Hello from a new member

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pinecone
Posts: 1
Joined: Wed May 11, 2016 6:42 am

Hello from a new member

Postby pinecone » Fri Sep 23, 2016 11:08 am

Hello. What a cool board! Really happy to find this.

I had an open right hemi colectomy at the end of June. Other than an infection at the incision site that lasted a couple weeks, my healing has been great. A couple days ago I started having abdominal pain on the right side. I had a bunch of tests in the ER and now I'm waiting to hear back from my surgeon. This weird pain just isn't letting up. I'm close to 3 months post-op.

My surgeon is pretty well-respected and he'll probably know what it is and what to do, so fingers crossed. I just wanted to say hello.

User avatar
BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Hello from a new member

Postby BrownBagger » Fri Sep 23, 2016 1:02 pm

Welcome to the forum.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Hello from a new member

Postby teri3 » Fri Sep 23, 2016 2:14 pm

Hello and welcome! I hope they are able to tell you something soon, waiting is the worst.
Hugs
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Hello from a new member

Postby DarknessEmbraced » Fri Sep 23, 2016 4:34 pm

Welcome and sorry for the reason you're here.*hugs* I hope you don't have to wait long to hear from the surgeon. Sorry you are in pain.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Monique
Posts: 103
Joined: Mon Jun 09, 2008 2:54 am

Re: Hello from a new member

Postby Monique » Fri Sep 23, 2016 8:09 pm

Welcome to the board, Pinecone. I'm happy you found us, as CC is wonderful resource.

I hope your pain has eased since you last posted.

Warm wishes,
Monique

Utwo
Posts: 285
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: Hello from a new member

Postby Utwo » Sat Sep 24, 2016 8:41 am

I was told by my surgeon that complications may happen up to four months after surgery.
It may be a leak, infection etc.

Are you dealing with a hospital/surgeon that performed your surgery in June?

By the way, small leak can be missed by X-ray or CT scan.
58 yo male at diagnosis: T1bN0M0, 0/15 nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder, lymph node, pancreas

Thetoad
Posts: 165
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: Hello from a new member

Postby Thetoad » Sat Sep 24, 2016 4:37 pm

Hi Pinecone. Same, open right hemicolectomy (extended) followed by infection in the wound. Took a while to clear and used some sucking vacuum machine called Renasys, which was on continuously. Yes, waiting is stressful but your surgeon seems very competent. Interested to read future posts. Best wishes.
Last edited by Thetoad on Sat Sep 24, 2016 4:48 pm, edited 1 time in total.
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.

Thetoad
Posts: 165
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: Hello from a new member

Postby Thetoad » Sat Sep 24, 2016 4:47 pm

Thought I should add that surgery was 34 1/2 months ago and all follow up checks ok. Try not to worry. (I know, easily said.) You will get lots of support from this site. :)
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Hello from a new member

Postby Pita » Sat Sep 24, 2016 5:14 pm

Hope you get your problem and pain solved. Best wishes ox
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin


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