BrownBagger Update

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sadysue
Posts: 986
Joined: Tue Aug 02, 2011 6:59 pm
Location: Charleston, TN

Re: BrownBagger Update

Postby sadysue » Sat Nov 12, 2016 5:53 pm

Wow, Eric, the powers-that-be are really dealing you a rough hand. I hope your new treatment works and I hope you and you wife get to enjoy the holidays. Commuting into the city can be frustrating (to put it mildly!) but you are in the best possible hands. Best wishes and lots of good luck to you!
Mary Ann
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012
NED

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: BrownBagger Update

Postby Ajane » Sat Nov 12, 2016 8:43 pm

Eric, sorry for all you've been through lately. Glad you are being treated at MSK. Hope and pray this does the trick for you. You're such a trooper and inspiration to us all. My best to you and your wife. Jane
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

Kathy
Posts: 114
Joined: Sat Mar 14, 2009 8:28 pm
Location: New Jersey

Re: BrownBagger Update

Postby Kathy » Sun Nov 13, 2016 7:44 am

Eric,
You are one amazing inspiring person. Keep up the fight.

Kathy
Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008

tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: BrownBagger Update

Postby tammylayne » Sun Nov 13, 2016 10:21 am

So many lessons to be learned from you Eric. The way you handle all the hurdles thrown at you, we could all benefit from that. Wishing you nothing but positive results...and time...oh so much time!!!!! I want to be reading your posts 30 years from now.... :lol:
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

BUD2016
Posts: 60
Joined: Sat Sep 10, 2016 3:25 pm

Re: BrownBagger Update

Postby BUD2016 » Sun Nov 13, 2016 11:46 am

Hello,

I am a new member and I have read many of your posts over the past few months. It is incredible that you have so much compassion for other people in times when you have to deal with personal challenges and how you share your experiences and the learning we get from it. I am truly thankful, humbled and I am sure all will be well.

Cancer diagnosis is no longer a death sentence. It is just a complex chronic decease, which needs to be managed. Like high blood pressure. Just side effects from blood pressure medication is a bit easier ( :) then from current chemo cocktails, which are available. We live in times when technology is developing at light speed. I am no longer too obsessed with "cure" concept. Just chronic decease concept which can be managed until we die from something else (like old age for example).

Thank you.
09/2016: Mom dx/rectal cancer
10/2016: Open surgery. T3N0/Grade 2
11/2016: PET/CT scan shows 5 liver mets in both lobes
11/2016: FOLFOX + Avastin started on her 71st birthday
KRAS gen 2 G13D mutant, BRAF Negative, MSS
03/2017: Oxi stopped after 9th tx, 5FU cntd. CT scans w/ contrast every 2 months - small shrinkage/stable
05/2017: PET/CT progression, started FOLFIRI + AVASTIN
07/2017: MRIs/CT stable
09/2017: MRIs/CT - min progression
09/2017: FOLFIRI + CYRAMZA
11/2017: left us

User avatar
BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: BrownBagger Update

Postby BrownBagger » Sun Nov 13, 2016 12:50 pm

BUD2016 wrote:Hello,

I am a new member and I have read many of your posts over the past few months. It is incredible that you have so much compassion for other people in times when you have to deal with personal challenges and how you share your experiences and the learning we get from it. I am truly thankful, humbled and I am sure all will be well.

Cancer diagnosis is no longer a death sentence. It is just a complex chronic decease, which needs to be managed. Like high blood pressure. Just side effects from blood pressure medication is a bit easier ( :) then from current chemo cocktails, which are available. We live in times when technology is developing at light speed. I am no longer too obsessed with "cure" concept. Just chronic decease concept which can be managed until we die from something else (like old age for example).

Thank you.


I agree with you, BUD. I'm not looking for a cure, just a path forward that keeps me alive and more or less viable. I think it's a race against time, but I guess so is life in so many ways.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

User avatar
horizon
Posts: 1608
Joined: Tue Apr 12, 2011 10:10 pm

Re: BrownBagger Update

Postby horizon » Sun Nov 13, 2016 1:51 pm

That is an unbelievable amount for one person to endure. I wish I could say something to make it better. Keep up the good fight!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 9 years NED). Is this real life?

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: BrownBagger Update

Postby justin case » Sun Nov 13, 2016 2:11 pm

I have no words for your tenacious ability to keep beating your nemesis. May you keep up your good nature, as you continue to KICK ASS !
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: BrownBagger Update

Postby BeansMama » Sun Nov 13, 2016 9:25 pm

BB you are an inspiration to so many of us. I know I read your posts and they give me hope. This disease is a challenge that tests us to the limit of our abilities and you take each hurdle with strength and confidence.

Sending extra prayers your way.
Beans.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

User avatar
Green Tea
Posts: 340
Joined: Mon Oct 24, 2016 10:48 am

Re: BrownBagger Update

Postby Green Tea » Mon Nov 14, 2016 4:35 am

BrownBagger, there are many, many people here, both past and present, who owe a great debt of gratitude to you for your inspiration over the years.
Here's a quote from four years ago that I just ran across the other day. It's from one of our former members, lohidoc

On August 26, 2012, lohidoc wrote: ... There are some extraordinary individuals on this site. There is brownbagger, who has gone through numerous treatments and surgeries, and who gets on his bike and rides 50 miles two weeks after a bilateral thoracotomy. There is skifletch, a science writer who knows more about cancer and chemo than any oncologist. If you want to know if you can go scuba diving while on avastin he will give you the answer. There is Bev, a long term stage 4 survivor, the wife of an Ob/Gyn, who has motherly advice for anyone....etc.


And some of the Newbies here probably don't realize that BrownBagger has kept everybody up to date with regular BrownBagger photos and updates for many years:

Some BrownBagger photos and updates:

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=43343&p=307543#p307543

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=48751&p=370532#p370532

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52391&p=410621#p410614

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=54986&p=435735#p435735

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=46859&p=345228#p345492

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=46724&p=343096#p343096

Video


http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=56429

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=54986

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50599

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50268

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47537

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=44496

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=43343

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=40050

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=35918

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=32080

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=30805

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=27139

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=26379

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=26379

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=22337

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=15468

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=14984

James65
Posts: 383
Joined: Thu Mar 06, 2008 9:41 am
Location: Exeter, NH
Contact:

Re: BrownBagger Update

Postby James65 » Mon Nov 14, 2016 8:50 am

Hey Eric,
This is James in Exeter, NH. Sorry to hear the news. Your strength is incredible though I'm sure there are times it flags and it sounds like you have the love of a great woman, family and friends to pick you up and keep you going.

If you ever just want to talk writing and wood, I'm a current writer and former sawyer for the Forest Service, let me know.

Take care,
James
Diagnosed with stage III rectal tumor (though probably late stage II) January 2006.
Chemo/Radiation
Full APR Surgery
Folfox Chemo
So far NED.
Oops. Liver tumor diagnosed 10/13 after elevated CEA. Liver resection for 5cm tumor 12/6/13. So far so good.
Oops again, one tumor in each lung diagnosed 8/8/16. One too small to deal with and the other resected in late September. Wait and watch for now.
Oops, another lung Met in upper left lobe on edge of previous resection scar 11/11/19.

Bob_Weiss
Posts: 743
Joined: Sun Apr 11, 2010 11:23 am
Location: Brooklyn, NY

Re: BrownBagger Update

Postby Bob_Weiss » Mon Nov 14, 2016 12:58 pm

Good to see a new message from you, even though the message is mixed. I don't often come across new messages from alumni who joined in the 2008-2010 period; although I noticed that BevG. is also among the respondents to your note.
Good luck.
Stage 3 R/C -1 node+ ( 7/09)
5 wks radiation, 2 wks chemo: 5FU (8-9/09)
Rectal surgery: tumor removal (11/09)
10 rounds Xeloda: 3000mg/daily 1 wk on/1 wk off (1/10-6/10)
Supplements: Aspirin, Calcium, Vit. D3
03/27/17: 7+ yrs. since surgery--still NED

User avatar
ktwmn
Posts: 350
Joined: Tue Aug 02, 2011 9:41 am

Re: BrownBagger Update

Postby ktwmn » Mon Nov 14, 2016 1:38 pm

BB--

Wow...Glad they were able to figure things out! And thanks for continuing to hope and inspire members new and old on this list! Keep on keeping on...
Dx 7/11, Stage IIIc CC
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin

User avatar
trapbear
Posts: 74
Joined: Mon May 10, 2010 12:53 pm
Facebook Username: bill manning

Re: BrownBagger Update

Postby trapbear » Mon Nov 14, 2016 3:43 pm

HI Eric,
So sorry to read about your latest adventures with this horrible disease. Hang in there, you are a real inspiration to so many people. I love your attitude and your current cocktail! Hugs to you and your family.
Bill
Husband Dx with Stage 3 CC in Dec 07
Xelox Jan-July 08
Lung mets Jan 09
Folfiri plus Avastin Mar-May 10
5FU plus Avastin May 10-current
2 liver mets March 13, continue 5 FU & Avastin
liver RFA Oct 13, hospice June 14, at peace Sept 2, 2014

teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: BrownBagger Update

Postby teachpdx » Mon Nov 14, 2016 4:01 pm

Hey BB - sorry to hear about your difficulties. You are one tough mother. God bless you. I've been thinking about you and gardening and wood stacking. Wondering where your pictures were. I see you had other priorities and I'm thankful you checked in. May the force be with you.

Peace,

Kristi
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!


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