Read my sig, and yay me for current status!

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Rob in PA
Posts: 1977
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Read my sig, and yay me for current status!

Postby Rob in PA » Mon Sep 05, 2016 10:54 pm

Got my "good to go" talk from my onc for first time on Thursday,! He said now is time to worry about the massive amounts of radiation pumped into me for all these scans.22 pet scans over seven years. Ugh. Wish me luck on my stand against more chemo..
ROB
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

Ron50
Posts: 665
Joined: Fri Feb 10, 2006 7:04 pm

Re: Read my sig, and yay me for current status!

Postby Ron50 » Tue Sep 06, 2016 1:12 am

Think of all the money we save on batteries, glowing in the dark has some advantages. As for all the scopes , despite all of my efforts to think positive thoughts , they remain just a pain in the butt. Happy rest of your life mate, best wishes Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Read my sig, and yay me for current status!

Postby BeansMama » Tue Sep 06, 2016 3:30 am

Congratulations! May your scans eventually get further and further apart. But, being a human flashlight does have its advantages :mrgreen:
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

stu
Posts: 851
Joined: Sat Aug 17, 2013 5:46 pm

Re: Read my sig, and yay me for current status!

Postby stu » Tue Sep 06, 2016 3:38 am

Enjoy your freedom. My mum has not had chemo since 2010 she has done the same. She is enjoying her life .
Take care
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Read my sig, and yay me for current status!

Postby BrownBagger » Tue Sep 06, 2016 6:39 am

Fantastic news, Rob. I don't think anyone has ever shown that radiation from scans has any direct affect on your longevity or health. Of course, I could be wrong.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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peanut_8
Posts: 2275
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: Read my sig, and yay me for current status!

Postby peanut_8 » Tue Sep 06, 2016 7:42 am

Hurray!

Image
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

kiwiinoz
Posts: 1100
Joined: Thu Jan 03, 2013 11:44 pm

Re: Read my sig, and yay me for current status!

Postby kiwiinoz » Tue Sep 06, 2016 8:51 am

Onya mate, amazing news brother :lol:
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 27 Feb 2018
Port Out 26 March 2015

JDMNYC
Posts: 133
Joined: Wed Apr 15, 2015 5:12 pm
Location: Morris County, New Jersey

Re: Read my sig, and yay me for current status!

Postby JDMNYC » Tue Sep 06, 2016 9:09 am

Fantastic Rob! Congratulations! :D
- Dx Stage IIIc rectal cancer: January 2015 (CEA 20)
- Chemo (Folfox): January - April 2015
- Chemo-Radiation (Xeloda): May - June 2015
- Surgery (LAR/temporary ileostomy): September 2015; 4/20 lymph nodes – no adjuvant chemo
- Reversal: December 2015
- Stage IV: August 2016 - Lung Mets
- Chemo (Xeloda) Started October 2016.
- CEA down; lung mets shrinking.

"There are more things in heaven and earth, Horatio, Than are dreamt of in your philosophy."

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Read my sig, and yay me for current status!

Postby Bev G » Tue Sep 06, 2016 9:28 am

:D :D :D :D :D :D :D

Strong work, Rob!
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Jack&KatiesMommy
Posts: 519
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Read my sig, and yay me for current status!

Postby Jack&KatiesMommy » Tue Sep 06, 2016 9:49 am

So very happy for you Rob!!!!!
Cynthia
Cynthia
Mommy to Jack (8) now (15) and Katie (4) now (11)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection!
8/13; 10/13; 12/13; 3/14; 8/14; 11/14; 2/15; 7/15; 12/15 RFA lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new mets lymph nodes in hilar/lung:
05/18: Started Keytruda (MSS but moderate mutation burden): CEA: 66.4, 39.2, 23.8, 13, 3.5 NOW 1.8
08/18 Clear CT scan

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mypinkheaven
Posts: 456
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: Read my sig, and yay me for current status!

Postby mypinkheaven » Tue Sep 06, 2016 10:08 am

Yay!!! 8)
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

aja1121
Posts: 213
Joined: Sat Jun 28, 2014 5:12 pm

Re: Read my sig, and yay me for current status!

Postby aja1121 » Tue Sep 06, 2016 10:14 am

CONGRATULATIONS!!!
DH dx Stage 3B rectal ca 05/23/14 (age 41)
6/2014 chemorad | 10/2014 LAR, all nodes clean
FOLFOX x 10 | VATS/lung met | ileo reversal
09/15 local recurrence
10/15 colostomy
11/15 FOLFIRI x 4, major growth
02/16 tumor debulked
Stable ten months on Xeloda/Avastin
Growth on clinical trials NCT02024607 (BBI608 + FOLFIRI), NCT02817633 (anti-PD-1 + anti-TIM-3), NCT03175224 (c-Met inhibitor)
09/27/2018 started hospice

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CRguy
Posts: 9621
Joined: Sun Feb 10, 2008 6:00 pm

Re: Read my sig, and yay me for current status!

Postby CRguy » Tue Sep 06, 2016 11:23 am

CRC BUTT being kicked

congrats Rob !!!!!!!!!!!!!!!!!!!

Mega Cheers
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Danieljt
Posts: 309
Joined: Sun Aug 10, 2014 10:32 pm

Re: Read my sig, and yay me for current status!

Postby Danieljt » Tue Sep 06, 2016 11:33 am

Such good news Rob. Thinking of you with good wishes!
Jackie
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.

KElizabeth
Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: Read my sig, and yay me for current status!

Postby KElizabeth » Tue Sep 06, 2016 11:43 am

Awesome! Thanks for sharing your great news. It really gives me hope.
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current


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