Scans tomorrow-Updated

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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Scans tomorrow-Updated

Postby DarknessEmbraced » Mon Oct 17, 2016 7:59 am

My yearly ct scans are tomorrow. I drink some gastrografin mixed with juice tonight, more an hour before my scans and the rest half an hour before my scans. I have to take two 50mg doses of prednisone 12 hours apart today, 50mg of prednisone the morning of my scans. I also have to take 50mg of Benadryl before my scans because of a severe allergy to ct contrast dye. I am always nervous when they inject the contrast but so far the prednisone and Benadryl have prevented any reaction. Gastrografin usually gives me diarrhea after my scans. Last year I had to wait 15 days before seeing my GI surgeon for the results of my scans. I see him whether the news is good or bad. I expect to wait at least 15 days or longer for my results. Good luck to anyone else scanning in October!
Last edited by DarknessEmbraced on Tue Oct 18, 2016 2:34 pm, edited 1 time in total.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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ABMom
Posts: 54
Joined: Sat Sep 10, 2016 6:04 pm
Location: Calgaryish

Re: Scans tomorrow

Postby ABMom » Mon Oct 17, 2016 10:27 am

Best of luck tomorrow! I hope everything goes smoothly and you get into the GI to get your good news results as soon as possible!!
39 Stage 1 RC
T2N0Mx - 2016-10-07
LAR - 2016-11-01
Illeo-reversal - 2017-01-27
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scans tomorrow

Postby DarknessEmbraced » Mon Oct 17, 2016 10:33 am

Thank you. I hope so too but everything is slow here. They don't email or fax the results report. They mail it to the doctor. The mail isn't sorted here. It's sent to another city an hour and a half away and then sent back. So it can take a couple of weeks or longer for the doctors to get the results. Then it's hard to get in to see my GI surgeon because he's always booked up and is only in his office limited hours most days.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:
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Re: Scans tomorrow

Postby mypinkheaven » Mon Oct 17, 2016 11:48 am

Good luck! :D
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping
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Buckeye
Posts: 109
Joined: Mon Jan 18, 2016 7:02 pm

Re: Scans tomorrow

Postby Buckeye » Mon Oct 17, 2016 12:03 pm

Hope all is well. I just had my annual a week ago. Haven't heard anything yet. I hate this waiting and the anxiety that goes with it.
Dx 10/20/15 stage 1 T1N0M0 1.3cmx1.1cmx1cm low grade ( well to moderately differentiated) Rectal cancer age 47
Loving Husband and father of two girls age 19 & 15 Sole income provider
CEA <0.5
CT, MRI and PET show no metastatic spread
LAR Laparoscopic TME 11/30/15 with Illo
Pathology clean no lymph node or vascular involvement. Confirmed Stage1
No chemo/rad cancer free now and forever.
Illo reversal 01/26/16
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scans tomorrow

Postby DarknessEmbraced » Mon Oct 17, 2016 12:33 pm

Thanks mypinkheaven and Buckeye! I hope you get your results soon Buckeye! Waiting is so hard!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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testing765
Posts: 324
Joined: Tue Aug 19, 2014 9:41 am

Re: Scans tomorrow

Postby testing765 » Mon Oct 17, 2016 4:13 pm

Good luck with your scans. Waiting is hard. I'm not sure if the protocol is different in Canada than in the US, but I physically go to the CT scan facility 24 to 48 hours after the scan and get a copy of the ct scan on cd and the radiologist's report. You can as them about whether you can do that.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scans tomorrow

Postby DarknessEmbraced » Mon Oct 17, 2016 4:37 pm

Thanks testing! Unfortunately all ct scans are done at our local hospital. Results can take 8 to 10 days. CDS aren't available. I don't get copies of my results. My doctors get reports.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Scans tomorrow

Postby BeansMama » Mon Oct 17, 2016 7:37 pm

Good luck on your scans! I will send some extra prayers your way hugs!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016
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jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Scans tomorrow

Postby jhocno197 » Mon Oct 17, 2016 7:41 pm

Hoping you have clear scans!
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Scans tomorrow

Postby CRguy » Mon Oct 17, 2016 9:18 pm

Sending you MEGA ++++++ posi vibes and CHEERS for good scannin'

Best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scans tomorrow

Postby DarknessEmbraced » Mon Oct 17, 2016 9:51 pm

Thank you jhocno and CRguy! Unfortunately 4 hours after drinking 500ml of gastrographin mixed with my cranberry juice I have horrible cramping and diarrhea. Last year I didn't get diarrhea until after my scans. I still to drink over another 250ml tomorrow. :( I can't take immodium because even one pill would cause me to be constipated for days. I hope I will be able to sleep tonight.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Scans tomorrow

Postby teri3 » Mon Oct 17, 2016 9:56 pm

Prayers and a couple big hugs :D I had my scans today to see how the Folfiri+avistin is working. Hopefully we both get good news.
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scans tomorrow

Postby DarknessEmbraced » Mon Oct 17, 2016 10:02 pm

Thanks teri. I hope you get good news too! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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Stewsbetty
Posts: 170
Joined: Thu Jul 14, 2016 7:08 am

Re: Scans tomorrow

Postby Stewsbetty » Tue Oct 18, 2016 12:20 am

Hello Darkness,

Fellow Canadian here but on the other end of the country. Hope all goes well tomorrow. One thing a nurse friend suggested to me was to book my Dr. appt for about 7 days after the CT. That way I don't have to wait for them to call and then have to wait another week for an opening. On this end of the country the reports are usually in to the Dr in 7 days. :) Hope to hear that you have a positive scan.

Beth
42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!
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