I got disconnected today from the whiny bastard pump. Yay. There was some confusion on Saturday regarding whether or not I'd need Neulasta this round (on Thursday I met with my onc who said I could skip it, but for some reason the on-call onc, who I don't like, was consulted on Saturday and said I would need it. While waiting for the pump to finish its business today, I saw my onc's NP, who reassured me I could skip the Neulasta this round.)
Anyway, I feel pretty crappy today. I'm so down, emotionally. My hands and feet hurt. I'm tired. I'm not nauseous, but I have NO appetite. I'm weepy and just plain tired of this shit. I know I only have one round to go, and I'll get there, but today I'm in "the valley" as I call it. Feeling my lowest, no motivation to do anything, although I have managed to do a few small loads of laundry, prep chicken for my husband's lunches for the week, and mix up a protein shake for myself (which I don't feel like drinking, but I will because I know I need the nutrients). Doing anything feels like it takes monumental effort and all I want to do is stay balled up on the sofa.
I cannot wait to be done with this mess, and can only hope and pray the side effects don't stick around. I so want to feel 'normal' again.
Not trying to be a Debbie Downer, but I had to vent. I know y'all understand how it is.
FOLFOX Cycle 11 complete . . . one more to go
FOLFOX Cycle 11 complete . . . one more to go
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17
-
mypinkheaven
- Posts: 459
- Joined: Fri May 20, 2016 4:29 pm
- Facebook Username: Sally Cunningham
- Contact:
Re: FOLFOX Cycle 11 complete . . . one more to go
Only one more to go and no Neulasta!! At least that's something!! 
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping
Re: FOLFOX Cycle 11 complete . . . one more to go
I know this is hard, and I know you are tired. Take care of yourself today and take many many many awesome naps. I prescribe naps as needed for you for the foreseeable future 
You have this. You didn't have to have the neulasta (hooray!!!) you only have to do this one more time. Take it easy on you and give yourself permission to relax as needed. You don't have to get it all done today.
Keep telling yourself only ONE left!!!!!!
Keeping you in my thoughts and prayers.
You have this. You didn't have to have the neulasta (hooray!!!) you only have to do this one more time. Take it easy on you and give yourself permission to relax as needed. You don't have to get it all done today.
Keep telling yourself only ONE left!!!!!!
Keeping you in my thoughts and prayers.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016
Re: FOLFOX Cycle 11 complete . . . one more to go
Thanks, guys. I know y'all know this feeling - the feeling that the Tx is trying to kill you rather than help you. I feel like hell, definitely the worst one by far, which I realize is to be expected. I'm grateful I don't need the Neulasta, that's for sure!
I love sleep. When I'm asleep, I don't realize how crappy I feel. Supposed to go to work tomorrow, but I guess I'll play it by ear. My boss is super understanding, so she won't give me grief if I don't feel up to it.
Thanks again for the support. I need all the cheerleading I can get right now. Hoping to climb out of the valley by tomorrow!
I love sleep. When I'm asleep, I don't realize how crappy I feel. Supposed to go to work tomorrow, but I guess I'll play it by ear. My boss is super understanding, so she won't give me grief if I don't feel up to it.
Thanks again for the support. I need all the cheerleading I can get right now. Hoping to climb out of the valley by tomorrow!
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17
Re: FOLFOX Cycle 11 complete . . . one more to go
I feel thousands of strong arms reaching down to help you out of that valley! Won't be long!
62f, Blessed with a wonderful husband and 2 sons
Diagnosed 6/2016, Adenocarcinoma, Colectoral primary, chemo lifer
Stage 4b, liver mass 7.0 x 4.8 cm and additional lesions, multiple lung nodes
CEA 40.9
7/12 began Folfox, Neulasta, Avastan
CT 9/12 tumor shrunk 4.4 by 3.3
CEA 9.6
Continuing Folfox, CT scheduled 12/12.
MSS, neg lynch
Put Oxiliplatin and Neulasta on hold.
CT 12/12 Hepatic dome mass shrinks to 2.9 x 2.5, other lesions shrink, no new.
CEA 3.3
Diagnosed 6/2016, Adenocarcinoma, Colectoral primary, chemo lifer
Stage 4b, liver mass 7.0 x 4.8 cm and additional lesions, multiple lung nodes
CEA 40.9
7/12 began Folfox, Neulasta, Avastan
CT 9/12 tumor shrunk 4.4 by 3.3
CEA 9.6
Continuing Folfox, CT scheduled 12/12.
MSS, neg lynch
Put Oxiliplatin and Neulasta on hold.
CT 12/12 Hepatic dome mass shrinks to 2.9 x 2.5, other lesions shrink, no new.
CEA 3.3
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midlifemom
- Posts: 1358
- Joined: Wed Jan 15, 2014 10:58 am
- Location: NJ
Re: FOLFOX Cycle 11 complete . . . one more to go
You need strength to climb out of the valley. So get plenty of rest and some nutrients before you expect to climb too high. Just a few steps, perhaps to first plateau, is a good accomplishment. You can do it.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
Re: FOLFOX Cycle 11 complete . . . one more to go
Congratulations on knocking down one more. Hopefully without the push side affects won't last as long.
Like everyone else has said rest,nap and take it easy. Just one more your rocking it and reversal is getting that much closer.
BIg Hug to you
Like everyone else has said rest,nap and take it easy. Just one more your rocking it and reversal is getting that much closer.
BIg Hug to you
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t
Re: FOLFOX Cycle 11 complete . . . one more to go
You guys truly, truly rock. I couldn't make it through this madness without your support!
I'm staying home from work today as I'm still quite tired & my hands and feet are still crazy sensitive. Hoping by this evening the sensitivity will lessen & I'll feel like myself by tomorrow. I'm not quite as down today as yesterday and can feel myself climbing ever so slowly out of the valley.
Thanks again for the words of encouragement. I can't express how grateful I am for each & every one of you amazing people.
I'm staying home from work today as I'm still quite tired & my hands and feet are still crazy sensitive. Hoping by this evening the sensitivity will lessen & I'll feel like myself by tomorrow. I'm not quite as down today as yesterday and can feel myself climbing ever so slowly out of the valley.
Thanks again for the words of encouragement. I can't express how grateful I am for each & every one of you amazing people.
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17
-
DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: FOLFOX Cycle 11 complete . . . one more to go
Sending big hugs! Nothing wrong with venting!*hugs* I hope the side effects get better soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: FOLFOX Cycle 11 complete . . . one more to go
Belated congratulations on getting disconnected from the bastard pump. Finishing cycle eleven is a huge milestone - only one more to go! Kudos to you. Also, remember that it's ok to feel down and weepy (at least that's what I told myself when I was having treatment and some days were a little harder to bear than others).
I hope that you're feeling better both mentally and physically. When I was undergoing chemo my hands and feet hurt too. The good news is that, for most people, your discomfort will ease with time.
Hang in there,
Monique
I hope that you're feeling better both mentally and physically. When I was undergoing chemo my hands and feet hurt too. The good news is that, for most people, your discomfort will ease with time.
Hang in there,
Monique
Re: FOLFOX Cycle 11 complete . . . one more to go
Monique - thanks for the encouragement.
The folks on this forum rock!
The folks on this forum rock!
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17
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