If you have scans this month, let us know so we can pray, send good thoughts, etc.
My bloodwork is Thursday 22nd and my CT/ MRI are Thursday Sept. 29th. I'll get the results from the hospital as soon as the radiologist submits them and then can have my onc friend in Australia read them for me. I won't see my onc until Friday Oct. 7th.
Oct. 10th is our 46th Wedding Anniversary, so hoping for good reports.
I know a few others had scans in April with me but don't remember them all and some may have moved on to yearly scans.
Diane
September Scans?
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dianetavegia
- Posts: 2731
- Joined: Sat May 16, 2009 8:47 pm
- Facebook Username: Diane Weldy Tavegia
- Location: Villa Rica, Georgia
September Scans?
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
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KElizabeth
- Posts: 400
- Joined: Sat Oct 31, 2015 12:41 pm
- Facebook Username: KElizabeth
- Location: Omaha
Re: September Scans?
I'm Scanning next week. I'm optimistic and not too stressed yet.
Good luck with your tests. Keep us posted.
Good luck with your tests. Keep us posted.
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current
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Rubyslipperz1
- Posts: 45
- Joined: Sun Jan 19, 2014 4:46 am
- Location: Chicago Area
Re: September Scans?
I scan this Thursday. It's one of the very few times I have been scared to do it/get results because my oncologist ordered it as he fears my chemo may no longer be working. I would love prayers and/or good thoughts and putting you both down in my prayer journal now. Here's to hoping for good news for all. (Imagine the sound of our wine glasses dinging as we virtually toast)
38 F mom DX 12/13
Stage IV CC w/ mets to liver,lung,& lymph nodes
10 rounds chemo
7/11-failed liver resect but removed tumors in colon and lymph nodes
10-11/14-SIRT
11/14-1/15-travel-Palooza
3/15- chemo folfiri and Avastin (every 2 weeks 4 life)
7/15-emergency back surgery
2016-Folfiri/Avastin e/o week took 2 month break and cancer thanked me by spreading to lungs, pancreatic lymph nodes and increased +30 tumors to liver
Stage IV CC w/ mets to liver,lung,& lymph nodes
10 rounds chemo
7/11-failed liver resect but removed tumors in colon and lymph nodes
10-11/14-SIRT
11/14-1/15-travel-Palooza
3/15- chemo folfiri and Avastin (every 2 weeks 4 life)
7/15-emergency back surgery
2016-Folfiri/Avastin e/o week took 2 month break and cancer thanked me by spreading to lungs, pancreatic lymph nodes and increased +30 tumors to liver
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dianetavegia
- Posts: 2731
- Joined: Sat May 16, 2009 8:47 pm
- Facebook Username: Diane Weldy Tavegia
- Location: Villa Rica, Georgia
Re: September Scans?
Wow, I'll pray for both of you and hope you'll post an update as soon as you get the results.
Diane
Diane
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Re: September Scans?
My wife's latest CT scan was last Friday. She met with her oncologist today. He says overall stable - No significant changes in the abdomen mets and the met pressing against her ureter between her Kidney to her bladder is about the same as well. No changes in Lungs, Liver or Spleen. So not the results we would have liked to hear, but not any worse from the last CT either. The combination of Irrinotecan, Erbitux and probably Avastin (Its a trial so the last could be placebo but we doubt it as she has been on it a long time previously) seems to be holding things in check. The worse side effect is fatigue and pain from the Stent she has in the Ureter to keep the tumor from pinching it closed. It causes some pain when she sits too long or if she is particularly active. We have done a lot of walking the last couple of days running dogs in preparation of up coming field trials she is trying to get the older dogs ready for, and puppies so they start to learn what this bird finding game is all about! As a result today she is very sore there. Sometime in October perhaps she will likely have to have the stent swapped out again. They like to do this every three to 4 months. We were hoping to not have to have it replaced. Now it doesn't look like it we can do without it.
Regards,
GrouseMan
Regards,
GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017
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HopeForJesse
- Posts: 249
- Joined: Wed Feb 24, 2016 9:39 am
- Location: Philadelphia
Re: September Scans?
Adding all of you to my prayer list this week/month.
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!
Re: September Scans?
Happy Sunday night to all. I have been with you on this board sometime around June 6th. Stomach cramps brought me to the ER and before I left 2 days later I was confirmed colon cancer stage 4b, inoperable, 16 months to live. I obtained my second opinion before I started on the full folfox 5fu, plus all the popular add-ons. I have trouble with side effects, but I want to live really really badly and will put up with whatever I physically can to do so.
So, I would like to join the September scan group, mine is tomorrow. Other tests, which are inconclusive according to my onc show my CEA and my C19-119 dropping down big time. I am still learning the fucking colon cancer lingo and will probably walk out of my onc meeting as dumb as I am now.
I would guess sometime this week I can quote some numbers and ask for advice from anyone who would be interested.
I am looking forward to lots of scans looking better.
Good luck to everyone, caregivers included!
So, I would like to join the September scan group, mine is tomorrow. Other tests, which are inconclusive according to my onc show my CEA and my C19-119 dropping down big time. I am still learning the fucking colon cancer lingo and will probably walk out of my onc meeting as dumb as I am now.
I would guess sometime this week I can quote some numbers and ask for advice from anyone who would be interested.
I am looking forward to lots of scans looking better.
Good luck to everyone, caregivers included!
62f, Blessed with a wonderful husband and 2 sons
Diagnosed 6/2016, Adenocarcinoma, Colectoral primary, chemo lifer
Stage 4b, liver mass 7.0 x 4.8 cm and additional lesions, multiple lung nodes
CEA 40.9
7/12 began Folfox, Neulasta, Avastan
CT 9/12 tumor shrunk 4.4 by 3.3
CEA 9.6
Continuing Folfox, CT scheduled 12/12.
MSS, neg lynch
Put Oxiliplatin and Neulasta on hold.
CT 12/12 Hepatic dome mass shrinks to 2.9 x 2.5, other lesions shrink, no new.
CEA 3.3
Diagnosed 6/2016, Adenocarcinoma, Colectoral primary, chemo lifer
Stage 4b, liver mass 7.0 x 4.8 cm and additional lesions, multiple lung nodes
CEA 40.9
7/12 began Folfox, Neulasta, Avastan
CT 9/12 tumor shrunk 4.4 by 3.3
CEA 9.6
Continuing Folfox, CT scheduled 12/12.
MSS, neg lynch
Put Oxiliplatin and Neulasta on hold.
CT 12/12 Hepatic dome mass shrinks to 2.9 x 2.5, other lesions shrink, no new.
CEA 3.3
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KElizabeth
- Posts: 400
- Joined: Sat Oct 31, 2015 12:41 pm
- Facebook Username: KElizabeth
- Location: Omaha
Re: September Scans?
Good luck on your scan tomorrow Marejenny. I'm tomorrow also so I'm right there with ya.
There is so much to learn from this forum if you visit daily. Soon you will be showing up to the oncologist armed with the knowledge of hoards of colon cancer survivors. I'm glad you joined. I look forward to reading your posts in the future.
Hugs.
Elizabeth
There is so much to learn from this forum if you visit daily. Soon you will be showing up to the oncologist armed with the knowledge of hoards of colon cancer survivors. I'm glad you joined. I look forward to reading your posts in the future.
Hugs.
Elizabeth
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current
Re: September Scans?
Good luck to all of you above and below my post with your scans, praying... ox
Had my CT scan last month.
Had my CT scan last month.
Last edited by Pita on Mon Sep 12, 2016 5:32 pm, edited 1 time in total.
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin #10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ???
2/21/17 Folfuri & Avastin
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin #10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ???
2/21/17 Folfuri & Avastin
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midlifemom
- Posts: 1358
- Joined: Wed Jan 15, 2014 10:58 am
- Location: NJ
Re: September Scans?
Scanning tomorrow.
Just took a one week postponement so i could attend wedding. Trmt before that was the oxali desensitization in the hosp. So i didnt get a full trmt, including no avastin. Before that it was the trmt where i had the reaction, prompting the desensitization. Before that was only a partial dose of folfox due to fatigue. Before that was a break because of the jaundice.
Long story short, its been forever since ive had a normal full treatment. Im expecting tomorrows scan to show significant growth. Will i even be a candidate for chemo?
I would think to be feeling better with all these skipped or shortened treatments. But I'm still way too fatigued. Muscles getting weaker.
So, would appreciate any extra well wishes for wise decisions to be sent this way. Thanks!
Just took a one week postponement so i could attend wedding. Trmt before that was the oxali desensitization in the hosp. So i didnt get a full trmt, including no avastin. Before that it was the trmt where i had the reaction, prompting the desensitization. Before that was only a partial dose of folfox due to fatigue. Before that was a break because of the jaundice.
Long story short, its been forever since ive had a normal full treatment. Im expecting tomorrows scan to show significant growth. Will i even be a candidate for chemo?
I would think to be feeling better with all these skipped or shortened treatments. But I'm still way too fatigued. Muscles getting weaker.
So, would appreciate any extra well wishes for wise decisions to be sent this way. Thanks!
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
-
HopeForJesse
- Posts: 249
- Joined: Wed Feb 24, 2016 9:39 am
- Location: Philadelphia
Re: September Scans?
Hi MlM,
I hope you had a good time at the wedding. Praying extra for you for good scans tomorrow as well as renewed strength and peace of mind.
BIG HUGS,
Mary
I hope you had a good time at the wedding. Praying extra for you for good scans tomorrow as well as renewed strength and peace of mind.
BIG HUGS,
Mary
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!
-
midlifemom
- Posts: 1358
- Joined: Wed Jan 15, 2014 10:58 am
- Location: NJ
Re: September Scans?
HopeForJesse wrote:Hi MlM,
I hope you had a good time at the wedding. Praying extra for you for good scans tomorrow as well as renewed strength and peace of mind.
BIG HUGS,
Mary
Thanks. I hope dropping the oxali makes treatments a bit easier for Jesse.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
Re: September Scans?
Good luck to everyone with September scans..
I did mine last Saturday. Need to do blood work and see New Onc on Thursday.
These scans are pretty nerve racking. I was really sweating this one and was expecting a phone call Sunday saying go to ER
For blood clots in lungs like my last scan. Hopefully I can come off warfarin this week.
I did mine last Saturday. Need to do blood work and see New Onc on Thursday.
These scans are pretty nerve racking. I was really sweating this one and was expecting a phone call Sunday saying go to ER
For blood clots in lungs like my last scan. Hopefully I can come off warfarin this week.
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t
-
DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: September Scans?
I hope that all of your scans go well and that you get good results!*hugs* Sending positive thoughts!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
-
dianetavegia
- Posts: 2731
- Joined: Sat May 16, 2009 8:47 pm
- Facebook Username: Diane Weldy Tavegia
- Location: Villa Rica, Georgia
Re: September Scans?
Watching for updates and praying for only good news!
Diane
Diane
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
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