Anyone deal with lymphedema after colon cancer??

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rmblack
Posts: 27
Joined: Mon Oct 13, 2014 1:47 am

Anyone deal with lymphedema after colon cancer??

Postby rmblack » Tue Sep 20, 2016 9:57 pm

I AM MISERABLE!!!! Swelling in my feet started about a month ago. Had ultrasound last week and everything looked fine. Tomorrow I go to a physical therapist to be checked for lymphedema. After reading some things online I feel positive this is what I have. Tonight my feet started to itch sooooo bad. Has anyone else here suffered from lymphedema? If so, what have you done to help with it?
Rhonda- 41
Wife and mom of 2 (21 and 22)
Diagnosed 9/12/14
Stage 3 Colon Cancer
Surgery 10/6/14
30 radiation treatments
6 months chemo. Oxy and xeloda
NED 7/18/15
Reoccurrence 4/2016 in abdominal wall
Surgery 4/2016
Stage 4
KRAS wild
3 months of Erbitux (May-July 2016)
20 radiation treatments
NED 8/10/16
January 2017 CLEAR SCANS!!!

Philippians 3 14

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Cowgirl918
Posts: 319
Joined: Sun Jan 17, 2016 12:55 am
Location: Indiana

Re: Anyone deal with lymphedema after colon cancer??

Postby Cowgirl918 » Tue Sep 20, 2016 10:05 pm

You need to notify your physician if you have not already done so. It can be a side effect, part of the disease or have any number of other causes. There are other threads that you can search on this site full of information. Just search Lymphedema .
Good luck. So sorry you are going through this.
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80% removed
5/29/2016 Compressed lumbar spinal fracture (riding accident)
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
10/18/16 Autoimmune Diseases confirmed

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Anyone deal with lymphedema after colon cancer??

Postby jhocno197 » Tue Sep 20, 2016 10:31 pm

My mom had lymphedema, unrelated to any sort of cancer. After some treatments (wrapping, massage), she was much better.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

rmblack
Posts: 27
Joined: Mon Oct 13, 2014 1:47 am

Re: Anyone deal with lymphedema after colon cancer??

Postby rmblack » Wed Sep 21, 2016 5:16 pm

Thanks for responding. I went to a physical therapist today. We are going to try compression socks and see how I respond to that. I am only 41 and feel like I am 61. Cancer has aged me so much. I will look at the bright side, I am in remission!
Rhonda- 41
Wife and mom of 2 (21 and 22)
Diagnosed 9/12/14
Stage 3 Colon Cancer
Surgery 10/6/14
30 radiation treatments
6 months chemo. Oxy and xeloda
NED 7/18/15
Reoccurrence 4/2016 in abdominal wall
Surgery 4/2016
Stage 4
KRAS wild
3 months of Erbitux (May-July 2016)
20 radiation treatments
NED 8/10/16
January 2017 CLEAR SCANS!!!

Philippians 3 14

pantufla
Posts: 133
Joined: Thu Dec 03, 2015 12:44 pm
Facebook Username: kelleykulina

Re: Anyone deal with lymphedema after colon cancer??

Postby pantufla » Thu Sep 22, 2016 2:21 pm

My husband had swelling of his feet, wrists and hands a couple of weeks ago. Got it checked out by the doc. He was not very concerned, and now it appears to be getting a lot better. :)
DH T2 N1b M0. 3/15 positive nodes.
Stage IIIA moderately differentiated adenocarcinoma.
Tumor size 6 cm.
Left hemicolectomy 10/26/15.
FOLFOX 11/30/15 to 5/2/16, full 12 cycles.
Lynch negative.
10/3/16 CT scan clear.
11/10/17 CT: "Focal opacity along the left lower lung, 7 mm. Two small peripheral opacities along the right lower lobe, 2 to 3 mm. A few small to mildly prominent left-sided central mesenteric nodes, up to 13 mm. There are subcentimeter retroperitoneal lymph nodes."

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Anyone deal with lymphedema after colon cancer??

Postby Lydia666 » Sun Dec 16, 2018 3:56 pm

I have severe lymphedema and no strength in legs, cannot get out of bed. How do i get my strength back? How do i deal with this out of body experience that my body makes me? Anyone ever felt like the body is not theirs because of the disease, etc? I just can't explain it.can anyone?
I dont want to die. I have small babies who matured over night. Help!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Gravelyguy
Posts: 99
Joined: Thu Jul 05, 2018 6:03 pm

Re: Anyone deal with lymphedema after colon cancer??

Postby Gravelyguy » Mon Dec 17, 2018 12:06 pm

Hi There,

I am so sorry you are going through this. You have been in my prayers all weekend. I have no experience with lymphedema but I found this on the Mayo site. You have probably already found it but in case you haven't...

Dave

https://www.mayoclinic.org/diseases-con ... c-20374687
6/17 dx mCRC t3n1m1 very low rectal tumor 2 very small liver Mets

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection cancer is out of here!
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12 clear scans, CEA .9 still NED!

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Jack&KatiesMommy
Posts: 546
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Anyone deal with lymphedema after colon cancer??

Postby Jack&KatiesMommy » Tue Dec 18, 2018 10:09 am

Lydia:
Do you know if you are MSI or MSS? I would definitely be pushing for Foundation One Testing. If you look at the blog on their website--the Post about MSS Colon Cancer and people in that category responding if they have 12+ mutations (My case helped them make this connection)....they are finding that Keytruda can work for not only MSI high Colon Cancer patients but also for some MSS patients who have at least a moderate mutation burden. Please look into this. It can be life changing if you happen to fall into the MSI or MSS with moderate mutation burden categories. Praying for you..

Cynthia
Cynthia
Mommy to Jack (8) now (15) and Katie (4) now (12)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new mets lymph nodes lung:
05/18: Keytruda (MSS w/Intermediate TMB): CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8
7/18; 9/19; 11/18 Clear CT scans


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