I wouldn't call myself "long-term" NED but have definitely had some scares. My initial CT (at diagnosis) showed both a liver and a lung spot. After a follow-up MRI, they said the liver spot (9mm) was most likely a hemangioma, and the lung spot (4mm) a calcified granuloma. I worried anyway for a while but neither area has changed much since diagnosis--no growth and no shrinkage during chemo--so am now fairly confident the diagnosis was correct. I also had some issues with bad pelvic pain earlier this year, which turned out to be an ovarian mass. That had me pretty scared since the ovary is one of those sites where CRC likes to go. Thankfully my blood markers seemed stable and pathology ID'ed it as a fibroid. Most recently I had an episode of rectal bleeding that left me convinced I had some sort of local recurrence. The colonoscopy showed it was just a hemorrhoid. I think cancer has turned me into a total hypochondriac.
11/14: Dx sigmoid CC @ 45yo
12/14: laparoscopic colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS (A146T), TP53, SMAD4, ERBB2, pre-surgical CEA 1.0
2/15 to 7/15: XELOX, celecoxib & many supplements
3/16: Ovarian mass, rt ovary removed. Benign fibroid.
9/16: clean colonoscopy
3/17: clean CT
Post-chemo CEA: 3.0, 2.5, 2.3, 2.0, 1.6, 1.3, 1.8, 2.1, 1.8, 2.0, 1.8, 1.9, 1.7, 1.5, 1.6, 1.5, 1.4, 1.4, 1.3, 1.3
Mom to a 3 & 5-year-old