Another question (sorry to be so high-maintenance this week!)

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AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Another question (sorry to be so high-maintenance this week!)

Postby AnnClare » Mon Sep 05, 2016 1:42 pm

My nose has been sore this week. For the past 3 weeks or so, when I blow it, there's blood. Not always, but more often than not. I mentioned this to my onc at my last check up and he recommended I use a saline nasal spray to keep my nose from drying out. I've been using it the past couple of days, along with occasionally swabbing the inside (septum & nostrils) with coconut oil & occasionally Vaseline, since it forms and occlusive barrier and is supposed to help with healing.

Anyone else have this nose issue? It's quite a bother & I worry that there's been no change despite my efforts.

Thanks.
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Another question (sorry to be so high-maintenance this week!)

Postby teri3 » Mon Sep 05, 2016 3:52 pm

Hi AnneClaire!
First you aren't being high maintenance, that's what this group is for to ask the things that we'd only understand :D
My nose did the same thing in Folfox, every time I blew my nose there was blood. I'm pretty sure it's the folfox attacking the mycus membrane. I don't have as much trouble on folfiri but there is still some times I have blood in my nose. I just put up with it, I never thought about coconut oil. Hope it gets better.
HUGS
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

AussieAssCancer
Posts: 258
Joined: Sat May 21, 2016 10:16 am

Re: Another question (sorry to be so high-maintenance this week!)

Postby AussieAssCancer » Mon Sep 05, 2016 4:11 pm

Hi AnnClaire,

I noticed it towards the end of my FOLFOX treatment. Once I finished up it resolved itself.

Hope it clears up quickly for you!

GK
Dx Oct '15 w/ Stage 3c RC/ CEA 8
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Re: Another question (sorry to be so high-maintenance this week!)

Postby AnnClare » Mon Sep 05, 2016 4:42 pm

Thanks, guys. Again, glad I'm not alone in this. I was starting to wonder if there was something else going wrong/wonky with my body.

Oh, the things we must endure. People not in our 'club" have no idea . . .
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

Noon32316
Posts: 34
Joined: Sun May 08, 2016 11:33 am

Re: Another question (sorry to be so high-maintenance this week!)

Postby Noon32316 » Mon Sep 05, 2016 5:02 pm

Thanks for bringing this up. I noticed dryness and blood too after a few cycles and thought it was just me. I was so preoccupied with other side effects, I didn't bring it up during follow ups. Then I got so fed up with all the changes to my body, I just let it go.
3/16: Dx colon cancer (sigmoid). Age: 36
4/16: PET/CT, Sigmoidectomy, Port installed
5/23/16 to 11/30/16: Folfox - 12 tx, no oxaliplatin for #11 & #12
11/5/16: PET/CT - NED
3/21/17: Colonoscopy = clear
9/27/17: CT scan = pathologically enlarged retroperitoneal lymph nodes - nodal metastases
10/5/17: CT guided needle biopsy
10/13/17: Confirmed - Recurrence

CEA '16 & '17: < 0.5
Original Dx: Stage 3C, T4a, N2b, Grade 3, 16/16 lymph nodes, infiltrating signet-ring cell carcinoma
Lynch negative

MHL888
Posts: 13
Joined: Wed Feb 25, 2015 11:53 am
Location: Twickenham (Greater London), UK

Re: Another question (sorry to be so high-maintenance this week!)

Postby MHL888 » Mon Sep 05, 2016 5:29 pm

Hi AnnClare,

I also got this past folfox cycle 6.

if you google 'Dr. Schmidts Jala Neti pot' that fixed things for me, as well as helping ward off airborne infections while immunity was low...

Cheers, Micah
11/2014 diagnosed sigmoid adenocarcinoma (rT3N1Mx) @ 47 after 2 years of missed opportunity for earlier diagnosis :-(
Randomised to treatment branch of FOXTROT trial (split chemo regime, both pre & post op)
LAR 10/02/2015 - staging pT2N2Mx, 6/29 LN with LVI confirmed
CT scan 17/03/2015, looking good so far (everything crossed) Mx now M0 (for now). 13/04/2015 Chemo restarted, 9 rounds more . Bleachh.
03/09/2015 Last of 12 rounds of Folfox.

Joannerogers
Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: Another question (sorry to be so high-maintenance this week!)

Postby Joannerogers » Tue Sep 06, 2016 7:13 pm

Yes I has the bloody nose also. Went away after treatment was over.
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

NateA
Posts: 115
Joined: Sun Aug 02, 2015 7:41 pm
Facebook Username: Nathan Drew Allen

Re: Another question (sorry to be so high-maintenance this week!)

Postby NateA » Tue Sep 06, 2016 7:56 pm

Avastin always gives me a runny nose..
7/15 dx CC stage 4 with lots of liver mets CEA 208
KRAS Mutant G12V, MSS.
9/23 from folfoxiri to folfox and Xeloda. CEA 25
11/11/15 all liver markers in the zone, CEA 4.0, moving to Avastin/xeloda for now..tumors shrinking
01/13/16 Avastin/xeloda CEA 3.5
03/11/16 clean PET CEA 4.4

User avatar
MikeManess
Posts: 90
Joined: Fri Apr 01, 2016 3:56 pm
Location: Forney, Texas

Re: Another question (sorry to be so high-maintenance this week!)

Postby MikeManess » Tue Sep 06, 2016 8:52 pm

I have both a runny nose and pain in mine. No blood, but a pretty bad pain right in the nose. I'm sure it's the Avastin, but so far it's nothing that I can't handle. I also have almost constant sinus drip for a week or so after chemo.
3/11/16 Colonoscopy - 9 benign polyps, 1 large cancerous tumor in right ascending colon
4/19/16 Right colectomy
6/3/16 Two liver spots detected, added Avastin to Folfox
12/20/16 Liver surgery. Pathology shows no active cancer cells
6/7/17 Final chemo
12/5/17 Port removed
05/23/18 Liver tumor discovered in scans
04/04/19 Radiation treatment
08/15/19 Additional radiation treatment
08/21/19 NED again


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