6 months after surgery and Cancer is back?!

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dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

6 months after surgery and Cancer is back?!

Postby dmondgirl » Mon Oct 10, 2016 12:06 pm

Hello Everyone,

My fiance had surgery back in March 2016, due to an internal leakage he had a drainage for 5 months... finally removed on 8/23/16.

He had his LAR ( rectum and sigmoid resection).
Below the final Report:

- Minute foci of residual invasive moderately differentiated adenocarcinoma, 0.1 cm
- Tumor invades into the muscular propria (T2)
- 1 out of 17 lymph nodes are positive for metastatic adenocarcicoma (N1a)
- Lymphovascular and perneural invasion is not identifies.
- resection margins are free of tumor
- Proximal donut, excision: colonic ring negative for malignancy
- Distal donut, excision: colonic ring negative for malignancy
- Tumor location (applicable only to rectal primaries): posterior wall
-Macroscopic Tumor perforation : absent
- macroscopic intactness of mesorectum: intact
- peritumor lymphotic response (crohn-like response): absent
- Treatment effect: > 50%
-Tumor deposit: absent

On September 13 he has a pelvic/ abdominal ct scan with and without contrast and nothing came back abnormal... only thing they noticed was inflammation in the respected area. Last Monday he had a colonoscopy done and the surgeon couldn't pass thru an area and did a biopsy.... we went to see the surgeon today and the results came back positive for cancer cell!

I am so lost and confused!!! My poor fiancé is sad and crying. His surgeon and oncologist are in shock!!!! The surgeon want to do surgery and he told us that he will have a permananent colostomy..

Why is this happening my Lord :(
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable

User avatar
Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: 6 months after surgery and Cancer is back?!

Postby Maggie Nell » Mon Oct 10, 2016 12:34 pm

In the Book of Genesis, when God proclaims, ''It is not good for man to be alone'', He decides to make for him ''a helper against him''. That's a literal translation. The partner is not to be a yes-person, or even someone to complement him. No. The partner is someone who stands opposite, to find the vital creativity that is born of dialectic tension ~ Chaya Devorah bat Chana, The Darkest Hour



When are you going to progress from fiancee to wife? You were engaged in July 2015 when he was diagnosed...what's the hold-up?




Quote sourced from
http://www.btsurvivor.com/bb/viewtopic. ... 3&start=45
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

ronnieciao
Posts: 95
Joined: Sat Nov 08, 2014 1:58 pm
Location: Northern Italy and UK

Re: 6 months after surgery and Cancer is back?!

Postby ronnieciao » Mon Oct 10, 2016 12:41 pm

Maggie Nell wrote:
In the Book of Genesis, when God proclaims, ''It is not good for man to be alone'', He decides to make for him ''a helper against him''. That's a literal translation. The partner is not to be a yes-person, or even someone to complement him. No. The partner is someone who stands opposite, to find the vital creativity that is born of dialectic tension ~ Chaya Devorah bat Chana, The Darkest Hour



When are you going to progress from fiancee to wife? You were engaged in July 2015 when he was diagnosed...what's the hold-up?

Quote sourced from
http://www.btsurvivor.com/bb/viewtopic. ... 3&start=45



How is this any of your business?
DD of Mum, 53
Diagnosed CC Stage IVb, October 2014
Mets to liver, peri, ovaries, bones
Folfox + Panitumumab
5fu+Panitumumab
Folfiri + Avastin
Cetuximab monotherapy
Immunotherapy: Tecenriq (Atezolizumab) single agent trial: failed
Left us Feb 2017

stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: 6 months after surgery and Cancer is back?!

Postby stu » Mon Oct 10, 2016 1:02 pm

Hi.
I am so sorry to hear that. This disease throws awful stuff at the people we love. Whilst it is a situation that requires more treatment I am still holding out for him that this will be the end of his trouble and something consigned to the past. Hold him tight.
Much love,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

testing765
Posts: 324
Joined: Tue Aug 19, 2014 9:41 am

Re: 6 months after surgery and Cancer is back?!

Postby testing765 » Mon Oct 10, 2016 1:15 pm

I am very sorry to hear about this. I can understand why you would both feel devastated. I hope that your fiancee's next fight against against the cancer monster is the fight that kills the cancer for good.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

User avatar
mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: 6 months after surgery and Cancer is back?!

Postby mypinkheaven » Mon Oct 10, 2016 1:16 pm

I'm so sorry you two are going through this. We all ask why and there's really no answer. I know it must be terribly disappointing to your partner about the permanent colostomy. But many people live full lives with them. Best wishes to you both.
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: 6 months after surgery and Cancer is back?!

Postby jhocno197 » Mon Oct 10, 2016 1:36 pm

I am so sorry. It is devastating.


Colostomies are not so bad.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

User avatar
Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: 6 months after surgery and Cancer is back?!

Postby Maggie Nell » Mon Oct 10, 2016 2:11 pm

For those of you who cannot see the forest for the trees.....the OP shares this:

I am so lost and confused!!! My poor fiancé is sad and crying. His surgeon and oncologist are in shock!!!!

I am suggesting that advancing the plans to marry and introducing a JOYFUL event, supported and surrounded by friends
and family will be something that this couple can have control over and why should cancer derail everything?!
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

zx10guy
Posts: 233
Joined: Mon Jan 07, 2013 12:54 pm

Re: 6 months after surgery and Cancer is back?!

Postby zx10guy » Mon Oct 10, 2016 2:55 pm

dmondgirl,

So sorry about what is going on with your fiance and you. If you want, feel free to contact me via private messaging. I have some personal perspective on your situation as I went through it. I was the cancer survivor and my fiance was the caregiver. While I didn't have a recurrence so soon after my initial diagnosis, I did recently deal with what is probably going to be considered as a new primary.

Hang in there.

User avatar
mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: 6 months after surgery and Cancer is back?!

Postby mypinkheaven » Mon Oct 10, 2016 3:16 pm

Maggie Nell wrote:For those of you who cannot see the forest for the trees.....


I'm sure you mean well, but dealing with a potential blockage ("Last Monday he had a colonoscopy done and the surgeon couldn't pass thru an area"), surgery and recovery might not be the most opportune time to plan a wedding, especially since we have no idea of their marriage plans. And would "dialectic tension" help in anyway? They're working together for a solution to his serious problem, which should be based on science and not vital creativity. I may be wrong.

dmondgirl, we are here to support you and your partner and these extraneous posts should be ignored.
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

testing765
Posts: 324
Joined: Tue Aug 19, 2014 9:41 am

Re: 6 months after surgery and Cancer is back?!

Postby testing765 » Mon Oct 10, 2016 3:36 pm

Maggie Nell wrote:For those of you who cannot see the forest for the trees.....the OP shares this:

I am so lost and confused!!! My poor fiancé is sad and crying. His surgeon and oncologist are in shock!!!!

I am suggesting that advancing the plans to marry and introducing a JOYFUL event, supported and surrounded by friends
and family will be something that this couple can have control over and why should cancer derail everything?!


I can see the forest and the trees. I am sure you meant well, but what you wrote sounded very judgemental, like you were telling the original poster what she should do, and judging her for not doing it sooner. I did not find you to offer anything helpful or useful or caring to the original poster. Just try and put yourself in the shoes of the original poster before you submit your posts.

Dmondgirl- I am wishing you and your fiancee the best during this very difficult time. I can only imagine how torn up you must be.
Last edited by testing765 on Mon Oct 10, 2016 3:46 pm, edited 1 time in total.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

Re: 6 months after surgery and Cancer is back?!

Postby dmondgirl » Mon Oct 10, 2016 3:37 pm

stu wrote:Hi.
I am so sorry to hear that. This disease throws awful stuff at the people we love. Whilst it is a situation that requires more treatment I am still holding out for him that this will be the end of his trouble and something consigned to the past. Hold him tight.
Much love,
Stu



Thank you for your encouraging words ... :)
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable

dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

Re: 6 months after surgery and Cancer is back?!

Postby dmondgirl » Mon Oct 10, 2016 3:37 pm

zx10guy wrote:dmondgirl,

So sorry about what is going on with your fiance and you. If you want, feel free to contact me via private messaging. I have some personal perspective on your situation as I went through it. I was the cancer survivor and my fiance was the caregiver. While I didn't have a recurrence so soon after my initial diagnosis, I did recently deal with what is probably going to be considered as a new primary.

Hang in there.



Thank you I message you .. thanks again
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable

dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

Re: 6 months after surgery and Cancer is back?!

Postby dmondgirl » Mon Oct 10, 2016 3:42 pm

testing765 wrote:I am very sorry to hear about this. I can understand why you would both feel devastated. I hope that your fiancee's next fight against against the cancer monster is the fight that kills the cancer for good.


Thank you for you kind words and yes after crying and getting mad we are now reloading to fight this ugly
Diseases so that it will never come back again!
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable

dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

Re: 6 months after surgery and Cancer is back?!

Postby dmondgirl » Mon Oct 10, 2016 3:44 pm

mypinkheaven wrote:I'm so sorry you two are going through this. We all ask why and there's really no answer. I know it must be terribly disappointing to your partner about the permanent colostomy. But many people live full lives with them. Best wishes to you both.


I agree about the colostomy and as long as he has a healthy life again I don't mind having to help him with the colostomy. Thank you for your words
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable


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