I just wanted to put this out there. Unless you know something to be a fact, please state that it is an opinion or what you know, etc. I have seen many posts which the person writes something as a fact which is wrong. If you are not 100% sure, make sure to note that. If you know for a fact, then tell how or where you got the info.
New people here will take anything as fact if written as such (maybe not all, but many), so please word things carefully as I see this a lot.
I always include it is what I know, my opinion, what I heard, doc said, looked up, etc. And usually end with, "ask your doc/onc/etc"
Fact, hearsay, or opinion?
Re: Fact, hearsay, or opinion?
Hi Nik,
Totally agree - this is important.
I have read here for many months but not posted much so far - hopefully I have not done it wrong.
But I believe this is a problem/a worry on many Forums. Having been a member of another Forum for many years I have seen this So many times.
Thank You. Kind Regards /LPL
Totally agree - this is important.
I have read here for many months but not posted much so far - hopefully I have not done it wrong.
But I believe this is a problem/a worry on many Forums. Having been a member of another Forum for many years I have seen this So many times.
Thank You. Kind Regards /LPL
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19
Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19
Steroid induced hyperglycemia dx after 3chemoSurgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets
-
Maggie Nell
- Posts: 1151
- Joined: Wed May 27, 2015 1:57 am
- Location: Central Highlands, Victoria, Oz
Re: Fact, hearsay, or opinion?
FACT: Pulling your socks up isn't a cure for anything other than cold shins.
FACT: Not all nurses receive quality training.
FACT: Not all nurses receive quality training.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.
Re: Fact, hearsay, or opinion?
Wise advice, Nik. Could you visit every Facebook post I've seen lately and offer the same advice? I've noticed a lot of people seem to think writing the word "FACT" in all caps at the end of a sentence magically changes their opinion into a fact! 
05/23/14 DH dx Stage 3B rectal ca (age 41)
6/2014 chemorad | 10/2014 LAR, all nodes clean
FOLFOX x 10 | VATS/lung met | ileo reversal
09/15 local recurrence
10/15 colostomy
11/15 FOLFIRI x 4, major growth
02/16 tumor debulked
Stable ten months on Xeloda/Avastin
Growth on clinical trials NCT02024607 (BBI608 + FOLFIRI), NCT02817633 (anti-PD-1 + anti-TIM-3), NCT03175224 (c-Met inhibitor)
09/27/2018 started hospice
02/07/19 died
6/2014 chemorad | 10/2014 LAR, all nodes clean
FOLFOX x 10 | VATS/lung met | ileo reversal
09/15 local recurrence
10/15 colostomy
11/15 FOLFIRI x 4, major growth
02/16 tumor debulked
Stable ten months on Xeloda/Avastin
Growth on clinical trials NCT02024607 (BBI608 + FOLFIRI), NCT02817633 (anti-PD-1 + anti-TIM-3), NCT03175224 (c-Met inhibitor)
09/27/2018 started hospice
02/07/19 died
Re: Fact, hearsay, or opinion?
Thanks for the reminder. I hope I don't do this but I appreciate the heads up. I'd hate I led someone wrong.
Teri
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low
Re: Fact, hearsay, or opinion?
Really good advice I think, for folks to state their "level of evidence" with any post.
IMO ...
My doc says ...
I read this ... here ...
Does anyone know about ... ?
My friend's friend did ... and now ...
I was having this issue and tried this ...
Although we ARE family here
we are really just another internet website which is HIGHLY searched and quoted.
Oh, did I say ....... this IS the internet
caveat emptor my friends
ALWAYS caveat emptor
Check things out .......
ALWAYS
ON the Journey !!!
Cheers
CR
IMO ...
My doc says ...
I read this ... here ...
Does anyone know about ... ?
My friend's friend did ... and now ...
I was having this issue and tried this ...
Although we ARE family here
we are really just another internet website which is HIGHLY searched and quoted.
Oh, did I say ....... this IS the internet
caveat emptor my friends
ALWAYS caveat emptor
Check things out .......
ALWAYS
ON the Journey !!!
Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
-
Nik Colon
Re: Fact, hearsay, or opinion?
aja1121 wrote:Wise advice, Nik. Could you visit every Facebook post I've seen lately and offer the same advice? I've noticed a lot of people seem to think writing the word "FACT" in all caps at the end of a sentence magically changes their opinion into a fact!
LOL
-
Nik Colon
Re: Fact, hearsay, or opinion?
Thanks guys, I just want people to be careful how they word things since there are people who WILL take things as FACT when it may not be. I hope those who read and post will make sure to look up everything first, as mentioned. Also providing information to sources is a great thing
-
Maggie Nell
- Posts: 1151
- Joined: Wed May 27, 2015 1:57 am
- Location: Central Highlands, Victoria, Oz
Re: Fact, hearsay, or opinion?
Nik Colon wrote: I have seen many posts which the person writes something as a fact which is wrong.
Can you provide the links to those posts, Nik, that you are using as a source for your caution?
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.
-
Nik Colon
Re: Fact, hearsay, or opinion?
Maggie Nell wrote:Nik Colon wrote: I have seen many posts which the person writes something as a fact which is wrong.
Can you provide the links to those posts, Nik, that you are using as a source for your caution?
Haha, I don't recall atm
Re: Fact, hearsay, or opinion?
Hi Nic Colon, I still support your view about this,
Eventhough you can't recal posts that did make you post this discussion/thread
Eventhough you can't recal posts that did make you post this discussion/thread
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19
Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19
Steroid induced hyperglycemia dx after 3chemoSurgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets
-
Nik Colon
Re: Fact, hearsay, or opinion?
LPL wrote:Hi Nic Colon, I still support your view about this,
Eventhough you can't recal posts that did make you post this discussion/thread
I know one recent one, but I didn't think posting it would be nice
-
bitchslapped
- Posts: 1538
- Joined: Tue Sep 09, 2014 3:23 pm
- Location: PNW/USA
Re: Fact, hearsay, or opinion?
So fact checking on our U.S. politics & fact checking on here too! Soon this thread will be buried. If a person notices misinformation, it benefits the board to speak up on that thread. If it is differing opinions among docs, that's also good to know. It's not like we haven't had differences on here before, but doesn't need to lead to that. If it does, so be it. If we can't speak up, then I guess we'll all just give one another *Hugs* & call it good. 
Truth Or Dare...
BS
Truth Or Dare...
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia
-
Nik Colon
Re: Fact, hearsay, or opinion?
bitchslapped wrote:So fact checking on our U.S. politics & fact checking on here too! Soon this thread will be buried. If a person notices misinformation, it benefits the board to speak up on that thread. If it is differing opinions among docs, that's also good to know. It's not like we haven't had differences on here before, but doesn't need to lead to that. If it does, so be it. If we can't speak up, then I guess we'll all just give one another *Hugs* & call it good.
Truth Or Dare...
BS
I do reply to those posts, but I just wanted to put a reminder out there for both the posters and readers to double check.
Re: Fact, hearsay, or opinion?
Agree with it 100%! Hope I'm not guilty of it but if I am, sure hope someone will speak up and tell me.
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin #10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ???
2/21/17 Folfuri & Avastin
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin #10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ???
2/21/17 Folfuri & Avastin
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