arizona mom wrote:I have the same pain. It is currently my biggest complaint about chemo. Every BM is so painful. When it is at all convenient, I often go straight to a sitz bath for relief. I use calmoseptine, tucks, prep H, etc. It doesn't seem like nueropathy, because I am swollen (like hemorrhoids) and raw with occasional bleeding. I just started on lomotil to see it reducing bowel movements will help. Today I even tried acupuncture for the first time specifically for this issue. I start chem #4 of folfox (this time around) on Tuesday. I was hoping to have some relief before starting all over again. I'm following to see if you get relief from Gabapentin.
For those following, yes the gabapentin helps. I've been experiencing two types of pain during bms. One is the burn, like the stool is too acidic. The second, and worse, is the knives in pelvic area with intense low back pain and tailbone pain.
I started gabapentin - 100mg - at night, cause it can cause fatigue. The pain was reduced, but evenings were still hard. The pain doc now has me taking 100mg in morning and night. The nighttime pain is gone!!!:) this is big relief since thats when i cluster. The burning pain is slightly reduced, wish that was better. But the knives, muscle and tailbone pain is GONE!!
I hope everyone can find some pain relief today, in whatever form it may be.