Clear Scans!!! :)

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DarknessEmbraced
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Location: New Brunswick, Canada

Clear Scans!!! :)

Postby DarknessEmbraced » Thu Nov 10, 2016 1:15 pm

I was finally able to find out today that my ct scans were clear!! So I'm still NED two years after diagnosis. I'm still having cramping, pain, bad bloating, gas especially during my period. I'm trying to get a hold of the gynecologist to find out if my pelvic scans showed fibroids, endoemetriosis or anything else that would make my periods more painful.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: Clear Scans!!! :)

Postby lpas » Thu Nov 10, 2016 1:22 pm

Yay!!!! So glad you finally got your results. Congrats on 2 years cancer-free!!
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

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mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: Clear Scans!!! :)

Postby mypinkheaven » Thu Nov 10, 2016 1:34 pm

Good news!! :D
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Clear Scans!!! :)

Postby chrissyrice » Thu Nov 10, 2016 7:23 pm

:D :D :D

Happy Dance for you! Enjoy everyday of NEDSVILLE :D :D :D

Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

Thetoad
Posts: 165
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: Clear Scans!!! :)

Postby Thetoad » Thu Nov 10, 2016 7:48 pm

Yes! Great to read your news!
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Clear Scans!!! :)

Postby fumaros » Thu Nov 10, 2016 7:55 pm

wonderful news. am happy for you.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Clear Scans!!! :)

Postby HopeForJesse » Thu Nov 10, 2016 8:17 pm

Thanks for sharing your good news and congratulations. :D :D Hope they can figure your other issues out ASAP and you get relief.
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

Violet
Posts: 18
Joined: Mon Aug 15, 2016 6:43 am

Re: Clear Scans!!! :)

Postby Violet » Thu Nov 10, 2016 8:33 pm

Congratulations! Must be a big weight off your shoulders:)

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Clear Scans!!! :)

Postby BeansMama » Thu Nov 10, 2016 9:10 pm

Congratulations on 2 years NED!!! That is awesome news!

I will keep praying they figure out your other issues and you get some relief (HUGS)
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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CRguy
Posts: 10240
Joined: Sun Feb 10, 2008 6:00 pm

Re: Clear Scans!!! :)

Postby CRguy » Thu Nov 10, 2016 9:19 pm

DarknessEmbraced wrote:I was finally able to find out today that my ct scans were clear!! So I'm still NED two years after diagnosis. I'm still having cramping, pain, bad bloating, gas especially during my period. I'm trying to get a hold of the gynecologist to find out if my pelvic scans showed fibroids, endoemetriosis or anything else that would make my periods more painful.

DAMN :!:

You had me at CLEAR SCANS !!!!!!!! :mrgreen:

I shall leave your "lady parts" discussions to our eminent staff of ladies here... :shock:

BUTT DAMN .....
You had me at CLEAR SCANS !!!!!!!!

Mega Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3520
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Clear Scans!!! :)

Postby DarknessEmbraced » Thu Nov 10, 2016 11:10 pm

Thanks everyone! It is a huge weight off my shoulders!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Willow.NZ
Posts: 176
Joined: Sun Mar 08, 2015 3:05 am

Re: Clear Scans!!! :)

Postby Willow.NZ » Fri Nov 11, 2016 3:33 am

That is fantastic news :D
Dad diagnosed Sept 14 Stage IV. Age 57yrs. Transverse colon - spread to Retroperitoneal, Mesenteric & Supraclavicular lymph nodes. Folfiri commenced Sept 14.
April 15 - Bowel resection
August 15, stable scan
Feb 16 - No signs of cancer on scan...stop chemo & scan in 3 month
Scan April 16, Crazy growth to stomach, lymph nodes & multiple mets to liver. Commencing Folfox.
August: chemo not working. Stopped treatment.
September 3rd 2016 peacefully left this earth.

LaciK
Posts: 62
Joined: Mon Oct 12, 2015 2:10 pm

Re: Clear Scans!!! :)

Postby LaciK » Fri Nov 11, 2016 5:04 am

Congrats! Hopefully they can figure out the answer to your new symptoms. Once you have been through this experience, I guess any new emerging issues are that much more difficult to deal with. Personally I feel like my life is a puzzle and I have to find the doctors who have the various puzzle pieces. I hope you get the answers you need to feel better soon.
DX 9/23/15 rc (age 50)
CT & EUS revealed T3N1 Stage 3b
Chemo/Radiation Oct/Nov 2015
LAR 1/15/16 w/temp ilieostomy
Xelox 3/17/16 - 2 rounds then paused for ilieostomy reversal 4/22/16
& to Clear up C. Diff infection
Restart Xelox 5/19/16 - Final infusion 7/21/16
Finish Xelox (oral Xeloda) 8/3/16
8/17/16 CMP & CBC normal; CEA Zero!
9/26/16 Colonoscopy clear
10/5/16 CT clear

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Clear Scans!!! :)

Postby Maia » Fri Nov 11, 2016 7:15 am

DarknessEmbraced wrote: So I'm still NED two years after diagnosis.


Yes! Enjoy, enjoy. Thank you for sharing : )

testing765
Posts: 316
Joined: Tue Aug 19, 2014 9:41 am

Re: Clear Scans!!! :)

Postby testing765 » Fri Nov 11, 2016 7:52 am

I like to hear these encouraging reports.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9


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