6 months after surgery and Cancer is back?!

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dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

Re: 6 months after surgery and Cancer is back?!

Postby dmondgirl » Mon Oct 10, 2016 3:45 pm

jhocno197 wrote:I am so sorry. It is devastating.


Colostomies are not so bad.



I understand colostomies are not bad ... I think we still in shock like his doctors about this stupid finding so soon
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable

zx10guy
Posts: 233
Joined: Mon Jan 07, 2013 12:54 pm

Re: 6 months after surgery and Cancer is back?!

Postby zx10guy » Mon Oct 10, 2016 3:46 pm

dmondgirl wrote:
zx10guy wrote:dmondgirl,

So sorry about what is going on with your fiance and you. If you want, feel free to contact me via private messaging. I have some personal perspective on your situation as I went through it. I was the cancer survivor and my fiance was the caregiver. While I didn't have a recurrence so soon after my initial diagnosis, I did recently deal with what is probably going to be considered as a new primary.

Hang in there.



Thank you I message you .. thanks again


I got a notification you sent me a PM but I can't see anything in my inbox. The email notification doesn't have your full message in it.

Can the mods look into this?

Thanks.

dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

Re: 6 months after surgery and Cancer is back?!

Postby dmondgirl » Mon Oct 10, 2016 3:48 pm

zx10guy wrote:
dmondgirl wrote:
zx10guy wrote:dmondgirl,

So sorry about what is going on with your fiance and you. If you want, feel free to contact me via private messaging. I have some personal perspective on your situation as I went through it. I was the cancer survivor and my fiance was the caregiver. While I didn't have a recurrence so soon after my initial diagnosis, I did recently deal with what is probably going to be considered as a new primary.

Hang in there.



Thank you I message you .. thanks again


I got a notification you sent me a PM but I can't see anything in my inbox. The email notification doesn't have your full message in it.
B
Can the mods look into this?

Thanks.



Can you try to message me? I don't know how to send private messages here sorry is my first time sending a private message
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 6 months after surgery and Cancer is back?!

Postby DarknessEmbraced » Mon Oct 10, 2016 6:34 pm

I'm so sorry you and your fiance are going through this!*hugs* I hope his treatment goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

O/T reply : PM message problem

Postby CRguy » Mon Oct 10, 2016 7:10 pm

dmondgirl wrote:Can you try to message me? I don't know how to send private messages here sorry is my first time sending a private message

zx10guy wrote:I got a notification you sent me a PM but I can't see anything in my inbox. The email notification doesn't have your full message in it.
Can the mods look into this?
Make sure NONE of your PM folders are full to 100%, if ANY are full you cannot send/receive PMs on the forum

Try to send /receive on a computer/laptop NOT a mobile device.

Try to use an email instead of PM until we get this figured out :
inside a member's post on the forum ( you MUST be logged in ) under their name is the contact icon.
Click it and you will see 1 choice to send a PM, and if the member allows emails you will see a second choice.

enter a subject and then your message and send it.

Mods cannot "see" members PM screens or change permissions or access them to help you ...
so you need to make contact on your own through one of the two mentioned routes in addition to posting directly to the forum.

CRguy

Nik Colon

Re: 6 months after surgery and Cancer is back?!

Postby Nik Colon » Mon Oct 10, 2016 9:10 pm

I am very sorry to hear this. Hugs and best wishes to both of you

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: 6 months after surgery and Cancer is back?!

Postby BeansMama » Mon Oct 10, 2016 9:24 pm

So sorry to hear this, keeping both of you in my thoughts and prayers.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: 6 months after surgery and Cancer is back?!

Postby Ajane » Mon Oct 10, 2016 11:31 pm

I'm sorry for the blindside. Cancer can be so unfair and unpredictable. Keeping you both in my thoughts and prayers.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: 6 months after surgery and Cancer is back?!

Postby Deb m » Tue Oct 11, 2016 11:59 am

Sorry you got news you didn't want to hear. I always try and focus on anything good and am thinking that it's good that the cancer didn't show anywhere else on the ct scan. Hopefully surgery will be all that needed. I know that probably doesn't make you feel any better now. I will be keeping you in my prayers as I do everybody on this message board.

deb m


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