Nerves setting in...

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Pathfindergrl28
Posts: 119
Joined: Mon Dec 08, 2014 12:35 pm
Location: East coast, USA

Nerves setting in...

Postby Pathfindergrl28 » Mon Oct 03, 2016 2:18 pm

I'm 36/F. I am scheduled for my colonoscopy this month on the 21st, and I'm already getting nervous.... :| I had one in December 2014 where my doctor found a benign tubulovillous adenoma. It was 12 mm. He is a great GI doctor, nice bedside manner, did great with my last scope. I did have a little bleeding for a couple of days though because of the polypectomy & hemorrhoid banding which cleared up.

He wanted to do a follow up scope in 3 years, but I pushed him to do it earlier due to my age, so it will be almost 2 years this month. I'm wondering if I'm getting it done too earlier?? I don't want to do unnecessary medical procedures, but where I had this type of polyp so young want to be cautious as well. I also dread drinking the movi-prep :( Moviprep is what my doctor recommends. I did ok with it, but hated the flavor.
36/F
Genetic high BP since age 22 (currently on Bystolic)
Wife, mom of two girls
Colonoscopy 12/1/14: DX with 12 mm Tubulovillous adenoma polyp (benign), & diverticulosis in colon, Lynch negative
Colonoscopy 10/21/16: Clear colonoscopy, diverticulosis

"Don't worry about anything, instead, pray about everything. Tell God what you need, and thank Him for all He has done." Philippians 4:6

DarknessEmbraced
Posts: 3579
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Nerves setting in...

Postby DarknessEmbraced » Mon Oct 03, 2016 2:53 pm

I think it's fine that you are having a follow up colonoscopy a little sooner because of the type of polyp and your age. I hope that your prep and colonoscopy go well!*hugs* Maybe others have suggestions to help with taking the movi-prep. *hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Pathfindergrl28
Posts: 119
Joined: Mon Dec 08, 2014 12:35 pm
Location: East coast, USA

Re: Nerves setting in...

Postby Pathfindergrl28 » Mon Oct 03, 2016 3:23 pm

Thanks so much Darkness embraced :)
36/F
Genetic high BP since age 22 (currently on Bystolic)
Wife, mom of two girls
Colonoscopy 12/1/14: DX with 12 mm Tubulovillous adenoma polyp (benign), & diverticulosis in colon, Lynch negative
Colonoscopy 10/21/16: Clear colonoscopy, diverticulosis

"Don't worry about anything, instead, pray about everything. Tell God what you need, and thank Him for all He has done." Philippians 4:6

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Nerves setting in...

Postby jhocno197 » Mon Oct 03, 2016 9:59 pm

I think you're doing the right thing :).
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Pathfindergrl28
Posts: 119
Joined: Mon Dec 08, 2014 12:35 pm
Location: East coast, USA

Re: Nerves setting in...

Postby Pathfindergrl28 » Tue Oct 04, 2016 6:41 am

Thanks jhocno, I hope so :) I'll keep you guys updated...
36/F
Genetic high BP since age 22 (currently on Bystolic)
Wife, mom of two girls
Colonoscopy 12/1/14: DX with 12 mm Tubulovillous adenoma polyp (benign), & diverticulosis in colon, Lynch negative
Colonoscopy 10/21/16: Clear colonoscopy, diverticulosis

"Don't worry about anything, instead, pray about everything. Tell God what you need, and thank Him for all He has done." Philippians 4:6

testing765
Posts: 316
Joined: Tue Aug 19, 2014 9:41 am

Re: Nerves setting in...

Postby testing765 » Tue Oct 04, 2016 6:48 am

Hello Pathfindergrl28. I plan on having the same conversation with my oncologist next week. Good luck with everything.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

Pathfindergrl28
Posts: 119
Joined: Mon Dec 08, 2014 12:35 pm
Location: East coast, USA

Re: Nerves setting in...

Postby Pathfindergrl28 » Tue Oct 04, 2016 9:13 am

Thanks... It's good you are staying on top of things too. Prayers that your upcoming tests are all clear as well. I'm just stressed out this month on top of everything! lol I was just hired on at a new work from home job nursing and am currently in training. I Have to pass a test to keep employment which is coming up soon. Plus upcoming colonoscopy, my head feels like it will pop from stress!! :shock: lol Keep us updated as well...
36/F
Genetic high BP since age 22 (currently on Bystolic)
Wife, mom of two girls
Colonoscopy 12/1/14: DX with 12 mm Tubulovillous adenoma polyp (benign), & diverticulosis in colon, Lynch negative
Colonoscopy 10/21/16: Clear colonoscopy, diverticulosis

"Don't worry about anything, instead, pray about everything. Tell God what you need, and thank Him for all He has done." Philippians 4:6

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mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: Nerves setting in...

Postby mypinkheaven » Tue Oct 04, 2016 12:30 pm

Pathfindergrl28 wrote: I was just hired on at a new work from home job nursing and am currently in training. I Have to pass a test to keep employment which is coming up soon. Plus upcoming colonoscopy, my head feels like it will pop from stress!! :shock: lol


Congratulation on the new job! Try to concentrate on the training and keep your mind off the colonoscopy. :wink:
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

Pathfindergrl28
Posts: 119
Joined: Mon Dec 08, 2014 12:35 pm
Location: East coast, USA

Re: Nerves setting in...

Postby Pathfindergrl28 » Tue Oct 04, 2016 1:42 pm

mypinkheaven wrote:
Pathfindergrl28 wrote: I was just hired on at a new work from home job nursing and am currently in training. I Have to pass a test to keep employment which is coming up soon. Plus upcoming colonoscopy, my head feels like it will pop from stress!! :shock: lol


Congratulation on the new job! Try to concentrate on the training and keep your mind off the colonoscopy. :wink:


Thanks mypinkheaven! Doing my best! lol I know one thing, after October is over, I'm going out for a drink with my hubby! lol :D
36/F
Genetic high BP since age 22 (currently on Bystolic)
Wife, mom of two girls
Colonoscopy 12/1/14: DX with 12 mm Tubulovillous adenoma polyp (benign), & diverticulosis in colon, Lynch negative
Colonoscopy 10/21/16: Clear colonoscopy, diverticulosis

"Don't worry about anything, instead, pray about everything. Tell God what you need, and thank Him for all He has done." Philippians 4:6

Pathfindergrl28
Posts: 119
Joined: Mon Dec 08, 2014 12:35 pm
Location: East coast, USA

Re: Nerves setting in...

Postby Pathfindergrl28 » Sun Oct 23, 2016 8:38 am

I just wanted to update everyone. I had my 2nd colonoscopy done this past Friday. So glad it's over, I really dislike the prep. I mixed my movi-prep with Gatorade this time though instead of water, and I didn't feel as weak & depleted that way. Fortunately, it was all clear. When I woke up the nurse & doctor told me that there were no new polyps, no regrowth at previous adenoma site, & no cancer. I felt very blessed and relieved. I honestly thought he'd say I had new polyps or the previous adenoma I had grew back. He put me on the 5 year colonoscopy schedule, but said I could come back sooner if I wanted. I think I'll go back sooner! :shock: Thanks everyone, and I just wanted to update. I'm very thankful I found this site after my first colonoscopy, it motivated me to get my second scope earlier.
36/F
Genetic high BP since age 22 (currently on Bystolic)
Wife, mom of two girls
Colonoscopy 12/1/14: DX with 12 mm Tubulovillous adenoma polyp (benign), & diverticulosis in colon, Lynch negative
Colonoscopy 10/21/16: Clear colonoscopy, diverticulosis

"Don't worry about anything, instead, pray about everything. Tell God what you need, and thank Him for all He has done." Philippians 4:6

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Nerves setting in...

Postby jhocno197 » Sun Oct 23, 2016 8:54 am

Glad you had a clear scope!

I wouldn't want to wait 5 years,either.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

User avatar
ABMom
Posts: 54
Joined: Sat Sep 10, 2016 6:04 pm
Location: Calgaryish

Re: Nerves setting in...

Postby ABMom » Sun Oct 23, 2016 9:28 am

So glad for you that it came back clear! Enjoy that November drink with your husband. :)
39 Stage 1 RC
T2N0Mx - 2016-10-07
LAR - 2016-11-01
Illeo-reversal - 2017-01-27

DarknessEmbraced
Posts: 3579
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Nerves setting in...

Postby DarknessEmbraced » Sun Oct 23, 2016 9:50 am

Congratulations! Glad it was clear! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: Nerves setting in...

Postby mypinkheaven » Sun Oct 23, 2016 10:27 am

:D Good news!
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

Pathfindergrl28
Posts: 119
Joined: Mon Dec 08, 2014 12:35 pm
Location: East coast, USA

Re: Nerves setting in...

Postby Pathfindergrl28 » Mon Oct 24, 2016 7:51 am

Thanks so much everyone, this is such a wonderful website... :)
36/F
Genetic high BP since age 22 (currently on Bystolic)
Wife, mom of two girls
Colonoscopy 12/1/14: DX with 12 mm Tubulovillous adenoma polyp (benign), & diverticulosis in colon, Lynch negative
Colonoscopy 10/21/16: Clear colonoscopy, diverticulosis

"Don't worry about anything, instead, pray about everything. Tell God what you need, and thank Him for all He has done." Philippians 4:6


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