Ten years after Stage III diagnosis

Please feel free to read, share your thoughts, your stories and connect with others!
Monique
Posts: 103
Joined: Mon Jun 09, 2008 2:54 am

Ten years after Stage III diagnosis

Postby Monique » Sat Sep 10, 2016 11:02 pm

Hello,

I’ve been hesitant to post as I’ve lost some good friends to cancer and I suppose I have ‘survivor’s guilt’. My survival, in my mind, is simply a matter of chance rather than courage, a fighting spirit, faith, or a totally changed lifestyle.

That said, when I was first diagnosed with cancer I spent many hours looking for posts written by longtime survivors. As a result, I thought my post might be helpful to those who have been recently diagnosed with advanced colon cancer. (I also have a friend who was diagnosed with Stage IV colon cancer at the same time as I was and he too is doing well.)

A little bit about me: I first visited this forum ten years ago when, at the age of 39, I was diagnosed with Stage III colon cancer. My diagnosis was T4N1MX. My sigmoid tumour was sizable (it had breached my colon wall and invaded my small intestine), there was lymph node involvement and some suspicious lung nodules that had to be monitored for a couple of years. My diagnosis devastated and angered me. I never saw myself as a ‘cancer warrior’ as I was quivering in my boots for all of my treatment and, for that matter, a couple of years afterwards.

Ten years later, I am living an interesting life. I have moved to another country, started a PhD at a (very) late age and while I haven’t forgotten about my cancer experience, it no longer haunts me as it once did. In fact, it likely provided me with an empathy that I didn’t possess prior to my diagnosis, specifically towards those who are undergoing health issues. It also, pretty early on (when I was uncertain of what the future held for me) provided me with a clear lens to see what was important in life and what wasn’t. I also realized who my true friends were.

In the last ten years, I have lost some good friends to cancer and I dearly miss all of them. I also miss some wonderful people that I met on Colon Club who have since passed (specifically Rodney Thornton, who was absolutely hilarious and an anchor during difficult times). When I was undergoing treatment and afterwards, this forum was a lifeline for me.

Warm wishes to you all,

Monique
Last edited by Monique on Sun Sep 11, 2016 1:23 am, edited 2 times in total.

User avatar
horizon
Posts: 1670
Joined: Tue Apr 12, 2011 10:10 pm

Re: Ten years after Stage III diagnosis

Postby horizon » Sun Sep 11, 2016 12:06 am

I'm always grateful when I read posts like these. When I first started out they gave me hope and they still do. Congrats on your anniversary!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?

User avatar
CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: Ten years after Stage III diagnosis

Postby CRguy » Sun Sep 11, 2016 1:17 am

Hey Bubba !!!!!
.... you are ALWAYS welcome in my universe !

Mega Cheers and Harmony
Yeah still me
still here
"don't look up ..."

CR on the Journey
PM me sometime ...... :mrgreen:
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Ron50
Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

Re: Ten years after Stage III diagnosis

Postby Ron50 » Sun Sep 11, 2016 6:42 am

Nice to catch up with another accidental tourist of cancer. I have the same outlook on life ,I never really did anything in particular to get thru cancer. I guess I did give up alcohol but to be able to give up that easy I really wasn't into drinking that much. I still work and live a life of stress. I have quite a few ongoing health related reminders of my cancer time, I was also stage 3c into six nodes. If I make it to January next year I will be out to 19 years still cancer free. Best of luck with the Phd and wishing you continued good health. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Re: Ten years after Stage III diagnosis

Postby AnnClare » Sun Sep 11, 2016 11:11 am

Thank you SO much for your post! This gives me so much hope.

I was 41 when DX''d with stage 3C rectal cancer, with 2 nodes. Reading of your amazing recovery and long-time NED status makes me smile.
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Ten years after Stage III diagnosis

Postby Lee » Sun Sep 11, 2016 4:40 pm

CONGRATULATIONS! 10 years is awesome and a major milestone.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Ten years after Stage III diagnosis

Postby Lydia666 » Mon Sep 12, 2016 7:48 pm

Thank you for posting to give us hope.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

User avatar
NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: Ten years after Stage III diagnosis

Postby NZJay » Mon Sep 12, 2016 9:39 pm

Congratulations on your cure and renewed life!

Also thank you so much for posting - I also had a T4 (N1) tumour which invaded my small intestine and stomach. Our cases are pretty rare, so I love reading positive outcomes for people who have shared a similar diagnosis.

:D
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

Colon King
Posts: 52
Joined: Tue May 17, 2016 9:13 pm
Location: Canada
Contact:

Re: Ten years after Stage III diagnosis

Postby Colon King » Mon Sep 12, 2016 10:03 pm

What a great random post. Thanks for sharing your story.
39 year old male, Canada.
Husband; father of 4.

5/16/16: 3cm x 4cm Intermediate Serrated Polyp found by fluke (elective colonoscopy)
5/20/16: CEA 1.7 (phew)
06/10/16: EMR complete
06/16/16: Biopsy result: Fragments of tubulovillous adenoma; negative for high grade dysplasia
09/08/16: Follow up Colonoscopy scheduled.

My blog: https://colonking.com

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Ten years after Stage III diagnosis

Postby DarknessEmbraced » Tue Sep 13, 2016 4:31 pm

Congratulations~ That's wonderful! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Ten years after Stage III diagnosis

Postby fumaros » Tue Sep 13, 2016 8:57 pm

Congratulations! More importantly thanks for sharing.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

MStarnes46
Posts: 5
Joined: Tue Aug 23, 2016 8:07 am
Facebook Username: Marie M Starnes

Re: Ten years after Stage III diagnosis

Postby MStarnes46 » Fri Sep 16, 2016 9:34 pm

Thank you for sharing and congratulations! :D
Dx at 46, CC Stage 3 on 07/27/16
10/2014 Tubulovillous Adenoma (3.5cm) removed in piecemeal fashion found on screening colonoscopy
11/2014 Remaining adenoma removed- neg margins
04/2015 Colonoscopy negative
06/2016 Colonoscopy high grade dysplasia
07/27/2016 Sigmoid resection-Stage 3 Colon Cancer, 2 nodes positive. CEA 2.4
08/01/2016 Staging studies negative
08/23/2016 PET CT negative
08/24/2016 Port placed for FOLFOX to begin 08/29/16

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Ten years after Stage III diagnosis

Postby Pita » Sat Sep 17, 2016 12:29 am

Congratulations!!! So wonderful to read your kind of post, I won't forget it. ox
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 260 guests