R.I.P Dad

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Willow.NZ
Posts: 176
Joined: Sun Mar 08, 2015 3:05 am

R.I.P Dad

Postby Willow.NZ » Fri Sep 09, 2016 4:16 am

Image

My amazing Dad died on Saturday 3rd September, aged 59. He went down hill very quickly, 4 weeks after stopping treatment. The photo posted was an amazing day I shared with him only 2 weeks before he passed away.
He died very peacefully at home. He was only bed ridden in last day, & stayed very comfortable & it was a very dignified death. He only started morphine/sedation pump + bolus doses which I was able to manage 24 hours prior. He died with myself, my mother, brother, nana & cat by his side.

We had his funeral yesterday & it really was an amazing send off. Thank you all those on this Forum that have given me support over these last years. I have been a very frequent visitor although probably more on the quiet side.
Last edited by CRguy on Fri Sep 09, 2016 11:27 am, edited 1 time in total.
Dad diagnosed Sept 14 Stage IV. Age 57yrs. Transverse colon - spread to Retroperitoneal, Mesenteric & Supraclavicular lymph nodes. Folfiri commenced Sept 14.
April 15 - Bowel resection
August 15, stable scan
Feb 16 - No signs of cancer on scan...stop chemo & scan in 3 month
Scan April 16, Crazy growth to stomach, lymph nodes & multiple mets to liver. Commencing Folfox.
August: chemo not working. Stopped treatment.
September 3rd 2016 peacefully left this earth.
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Thetoad
Posts: 165
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: R.I.P Dad

Postby Thetoad » Fri Sep 09, 2016 4:43 am

Genuinely sorry to read your post. He obviously was a great man. From John, (Dunedin.)
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.
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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: R.I.P Dad

Postby BeansMama » Fri Sep 09, 2016 5:16 am

I am so very sorry for your loss. My condolences to you and your family.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016
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AussieAssCancer
Posts: 258
Joined: Sat May 21, 2016 10:16 am

Re: R.I.P Dad

Postby AussieAssCancer » Fri Sep 09, 2016 5:33 am

Pouri hoki koutou mate!

So very sorry to hear but am glad it was peaceful, dignified and that he passed with his loved ones by his side. I feel your sorrow more than you know, having lost my mother only last week as well.

May you and your family find solace in the no doubt many wonderful memories you have, including spending time with him sharing common interests such as photography.

All the best my kiwi sister,

Geoff
Dx Oct '15 w/ Stage 3c RC/ CEA 8
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/
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esk2poo
Posts: 499
Joined: Sat Dec 17, 2011 7:17 am
Location: New Jersey

Re: R.I.P Dad

Postby esk2poo » Fri Sep 09, 2016 5:43 am

Sorry to hear of his passing but glad it was so peaceful. That is a great picture and you are a wonderful daughter. Your dad lives on through you as I cannot believe how much you look like him.
Allen
Dx 8/23/11 stage 3b crc
3 of 11 LN's
resection 9/15/11
folfox start 10/31/11 12 sessions
De-ported 6/2012
clear CT 7/2012
Clear colonoscopy 9/2012
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ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: R.I.P Dad

Postby ams5796 » Fri Sep 09, 2016 6:24 am

You can tell by the picture that he was a great Dad and that you had a nice relationship with him. I wish you the best going forward.


Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met
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JJ2212
Posts: 268
Joined: Mon Oct 14, 2013 3:54 pm
Location: Montréal, QC

Re: R.I.P Dad

Postby JJ2212 » Fri Sep 09, 2016 6:30 am

I'm so sorry for your loss. Take care.

Janie
Rectal cancer dx 04/13 @ 42, MSS, KRAS positive
T3N2M1 (1 lung met)
5 weeks xeloda+radiation finished 07/13
APR 9/13 (permanent colostomy), 27/31 nodes positive :-(
12 rounds of FOLFOX 04/14
Lung met growth 11/14
26 cycles Regorafenib (Stivarga) from 11/15 to 01/17
New lung met and chest/neck lymph nodes 01/17
1 cycle Folfiri
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Violet
Posts: 18
Joined: Mon Aug 15, 2016 6:43 am

Re: R.I.P Dad

Postby Violet » Fri Sep 09, 2016 6:39 am

I'm sorry about your Dad- This photo is beautiful- he looks happy. All the best,

Violet
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jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: R.I.P Dad

Postby jhocno197 » Fri Sep 09, 2016 8:29 am

I am so sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
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stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: R.I.P Dad

Postby stu » Fri Sep 09, 2016 10:08 am

So sad to read this and I am struggling to get my head around the fact that beautiful photo was only two weeks before he passed. Priceless.
You have been a fantastic support her and I hope you stay around if you like.
Much love to you and your family.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
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midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: R.I.P Dad

Postby midlifemom » Fri Sep 09, 2016 11:42 am

So sorry to hear of your dad's death.
I hope you, family and friends find solace in memories and knowing he is at peace.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
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mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:
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Re: R.I.P Dad

Postby mypinkheaven » Fri Sep 09, 2016 11:50 am

What a beautiful photo. I hope the memories will ease your pain.
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping
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ANDRETEXAS
Posts: 662
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: R.I.P Dad

Postby ANDRETEXAS » Fri Sep 09, 2016 3:18 pm

Thank you so much for posting and the photo. Wishing you and your family the best now and in the future. Your father was fortunate to have such a caring daughter.
2/10/14 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT

3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT

3/23/16 - clean CT

2/22/17- clean CT

3/21/18 - clean CT
4/1 - clean colonoscopy

3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !

4/13/23 - clean colonoscopy

ONE DAY AT A TIME !
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Willow.NZ
Posts: 176
Joined: Sun Mar 08, 2015 3:05 am

Re: R.I.P Dad

Postby Willow.NZ » Fri Sep 09, 2016 4:23 pm

Thank you all for the lovely posts. The photo was his last photography outing, his friends organised a tiger encounter at our local zoo, it was amazing. I felt like a bit of a fraud as I hadn't picked up the cameras much before, but we had a ball. I have Inherited his camera gear & he has asked his best friend who is a photographer to teach me.

People couldn't believe how sick he was as he was always so strong & positive. It was only in the last couple weeks he deteriorated so fast, with jaundice & ascites.

I treasure so many beautiful memories and now I am going to be trying to support my beautiful mother through this terrible time.

Shona xx
Dad diagnosed Sept 14 Stage IV. Age 57yrs. Transverse colon - spread to Retroperitoneal, Mesenteric & Supraclavicular lymph nodes. Folfiri commenced Sept 14.
April 15 - Bowel resection
August 15, stable scan
Feb 16 - No signs of cancer on scan...stop chemo & scan in 3 month
Scan April 16, Crazy growth to stomach, lymph nodes & multiple mets to liver. Commencing Folfox.
August: chemo not working. Stopped treatment.
September 3rd 2016 peacefully left this earth.
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mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: R.I.P Dad

Postby mariane » Fri Sep 09, 2016 4:55 pm

I am so sorry, Shona.
Your dad was and always will be proud of his amazing daughter.
Sending prayers,
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!
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