1 minute with dr k= good news!

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

1 minute with dr k= good news!

Postby HopeForJesse » Wed Oct 05, 2016 2:41 pm

Happy to report clean CT scans 3 months post-op :D Learned that when Dr Kemeny only spends less than a minute with you and reports good scans, there is nothing left to say. All good news - praise God and keep fighting!
Last edited by HopeForJesse on Thu Oct 06, 2016 8:26 pm, edited 1 time in total.
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 1 minute with dr k= good news!

Postby DarknessEmbraced » Wed Oct 05, 2016 2:51 pm

Wonderful news! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

crazylife
Posts: 255
Joined: Wed Dec 30, 2015 11:29 am

Re: 1 minute with dr k= good news!

Postby crazylife » Wed Oct 05, 2016 3:24 pm

Ahmazing news!! So, next check-up in 3 months? Time for a party ;)
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

jortego128
Posts: 288
Joined: Sat Aug 15, 2015 7:47 am

Re: 1 minute with dr k= good news!

Postby jortego128 » Wed Oct 05, 2016 4:19 pm

Incredible. I remember the first day you came to the forum. They said he was unresectable, you went to MSK, they did HAI and resected and here Jesse is NED. Im so glad for you, but my God I wish we had gotten second opinion on my mom early on. She was also dx'ed unresectable.
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

mom_2_3
Posts: 361
Joined: Sat Nov 29, 2008 8:09 pm

Re: 1 minute with dr k= good news!

Postby mom_2_3 » Wed Oct 05, 2016 9:29 pm

What wonderful news!
CC discovered during c-section (11/4/08)
Diagnosed Stage IV 11/10/08 -- Happy 39th Birthday! 5 bilobar liver mets
02/09: Colectomy, liver resection, HAI pump implanted, 7 of 42 nodes
7 months of FUDR and 5FU ended 11/2/09
10 years NED.

Nik Colon

Re: 1 minute with dr k= good news!

Postby Nik Colon » Wed Oct 05, 2016 9:38 pm

Great news!

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: 1 minute with dr k= good news!

Postby Pita » Thu Oct 06, 2016 1:30 am

Fantastic news Mary!!! ox
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: 1 minute with dr k= good news!

Postby HopeForJesse » Thu Oct 06, 2016 8:27 pm

crazylife wrote:Ahmazing news!! So, next check-up in 3 months? Time for a party ;)

Thanks - yes - 3 months - very grateful to head into holidays with some stability and more hope!
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

User avatar
HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: 1 minute with dr k= good news

Postby HopeForJesse » Thu Oct 06, 2016 8:36 pm

jortego128 wrote:Incredible. I remember the first day you came to the forum. They said he was unresectable, you went to MSK, they did HAI and resected and here Jesse is NED. Im so glad for you, but my God I wish we had gotten second opinion on my mom early on. She was also dx'ed unresectable.

Thanks for the support but please don't be hard on yourself. I still get regretful thoughts that I did not encourage him to get colonoscopies earlier when I myself had 1 in 2008 and another in 2012 due to issues and family history. We ignorantly thought his family had no cancer history and made bad assumptions. I mean seriously he drove and picked me up 2x. Right place - wrong person in the bed.

I hope you are comforted in time with happy memories!
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

mariane
Posts: 687
Joined: Sun Sep 13, 2015 6:16 pm

Re: 1 minute with dr k= good news!

Postby mariane » Thu Oct 06, 2016 9:29 pm

Congrats!!!! Fantastic news! Answer to our prayers!
mom of now 12 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

crazylife
Posts: 255
Joined: Wed Dec 30, 2015 11:29 am

Re: 1 minute with dr k= good news

Postby crazylife » Fri Oct 07, 2016 12:12 pm

HopeForJesse wrote:
jortego128 wrote:Incredible. I remember the first day you came to the forum. They said he was unresectable, you went to MSK, they did HAI and resected and here Jesse is NED. Im so glad for you, but my God I wish we had gotten second opinion on my mom early on. She was also dx'ed unresectable.

Thanks for the support but please don't be hard on yourself. I still get regretful thoughts that I did not encourage him to get colonoscopies earlier when I myself had 1 in 2008 and another in 2012 due to issues and family history. We ignorantly thought his family had no cancer history and made bad assumptions. I mean seriously he drove and picked me up 2x. Right place - wrong person in the bed.

I hope you are comforted in time with happy memories!



Same here! I told DH to get a colonoscopy when he turned 40 just because. Maybe it was a gut feeling, who knows. He didn't want to and I didn't push it. At 41 1/2, stage IV colon cancer. I hate myself sometimes for not pushing harder.
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

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Cowgirl918
Posts: 319
Joined: Sun Jan 17, 2016 12:55 am
Location: Indiana

Re: 1 minute with dr k= good news!

Postby Cowgirl918 » Fri Oct 07, 2016 1:33 pm

Such awesome news. Celebration time!
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80% removed
5/29/2016 Compressed lumbar spinal fracture (riding accident)
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
10/18/16 Autoimmune Diseases confirmed

Cfbiff
Posts: 50
Joined: Mon Jan 18, 2016 12:04 am

Re: 1 minute with dr k= good news!

Postby Cfbiff » Sat Oct 08, 2016 9:04 pm

Congratulations.....and it was nice to meet you at the appts. Such good news!
7/15 dx colon cancer stage 4, mets to liver age 46
Cea 1700
8/15 folfox
1/16 cea 47
2/7 began consults with Dr Kemeny about liver pump.
2/16 FOLFIRI /started
3/7 laparoscopy showed no cancer in abdomen
3/2016 began folfirinox and asked again about hai pump
5/16 CEA 186
6/16. colon resection and HAI pump, 15/33 lymph nodes, margins clear
7/16 FUDR began. CEA 300+
8/16 FUDR 2nd treatment and FOLFIRI systemic restart. CEA 400+
9/6 added mitomycin to pump.
10/5 CEA coming down

jens22
Posts: 1012
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: 1 minute with dr k= good news!

Postby jens22 » Sat Oct 08, 2016 9:39 pm

I'm so glad you found each other. Stay well.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: 1 minute with dr k= good news!

Postby BeansMama » Sun Oct 09, 2016 5:47 am

Congratulations! Prayers he keeps having clean scans and remains NED!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016


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