looking for people that have taken erbitux- hair question

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rmblack
Posts: 27
Joined: Mon Oct 13, 2014 1:47 am

looking for people that have taken erbitux- hair question

Postby rmblack » Fri Sep 30, 2016 9:14 pm

I took my last erbitux treatment in June. My eyebrows and eyelashes grew crazy! My eyelashes curled and turned inward and really get in my way. They still haven't gone back to normal and I'm wondering if they ever will. Has anybody else experienced this and if so did it go away?
Rhonda- 41
Wife and mom of 2 (21 and 22)
Diagnosed 9/12/14
Stage 3 Colon Cancer
Surgery 10/6/14
30 radiation treatments
6 months chemo. Oxy and xeloda
NED 7/18/15
Reoccurrence 4/2016 in abdominal wall
Surgery 4/2016
Stage 4
KRAS wild
3 months of Erbitux (May-July 2016)
20 radiation treatments
NED 8/10/16
January 2017 CLEAR SCANS!!!

Philippians 3 14

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: looking for people that have taken erbitux- hair question

Postby Pita » Sat Oct 01, 2016 2:04 am

I was on Cetuximab/Erbitux 2/23-3/29, stopped couldn't handle rash. In high school there was a fad going around and we all shaved half of our eyebrows off from the middle to temple, problem was mine never grew back and that was 50 years ago until Erbitux! Yes eyebrows and eyelashes grew like crazy and 6 months later I still have more then I started with but not as much, I'd say just the right amount. On Folfuri and Avastin now so things could change, hopefully not.
Best wishes to you...
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

ronnieciao
Posts: 92
Joined: Sat Nov 08, 2014 1:58 pm
Location: Northern Italy and UK

Re: looking for people that have taken erbitux- hair question

Postby ronnieciao » Sat Oct 01, 2016 2:40 am

Hi Rhonda,

Yes, my mother had the same effect when she took Vectibix (which is the same as Erbitux). her eyelashes were several centimetres long! And her eyebrows grew a lot too. She trimmed the eyelashes as they were annoying her after a bit. Eventually they both returned the same as before- she actually misses the thick brows now.

Good luck, Veronica
DD of Mum, 53
Diagnosed CC Stage IVb, October 2014
Mets to liver, peri, ovaries, bones
Folfox + Panitumumab
5fu+Panitumumab
Folfiri + Avastin
Cetuximab monotherapy
Immunotherapy: Tecenriq (Atezolizumab) single agent trial: failed
Left us Feb 2017

Wonderfullymade
Posts: 124
Joined: Tue Jan 12, 2016 4:33 pm

Re: looking for people that have taken erbitux- hair question

Postby Wonderfullymade » Sat Oct 01, 2016 8:23 am

I grew a ...mustache!! It was awful, I didnt notice it in the dim light of my home bathroom but we were staying in a hotel one night before treatment and I saw it...plain as day! Ask my husband if he noticed it...oh yeah, didn't want to make me feel bad! :shock:
I started shaving! Was back to normal shortly after I stopped that drug. I call it pandemonium - that stuff is hard!
DX 3/2015 53
Stage IVa CC w/liver met
BRAF/KRAS wild type MSI-High Lynch?
Folfox 3 cycles
5/2015 ER for subtotal colectomomy due to perforated colon, ovary removed
Folfuri/Pantiumumab 5 cycles
8/2015 liver resection, gallbladder removed and new LN
10/2015 CT scan new nodes
10/2015 Pembro started CEA 2.2
5/2017 stable lung things, coltis, lymph nodes stable cea 1/2017 1.1
9/2017 NED CEA 1.1
10/2018 NED CEA 1.1

rmblack
Posts: 27
Joined: Mon Oct 13, 2014 1:47 am

Re: looking for people that have taken erbitux- hair question

Postby rmblack » Sat Oct 01, 2016 11:31 am

Thanks for the responses! I feel like a werewolf! I am hoping it soon goes back to normal. I was just scared this might be permanent since it's been almost 5 months. The rash was AWFUL!!!!!!! I'm so glad to be done with this drug. Hopefully I won't have to do it again but I was told if I had another reoccurrence I more than likely would.
Rhonda- 41
Wife and mom of 2 (21 and 22)
Diagnosed 9/12/14
Stage 3 Colon Cancer
Surgery 10/6/14
30 radiation treatments
6 months chemo. Oxy and xeloda
NED 7/18/15
Reoccurrence 4/2016 in abdominal wall
Surgery 4/2016
Stage 4
KRAS wild
3 months of Erbitux (May-July 2016)
20 radiation treatments
NED 8/10/16
January 2017 CLEAR SCANS!!!

Philippians 3 14


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