Nik Colon - all ok?

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midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Nik Colon - all ok?

Postby midlifemom » Sun Aug 14, 2016 7:50 pm

I just don't remember seeing you post in some time - that could be my brain.
The worse i feel, the more i seem to be on CT, so i hope that's a sign you're feeling great.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

Lee
Posts: 6034
Joined: Sun Apr 16, 2006 4:09 pm

Re: Nik Colon - all ok?

Postby Lee » Sun Aug 14, 2016 9:51 pm

Sending warm wishes that you are OK.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
WriterGirl1969
Posts: 513
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Nik Colon - all ok?

Postby WriterGirl1969 » Sun Aug 14, 2016 10:07 pm

Lee wrote:Sending warm wishes that you are OK.

Lee


Ditto that, Nik. Let us know all is well.
Hugs and prayers,
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Nik Colon - all ok?

Postby BeansMama » Sun Aug 14, 2016 10:08 pm

Hoping all is well with you Nik.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Soccermom2boys
Posts: 216
Joined: Tue Nov 10, 2015 10:29 pm

Re: Nik Colon - all ok?

Postby Soccermom2boys » Sun Aug 14, 2016 11:21 pm

I also noticed her missing on the board for at least this past week, but I am hoping it is because of that vacation she had mentioned (Wisconsin?) and that she is too busy enjoying that break to chime in. :D
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Nik Colon - all ok?

Postby Pita » Sun Aug 14, 2016 11:23 pm

Think Nik went on a family vacation, not sure exactly when this was to take place, but know for sure it was to happen. Hope all is well!!!
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

mike1965
Posts: 118
Joined: Mon Jan 25, 2016 11:07 pm

Re: Nik Colon - all ok?

Postby mike1965 » Mon Aug 15, 2016 2:16 am

Hope all is well Nik.
Colonoscopy 09/06/15 Doctor removed polyp
DX - Rectal cancer 09/10/2015 T1M0N0
Surgeon recommended wait and see approach 09/2015
Tumor board recommended LARs Surgery 10/2015
Oncologist and PCP recommended LARs Surgery 11/2015
Seeking 2nd opinion from another Surgeon 01/2016
Having Sigmoidscopy on 02/01/16.
Figured out treatment 02/2016
LARS Surgery 03/2016
Stage 3A T1 N1C M0
Chemo Folfox to begin 04/18/16

Nik Colon

Re: Nik Colon - all ok?

Postby Nik Colon » Mon Aug 15, 2016 10:00 pm

Thanks everyone :) I'm still around, just busy atm. I will be going to WI Dell's next week. My bday is this Sat and alot of bdays in my family around this time. Hope you are all doing well. I will try to check in before I leave next week.

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Nik Colon - all ok?

Postby Pita » Mon Aug 15, 2016 10:27 pm

Good news Nik! Enjoy your vacation oxo
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

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WriterGirl1969
Posts: 513
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Nik Colon - all ok?

Postby WriterGirl1969 » Tue Aug 16, 2016 5:35 pm

Nik Colon wrote:My bday is this Sat


HAPPY BIRTHDAY, Nik!!!!!!!!!!!!!!!!!
May this be your best so far, and each one going forward be better than the last. :)
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

michellecairn
Posts: 80
Joined: Wed Dec 23, 2015 7:09 pm
Facebook Username: Michelle Pulera
Location: Kenosha, Wisconsin

Re: Nik Colon - all ok?

Postby michellecairn » Tue Aug 16, 2016 9:09 pm

Glad to hear you're well Nik!

Happy Early Birthday! :D

Hope you have fun in the Dells next week. I actually have a trip planned to go up there next Saturday the 27th. Possibly Friday too.
Age: 39(38 at dx), married, mom of 2
Stage IV
DX: 10-7-15 colon cancer (signet ring cell)
CEA: 10-4-15: 9.5, 2-8-16: 42.5, 3-7-16: 22.6, 5-26-16: 18.8, 7-27-16: 14.3, 10-20-16: 21.1
abnormal MSH6 and BARD1
KRAS: wild type
MSI High
Lynch positive
11-16-15: 1 round Folfirinox/5FU, 5 rounds folfox/5FU , 4 with Avastin
2-8-16: Chemo not working
3-7-16: back to folfox/Avastin/5FU
3-24-16: Keytruda
2-23-17: FAILED Keytruda
3-2-17: Erbitux
3-30-17: Erbitux + Irinotecan
5-25-17: FAILED Erbitux + Irinotecan

DarknessEmbraced
Posts: 3444
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Nik Colon - all ok?

Postby DarknessEmbraced » Thu Aug 18, 2016 7:53 am

I hope you enjoy your vacation and have a wonderful birthday!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Nik Colon

Re: Nik Colon - all ok?

Postby Nik Colon » Fri Aug 19, 2016 8:09 pm

michellecairn wrote:Glad to hear you're well Nik!

Happy Early Birthday! :D

Hope you have fun in the Dells next week. I actually have a trip planned to go up there next Saturday the 27th. Possibly Friday too.

Cool, too bad it's not the same time. Have fun

Nik Colon

Re: Nik Colon - all ok?

Postby Nik Colon » Fri Aug 19, 2016 8:10 pm

DarknessEmbraced wrote:I hope you enjoy your vacation and have a wonderful birthday!*hugs*

Ty :)

Nik Colon

Re: Nik Colon - all ok?

Postby Nik Colon » Fri Aug 19, 2016 8:11 pm

Ty Pita and WG


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