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Re: MEDI4736 CLINICAL TRIAL

Posted: Mon Jan 30, 2017 7:44 pm
by Maia
Great news, keep going! : )

Re: MEDI4736 CLINICAL TRIAL

Posted: Wed Feb 22, 2017 3:48 pm
by BIG ROB 69
Update:
So my numbers are getting better: CEA 120.8. BILIRUBIN. .4 Body weight 157.5 lbs. I'm also feeling a lot better and eating at least 3 times a day, plus snacks. C'mon Keytruda! The only real side effect so far is fatigue, but imma up my iron intake, which should bring up my RBC, which is always low.

Re: MEDI4736 CLINICAL TRIAL

Posted: Wed Feb 22, 2017 4:32 pm
by Maia
Rob, I'm im awe looking at your CEA trend, the going down, since you started the immunotheray!!
How do you care about the bile duct? Re-stenting...?
Keep well!!!

Re: MEDI4736 CLINICAL TRIAL

Posted: Wed Feb 22, 2017 9:58 pm
by BIG ROB 69
Maia...I have 2 bile drains. The internal medicine doc still wants to keep them draining, just in case, although I have capped them at times in order to assess if the restrictions on my bile ducts are decreasing. For Monday's test I had them capped for 3 days and bilirubin was 0.4.

Re: MEDI4736 CLINICAL TRIAL

Posted: Tue Mar 14, 2017 5:47 pm
by BIG ROB 69
Update: Keytruda Round 5.
CEA...98. Bodyweight...162.7 Bilirubin... .6
A couple of bad days last week, probably because I was too out there and exposed to many germs...gotta take it easy. Thanks everyone for the prayers...seems to be working.

Re: MEDI4736 CLINICAL TRIAL

Posted: Tue Mar 14, 2017 6:08 pm
by stu
Hi,
Great watching that CEA drop... big time!!
Delighted your doing well on it. Maybe build in a wee bit rest too :D
Take care,
Stu

Re: MEDI4736 CLINICAL TRIAL

Posted: Tue Mar 14, 2017 8:54 pm
by aja1121
Great news!

Re: MEDI4736 CLINICAL TRIAL

Posted: Fri Apr 21, 2017 9:24 pm
by BIG ROB 69
Update: Keytruda Round 6
CEA 83.6 BODYWEIGHT 173 BILIRUBIN .7
Feeling better. Got a couple of workouts in...strong as a kitten. Very far from my powerlifting days, but looking forward to getting back on the jitsu mats once these bilitubes get taken out. GO KEYTRUDA!!!

Re: MEDI4736 CLINICAL TRIAL

Posted: Sun Apr 23, 2017 8:45 am
by jortego128
Hey Big Rob, fellow jiu-jitsuka here, awesome that you feel good enough to step back on the mat!

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Re: MEDI4736 CLINICAL TRIAL

Posted: Mon Apr 24, 2017 1:49 pm
by BIG ROB 69
It's one of the things that keeps me going. Haven't trained in 2 years, but I got jits in the brain and watch vids every day. When these tubes come out imma start drilling and maybe teach a morning class. Good luck in your jits journey.

Re: MEDI4736 CLINICAL TRIAL

Posted: Sat Apr 29, 2017 2:11 pm
by Maia
Jortego, what a wonderful pics!! Thanks for sharing them.

Rob, I love seeing the Keytruda continues bringing the numbers down steadily!! Go KEY-truda go!!

Re: MEDI4736 CLINICAL TRIAL

Posted: Fri May 12, 2017 11:34 pm
by BIG ROB 69
Update: Keytruda round 7.
CEA 64.7 BODYWEIGHT 171 BILIRUBIN .5
Numbers are better, feel healthier, some days still with massive fatigue, but some of those days are due to exposure with other people, particularly at the jits academy, where its sweaty and stuffy from everyone training. It almost feels like a fever, with chills, but I'm able to shake it off after a long nap and morphine. The doctor says the bypass tubes still have to stay in, and my onc will not go against him, so I'm still stuck with these tubes. Shit.

Re: MEDI4736 CLINICAL TRIAL

Posted: Sat May 13, 2017 9:00 am
by Maia
SO happy for you, Rob!!

So, are you already back to the jitsu mats? --more a Wushu former girl here, but equally happy to hear about your jitsu. Do not worry about the stents... give it time. :)

Re: MEDI4736 CLINICAL TRIAL

Posted: Sat May 13, 2017 2:34 pm
by BIG ROB 69
Hey Maia, getting used to all the germs at the academy, so hopefully doing drills by months end. Wushu huh, would like to see some of your moves. Jackie and Jet are wushu guys.

Re: MEDI4736 CLINICAL TRIAL

Posted: Tue May 16, 2017 10:51 am
by plastikos
Hi Rob. You and I have almost the same course. I also developed jaundice last December and had a biliary stent put in. I still have it. Currently on Keytruda as well and so far so good. Feeling better, gaining weight. Wishing you the best.