So so so angry!!!!!

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MaShawas
Posts: 6
Joined: Sat Aug 13, 2016 11:23 am
Facebook Username: Gracious Tinyiko Mthombeni-Shawarira

So so so angry!!!!!

Postby MaShawas » Wed Aug 17, 2016 7:11 pm

:oops: My husbands oncologist just told my husband bluntly that his situation won't get better. The sooner he accepts it the better. He has tube in his nose because his bowel is obstructed. He has rectal cancer stage 4. He said he will still try Chemo but he has less than a month to live. I know that may be true but the way he said it. ... Argggghhhhh, my poor husband was left reeling and I had to comfort him. He is only 37 years old. I am sooo devastated and feel so alone. Why us???? I prayed to God to intervene but the situation is getting worse. What of my 3 beautiful little girls? ??? This is very hard for me to accept. :cry: :cry: :cry:

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: So so so angry!!!!!

Postby Lee » Wed Aug 17, 2016 7:28 pm

Not sure where you are butt if at all possible, get a 2nd opinion at a major cancer treatment center ASAP! Not all Dr.(s) have the same skill and knowledge.

Your husband is young, that is in his favor.

All the best,

Lee

P.S. Find a surgeon, a board certified colon rectal surgeon, ASAP. His current Dr is a Onc, not a surgeon. He's practicing medicine in an area that is NOT his expertise.
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: So so so angry!!!!!

Postby mypinkheaven » Wed Aug 17, 2016 7:45 pm

MaShawas wrote::oops: My husbands oncologist just told my husband bluntly that his situation won't get better. The sooner he accepts it the better. He has tube in his nose because his bowel is obstructed. He has rectal cancer stage 4. He said he will still try Chemo but he has less than a month to live. I know that may be true but the way he said it. ... Argggghhhhh, my poor husband was left reeling and I had to comfort him. He is only 37 years old. I am sooo devastated and feel so alone. Why us???? I prayed to God to intervene but the situation is getting worse. What of my 3 beautiful little girls? ??? This is very hard for me to accept. :cry: :cry: :cry:


I saw on Facebook that you are in Johannesburg, So. Africa. Are you at a large hospital? Have you spoken to a surgeon? Can you contact CANSA to get some help?
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: So so so angry!!!!!

Postby midlifemom » Wed Aug 17, 2016 7:53 pm

So sorry you were subjected to such an unkind attitude.
Please, try to find another doctor.
Doctors do not have crystal balls, they dont know for sure what the future holds.
Hold your husband and little girls tight. You will provide comfort for each other.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

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Marylandmaniac
Posts: 234
Joined: Wed Jun 29, 2016 6:22 pm

Re: So so so angry!!!!!

Postby Marylandmaniac » Wed Aug 17, 2016 8:56 pm

MaShawas wrote::oops: My husbands oncologist just told my husband bluntly that his situation won't get better. The sooner he accepts it the better. He has tube in his nose because his bowel is obstructed. He has rectal cancer stage 4. He said he will still try Chemo but he has less than a month to live. I know that may be true but the way he said it. ... Argggghhhhh, my poor husband was left reeling and I had to comfort him. He is only 37 years old. I am sooo devastated and feel so alone. Why us???? I prayed to God to intervene but the situation is getting worse. What of my 3 beautiful little girls? ??? This is very hard for me to accept. :cry: :cry: :cry:



I will pray for you and your husband. Like others have said get a second opinion asap. I had a TERRIBLE surgeon at first and I left right away. Found a GREAT colorectal surgeon who is so much better plus has a better bed side manner. Who the heck is this Dr to tell your husband that?? He is not God and he does not have a crystal ball. There is a woman on here who was told she had 6 months to live and she said she was determined to live 6 months and day just to spite that doctor, lol Love that Well she just celebrated 12 years NED! Have faith, get second opinion and take care of your babies. Also look to see if any clinical trials are around you that may offer hope.
DX 6/29/16 7 cm tumor, 10 cm fr av
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX

aja1121
Posts: 214
Joined: Sat Jun 28, 2014 5:12 pm

Re: So so so angry!!!!!

Postby aja1121 » Wed Aug 17, 2016 10:52 pm

Don't give up. Find a surgeon who specializes in colon and rectal surgery. Is this group near you? http://www.dgmc.co.za/highly-specialise ... ectal-unit
05/23/14 DH dx Stage 3B rectal ca (age 41)
6/2014 chemorad | 10/2014 LAR, all nodes clean
FOLFOX x 10 | VATS/lung met | ileo reversal
09/15 local recurrence
10/15 colostomy
11/15 FOLFIRI x 4, major growth
02/16 tumor debulked
Stable ten months on Xeloda/Avastin
Growth on clinical trials NCT02024607 (BBI608 + FOLFIRI), NCT02817633 (anti-PD-1 + anti-TIM-3), NCT03175224 (c-Met inhibitor)
09/27/2018 started hospice
02/07/19 died

Swirdfish
Posts: 290
Joined: Sun Jun 19, 2016 3:57 am

Re: So so so angry!!!!!

Postby Swirdfish » Thu Aug 18, 2016 12:07 am

Wow I'm so sorry about that news. Like me, to get this news at 37 is devastating and a real slap in the face. So many mix emotions, despair and anger which is normal. I got angry, and my family had to deal with this. Why me, why us, why anyone. Fuck cancer, life is nothing but ups and downs.

Sometimes I feel for some oncologists, would not be an easy job, although they don't have crystal balls, they have the experience and have seen it before. If I was an oncologist I think I would break down a lot through my emotions of seeing people go through all of this. Some of them more then likely switch this function off. Still I'd rather my onc to tell me straight up.

One of my nurses at path taking my weekly blood tests actually broke down and went home for the day after seeing me.

Support each other, keep fighting and most of all have hope.

Get 2nd opinions ASAP and do not take NO for an answer. My wife was great she did alot of leg work, and would not stop until we had the best surgeon and best oncologist.

Don't get angry. But just do the best you can.

Remember Push, and Push some more. Things can happen quite quickly if you get Abit of rage up and don't take NO for an answer.

Focus.

Sorry about the rant but it hits home for all of us here on the forum.wish you all the luck and will think and pray about this post and you both.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: So so so angry!!!!!

Postby DarknessEmbraced » Thu Aug 18, 2016 7:52 am

How awful you are dealing with this!*hugs* I would find another oncologist if possible!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

crc2007
Posts: 41
Joined: Mon Jul 25, 2016 1:46 pm

Re: So so so angry!!!!!

Postby crc2007 » Thu Aug 18, 2016 12:10 pm

Dear Gracious,
I am so sorry to hear the bad news for your husband and especially, the way in which it was delivered. Grrrrrrrrr!
As others have said, oncologists, doctors in general do not know everything. I like the post above where the doctors 'gave' 6 months and the person was still going 12 years later. I also agree on a second opinion.
(((((((((((((((((((((((((((((((((((((((((( Gracious and husband))))))))))))))))))))))))))))))

crc2007
Rectal cancer dx Jan. 2007
radiation/chemo prior to surgery May 2007
resection, temp ileo
chemo
reversal 2008
perm colostomy 2009
colon perforation, sepsis
transverse colostomy (emergency) 2013

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: So so so angry!!!!!

Postby Pita » Thu Aug 18, 2016 1:21 pm

So sorry Gracious, praying you get a second opinion with better news!
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: So so so angry!!!!!

Postby teri3 » Thu Aug 18, 2016 1:40 pm

Praying for your hubby and you. Plesse get a second opinion. You have every right to be angry at thr way he handled this. HUGS
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: So so so angry!!!!!

Postby ronswife » Thu Aug 18, 2016 1:50 pm

Marylandmaniac wrote:
MaShawas wrote::oops: My husbands oncologist just told my husband bluntly that his situation won't get better. The sooner he accepts it the better. He has tube in his nose because his bowel is obstructed. He has rectal cancer stage 4. He said he will still try Chemo but he has less than a month to live. I know that may be true but the way he said it. ... Argggghhhhh, my poor husband was left reeling and I had to comfort him. He is only 37 years old. I am sooo devastated and feel so alone. Why us???? I prayed to God to intervene but the situation is getting worse. What of my 3 beautiful little girls? ??? This is very hard for me to accept. :cry: :cry: :cry:



I will pray for you and your husband. Like others have said get a second opinion asap. I had a TERRIBLE surgeon at first and I left right away. Found a GREAT colorectal surgeon who is so much better plus has a better bed side manner. Who the heck is this Dr to tell your husband that?? He is not God and he does not have a crystal ball. There is a woman on here who was told she had 6 months to live and she said she was determined to live 6 months and day just to spite that doctor, lol Love that Well she just celebrated 12 years NED! Have faith, get second opinion and take care of your babies. Also look to see if any clinical trials are around you that may offer hope.


FANTASTIC post, Marylandmaniac! This is exactly how I feel!

:x :(
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.

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Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: So so so angry!!!!!

Postby Sharon Brent » Thu Aug 18, 2016 4:23 pm

Hi,
Sorry about your Rubbish treatment from that crap Quack,
listen, no matter what any doctor says remember one thing which my a Husband always used to say,
Jesus Christ Bo Dibia Orkwu
Which means
Jesus Christ is the Greatest Doctor
I will Pray for you that you get a better person to help your husband, but never loose hope, God always has a plan, it's just that sometimes we don't always agree with his decisions.
Keep Strong in your Faith but also your body, don't forget to look after yourself so you can support your Husband and look after your Girls.
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: So so so angry!!!!!

Postby jhocno197 » Thu Aug 18, 2016 5:33 pm

I agree with the above posters.

I am sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Newmol
Posts: 34
Joined: Mon May 16, 2016 4:36 am

Re: So so so angry!!!!!

Postby Newmol » Mon Aug 22, 2016 7:16 am

i am so sorry that you and your husband are going through this. I think that a second opinion is a good idea. Your family is in my prayers.
Routine colonoscopy 4/19/16 tubulovilois adenoma partially removed piecemeal - high grade dysplasia
Follow-up colonoscop 5/11/16 partial removal of remnants - suspicion of intra mucosal carcinoma
Right Hemicolectomy 6/7/16 margins and 39 lymph nodes - negative


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