We are banding together to get through this, I just hope we can make the upcoming rounds easier.


Yuck. That doesn't sound like much fun at all. I hope they're able to find a better dose or hydration solution for you. Let's hope in going through it that you finally get some results and can get surgery rolling.
More prayers.
More prayers.
:)
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Tue Nov 29, 2016 5:42 am

WriterGirl1969 wrote:
BeansMama wrote:I'm hanging in there. We are banding together to get through this, I just hope we can make the upcoming rounds easier.


Yuck. That doesn't sound like much fun at all. I hope they're able to find a better dose or hydration solution for you. Let's hope in going through it that you finally get some results and can get surgery rolling.
More prayers.
More prayers.
:)


Thank you Tracy! Keeping you and your family in my prayers as well.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Bad MRI results...

Postby LPL » Tue Nov 29, 2016 8:09 am

BeansMama wrote:
Oh no LPL! I hope you are ok! I will send extra prayers your way for speedy healing.


Thank You very much for your prayers - they helped :)
New X-Rays today said my fractures are healing.
Hubby has 6 more Folfox to go and I have 6 more weeks in the wheelchair. I day at a time.

I will pray that this new treatment will help you !!
Kind Regards /LPL
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Tue Nov 29, 2016 10:18 am

LPL wrote:
BeansMama wrote:
Oh no LPL! I hope you are ok! I will send extra prayers your way for speedy healing.


Thank You very much for your prayers - they helped :)
New X-Rays today said my fractures are healing.
Hubby has 6 more Folfox to go and I have 6 more weeks in the wheelchair. I day at a time.

I will pray that this new treatment will help you !!
Kind Regards /LPL


So glad they are healing and there is an end in sight for being wheelchair bound!

Thank you for your prayers, today is my second treatment with the new cocktail, I'm hoping it is making a difference.

Keeping you and your husband in my prayers!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Bad MRI results...

Postby Pita » Tue Nov 29, 2016 7:07 pm

Hi Beans Took a break away from here but I always think about you and the others. Double anti-depressants for me, hope they will work. Chemo is doing good, not resolving nodules as fast as "I'd" like but it is working so I'm thankful for that.
Praying that your new chemo works for you and you move along with surgery and eventually NED! Hugs, prayers and oxo.
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Bad MRI results...

Postby BeansMama » Tue Nov 29, 2016 11:39 pm

Pita wrote:Hi Beans Took a break away from here but I always think about you and the others. Double anti-depressants for me, hope they will work. Chemo is doing good, not resolving nodules as fast as "I'd" like but it is working so I'm thankful for that.
Praying that your new chemo works for you and you move along with surgery and eventually NED! Hugs, prayers and oxo.


Hi Pita,

Sorry you are feeling a bit under the weather, if there is anything I can do please do not hesitate to send me a pm. Even if it is just to listen.

Glad to hear your chemo is going OK, we all understand the frustration of this stinking disease. I get so angry at my tumor for not shrinking. I want it to shrink 50% in the next 2.5 days and it better get it done! (hahaha me as the tumor boss! Tune in next week for the next episode! Our sidekick NED needs a lot of camera time!

I will send extra prayers your way. Praying your nodules start to shrink and disappear as they have been told to do.

Take care of yourself pita,
Beans
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Bad MRI results...

Postby Pita » Wed Nov 30, 2016 3:29 am

Thank you Beans and all you said to me back atcha!!! oxo
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin


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