rmblack wrote:Yes I had a scan at MD Anderson this week and he reviewed the scans and said NED. I'm still stage 4 due to the fact that there was a cancer cell found in the abdominal wall. I know that I'm going to have to get over the uncomfortable feeling of explaining my decision to him. It's just hard because I don't want him to feel as if I don't trust him. I just have to find the nicest way to say it. I'm glad that you guys think that MD Anderson is so reputable. It makes me feel better about my decision to go with the treatment plan there. It's scary because I feel like I'm not doing anything to fight cancer. And in my mind, I feel like I should be fighting. But apparently there is nothing to fight right now!
First, I wonder how MD Anderson can say NED, but the Stage 4 persists, unless they removed the cell and confirmed it after your initial scan.
That being said, there are plenty of instances of people working with more than one oncologist. They have a team. Especially if one is remote. It allows the site that is remote but with better experience to participate in your care, and help guide your local doc. If your current local oncologist is anything like many of the others I've heard about and experienced myself, they prefer to adhere to conventions laid down by others... such as the docs at MD Anderson. Chances are he or she will appreciate the added guidance and not be offended by it. If he/she *is* offended, then I would agree with the others and say it's time to change your primary care to someone else, but don't go down that road unless you actually get there.
In the meantime, get the results shared, revisit with oncologist, and see what he/she has to say.
And by the way, CONGRATS on finding our you are back to NED.
Hugs and Prayers,